I have a few ?s about ms

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deep3
Regular Member


Date Joined Jul 2006
Total Posts : 34
   Posted 7/22/2006 1:37 AM (GMT -6)   
eyes  had my first episode about 6 months ago where I had pressure in my head along with dizzyness, ringing in my ears, wierd attack with the fast hearbeat and shortness of breath. My bp was 150 over 105 at that time.
They gave me bp pills and sent me home.
Soon after I started getting pains in my back and kidneys and arms and legs.
Urine frequent and clear.
Like having the flu.
I went back to my doc and he ran many blood tests and all were neg including ana and lyme.
Had doppler and echo.
Doppler was neg and echo showed slight leakage in valves.
Did catscan and mri.
They found several lesions on my mri in deep white matter and suggested ms as possibility.
Went to a neuro and passed all tests until he looked at my mri.
He couldn't believe that there was 7 lesions in my brain.
I've been reading all over the web for info but can't find answers.
 
My questions are as follows:
Is dizzyness a symptom of ms and does it last for months?
I have wierd feelings in my brain that I never had.
Sometimes I feel like I'm leaving this planet.
My vision seems to be getting blurry at times.
My ears ring constantly with ear pain at times.
I have body aches in my back,legs and chest.
They gave me clonazapam for anxiety and they seem to work when I feel like I'm getting that wierd attack with the fast hearbeat and shortness of breath.
 
My neuro wants to do a spinal tap but I do not.
Is there any other way or testing for a diag for ms?
I hear spinal taps are old time medicine anymore.
Can anyone help me here?
 
 
 
 

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/22/2006 4:07 AM (GMT -6)   
Here is one thread where some of your questions might be addressed:
 
 
If you had not already had the MRI which found the lesions in your brain, I might have suggested that you see a specialist -- an ear-nose-throat doctor (or ENT) to be tested for some infection or problem with your inner ear.  That certainly still could be something you want to do as a sort of second opinion.  I don't know if inner ear problems can cause lesions to appear on the brain, however.
 
If indeed you do have MS, yes, it can cause dizziness. And unfortunately, almost any symptom of MS can stay for a long time, even forever.  The shortness of breath and rapid heartbeat go together, and are a sign of anxiety. The meds you've been given seem to help with that.  Naturally you're anxious, being diagnosed with a chronic illness, and having some concern that you might not be treated correctly, or have the right diagnosis. That may dissipate in time as you come to accept what might be ailing you.
 
While spinal taps are "old(er) time medicine", if there is any doubt about what is wrong, often the doctor will request that you undergo a spinal tap as yet another tool to confirm MS, or perhaps lead him in another direction as to what is wrong with you.  Clearly there is something wrong. Doctors generally don't like to diagnose something until they're pretty certain what it is, and it sounds like neither you nor the doctor are convinced that it is indeed MS.  If you read the thread I provided, you'll see that while some of your symptoms could be MS, they're not the "typical" sorts of things that a doctor looks for, to make that diagnosis.
 
You might do some research to see if inner ear problems can cause lesions to appear in the brain.  If so, then certainly explore that option.  If not, then you need to be sure that you and the doctor are confident about the MS diagnosis, and proceed from there.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 7/22/2006 4:09 AM (GMT -6)   
http://www.healingwell.com/community/default.aspx?f=32&m=417903

Here's another thread that might be helpful.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


deep3
Regular Member


Date Joined Jul 2006
Total Posts : 34
   Posted 7/23/2006 8:47 PM (GMT -6)   
eyes  If I do ask for an antibiotic for lyme what one would be the best to ask for from my doctor?

deep3
Regular Member


Date Joined Jul 2006
Total Posts : 34
   Posted 7/26/2006 5:59 PM (GMT -6)   
I had a new lyme test taken ,a LGG and LGM.Will get results next week.
I started doxy yesterday and I have not felt any worse yet.
What should I expect from the doxycycline?

LexiLex
Veteran Member


Date Joined Jun 2006
Total Posts : 887
   Posted 7/27/2006 7:56 AM (GMT -6)   
Hi deep3,
 
The reaction that violets is talking about occurs in most people with Lyme disease when they start taking antibiotics.  It's called a herxheimer reaction.  You should be able to look it up on the Internet if you want to pretty easily.  In short, it's a worsening of the symptoms that you already have, plus probably some new symptoms.  You just feel extra crummy after the antibiotics and then start feeling better.  It goes in cycles along with the life cycle of the bacteria.  Most say each time they come out of a "herx" they feel a little better than before.
 
With Lyme disease a higher dose of doxy would most likely be needed to get it built up in your system enough for killing bacteria.  If you want to test it out, talk to your doctor to make sure you're taking around 400 - 600 mg a day.  If that's more than s/he prescribed, talk to him/her about maybe trying out that dose for a week or two just to see.
 
