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dazed and cunfused
New Member


Date Joined Jul 2006
Total Posts : 3
   Posted 7/27/2006 7:31 AM (GMT -6)   
I started itchin in the palms of my hands in January. A month later, the vision in my right eye starts to go dark. I get an MRi thst day and am told to go to Freodert Medical College. Tlle the MRI films there, sit with the optical neurologist and find out it is optical neuritis, He decides it is Sarcoidosis that I have and schedules a LP, chest xray, and a gallium scan. gets the results and tells me the protien was hi in my spinal fluid. but the xray and gallium scan are both clear, Decided to biopsy my tear duct, it also came back negative fro sarcoidosis. I have palms that itch,from under the skin, feeling like pins, the arches of my feet do the same thing, my good eye now has flashes lights. I feel very tired all the time. My pinkiefinger on down to my wrist goes numb, next day the other hand does it. I have noticed my words do not come out at all like the way I am trying to say something. 
 
Could this be MS or should I buy the Sarcoidosis story

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/27/2006 7:58 AM (GMT -6)   
dazed and cunfused said...
I started itchin in the palms of my hands in January. A month later, the vision in my right eye starts to go dark. I get an MRi thst day and am told to go to Freodert Medical College. Tlle the MRI films there, sit with the optical neurologist and find out it is optical neuritis, He decides it is Sarcoidosis that I have and schedules a LP, chest xray, and a gallium scan. gets the results and tells me the protien was hi in my spinal fluid. but the xray and gallium scan are both clear, Decided to biopsy my tear duct, it also came back negative fro sarcoidosis. I have palms that itch,from under the skin, feeling like pins, the arches of my feet do the same thing, my good eye now has flashes lights. I feel very tired all the time. My pinkiefinger on down to my wrist goes numb, next day the other hand does it. I have noticed my words do not come out at all like the way I am trying to say something. 
 
Could this be MS or should I buy the Sarcoidosis story
I'm also confused -- you asked "should I buy the sarcoidosis story" -- when in fact your tests are coming back "negative" for sarcoidosis: "...the protein was high in my spinal fluid, but the xray and gallium scan are both clear, Decided to biopsy my tear duct, it also came back negative fro  sarcoidosis".
 
"Negative" test results suggest that you don't have scarcoidosis, but in fact something else.  If I were you, I'd be back to the neuro, reminding him of the optic neuritis (which sometimes can be a precursor to MS), remind him that tests for sarcoidosis are negative, and proceed from there.
 
"Could this be MS"?  Possibly.  But you won't know until the neuro sees the "negative for scarcoidosis" test results, looks again at the MRI, and decides whether to continue testing for other conditions, or tell you where next to proceed.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 7/28/2006 2:06 PM (GMT -6)   
Hi Dazed,

I imagine you are a bit confused with this appointment, I would be as well! Seems a bit odd that they would say you have sarcoidosis when the tests come back negative for it. Optic neuritis is most commonly associated with MS, but not always. With the other symptoms you mentioned, perhaps you could visit your regular doctor again and ask some questions, explaining what was found out at the Medical college and see if they want to proceed with further testing. If you can get a copy of your LP test results to take with you to the doctor, that might also be helpful since that test was abnormal. Best of luck and let us know what you find out.

Kimber
 
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dazed and cunfused
New Member


Date Joined Jul 2006
Total Posts : 3
   Posted 7/31/2006 7:30 AM (GMT -6)   
Kimbur,
 
I thank you for your reply. It has been very trying this past 8 months trying to figure out what is wrong with me. I had an MRI at the beginning of this whole ordeal, nothing showed up, THe LP had high levels of protien and even my Gp, was questioning the Sarcoidosis. All I know is for the past 8 months I have had burning itching sensations in the palms of my hands and the arches of my feet, it comes and goes and moves around, /i am having trouble getting my words out correctly to form a sentence that sounds half way intelligent. I told the neuro opthamologist this last week, he looked at my lp report and ordered another MRI for this week. In the meantime , the itching comes and goes along with