Good luck with everything.  Take care of yourself!
Alexia

deep3
Regular Member


Date Joined Jul 2006
Total Posts : 34
   Posted 7/28/2006 12:49 PM (GMT -6)   
On tue the 26 of july I started getting back pains,hot and cold spells,and some minor flue like symtoms.
This was after 2 days of doxy treatment.
On wed the 27 of july I started getting pressure in my head with neck pain,ear pain,itchy skin and a headache after I took a pill after dinner.
Does this sound like lyme symtoms to anybody who started treatment with doxy?
Thanks

LexiLex
Veteran Member


Date Joined Jun 2006
Total Posts : 887
   Posted 7/28/2006 8:46 PM (GMT -6)   
Hi Deep3,
 
Yes, what you've been going through definitely COULD be Lyme bacteria being stirred up by the doxy.  Talk to your doctor about it so you can figure this out no matter what it is!  Make sure you tell him/her how you've been feeling different after the antibiotics.  You might even want to consider doing a second Lyme test now - it is speculated that one of the reasons the tests can be unreliable is that the bacteria can kind of hide in your body.  If that is true in your case, you might have them mad and stirred up.  My doctor had me take a few days of doxy before the test for this reason.  There are some Lyme labs that are more reliable. Igenex in CA is one. Bowen is another. 
 
I hope you figure things out soon!  Be your own best advocate and make sure they rule out other possibilites!
 
Alexia

deep3
Regular Member


Date Joined Jul 2006
Total Posts : 34
   Posted 7/28/2006 9:25 PM (GMT -6)   
Can anyone tell me what this pressure I feel in my head is about?
Its a strange feeling and I have a slight headache and neck pain with this feeling.
hi Alexia,
I just had another test on tue for lyme.I will let everyone know the results soon.
Thanks for all your help guys.
Michael

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 7/29/2006 9:20 AM (GMT -6)   
Hi Deep3 ,
Have you checked out the lyme threads on this site? You might be able to ask more questions and get more responses in regards to lyme on those posts. Just a thought since this is the MS forum and most of us don't know anything about lyme. You are welcome to post though! :)
Michelle ><>
 A true friend is like support to a leaning wall.


deep3
Regular Member


Date Joined Jul 2006
Total Posts : 34
   Posted 8/4/2006 7:25 PM (GMT -6)   
Does anyone get pressure in their head with some pain at times?

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 8/4/2006 9:49 PM (GMT -6)   
Hi Deep,
I do get frequent headaches and a band-like sensation at times. :)
Michelle ><>
 A true friend is like support to a leaning wall.


deep3
Regular Member


Date Joined Jul 2006
Total Posts : 34
   Posted 8/4/2006 10:36 PM (GMT -6)   
I'm just looking for reasons why I have these strange feelings in my head.
I'm new to all this. I've been Ill now for 7 months.
I can't get used to this dizzy feeling and ringing ears I have every day.

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 8/5/2006 5:48 AM (GMT -6)   
deep3 said...
I'm just looking for reasons why I have these strange feelings in my head.
I'm new to all this. I've been Ill now for 7 months.
I can't get used to this dizzy feeling and ringing ears I have every day.
Have you been back to your doctor with this question?  If he's telling you that it is because you have MS ... which is quite possible...there really isn't much to be done for it.  MS is a chronic life-long disease, not something that goes away.  If it is affecting your inner ear (which can cause the dizzy feeling and ringing ears), that could indeed last for the rest of your life.  Over time, you'll figure out ways to deal with it, cope with it, and not dwell on it, as it may be there for a long time, measured in years.
 
If the dizziness is so severe that it affects your ability to function, you should ask about meds to treat it. Inner ear disturbances are notoriously hard to manage, however, as the ear is a very intricate "piece of equipment" and lots of things can go wrong with it.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Gretchen P
Veteran Member


Date Joined Sep 2005
Total Posts : 1784
   Posted 8/6/2006 4:30 PM (GMT -6)   

Michael,

I do get pressure in my head. I have lyme. I think you should take shellypoo's advice and shop around on the forums. Keep your options open while you are undiagnosed and see what healingwell has to offer. I can also be emailed through my profile here. Good luck in finding out what is wrong with you, I hope you feel better soon. Peace!


I'm gonna get that Lyme!!!!!!!!!!!


deep3
Regular Member


Date Joined Jul 2006
Total Posts : 34
   Posted 10/15/2006 5:42 PM (GMT -6)   
eyes  It's been a while since I posted.
Heres whats going on now.
i ran out of antibiotics at the end of august.
My doctor would not give me any more because my tests for lyme came back neg.
I felt fine for the whole month of september.The best I've felt in 9 months.
Anyway the symtoms are slowly returning now.Everything( pain in back,neck,pressure in my head,rapid heartbeat at times,anxiety attacks,painful bumps under my skin on my head and neck but the dizzyness has gone for now.
My ears never stopped ringing but I still felt good.
How long would it take for lyme to build up again and attack my system after the 30 days of doxy?
My infectious disease doctor is now running a battery of tests to find out whats wrong.
Does anyone else get bumps under their skin that are painful when touched?

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 10/16/2006 3:53 AM (GMT -6)   
deep3 said...
eyes  It's been a while since I posted.
Heres whats going on now.
i ran out of antibiotics at the end of august.
My doctor would not give me any more because my tests for lyme came back neg.
I felt fine for the whole month of september.The best I've felt in 9 months.
Anyway the symtoms are slowly returning now.Everything( pain in back,neck,pressure in my head,rapid heartbeat at times,anxiety attacks,painful bumps under my skin on my head and neck but the dizzyness has gone for now.
My ears never stopped ringing but I still felt good.
How long would it take for lyme to build up again and attack my system after the 30 days of doxy?
My infectious disease doctor is now running a battery of tests to find out whats wrong.
Does anyone else get bumps under their skin that are painful when touched?
If in fact you think you have Lyme disease and not MS, you should be posting these questions on the Lyme forum.  Painful bumps under the skin are not a typical symptom of MS.

...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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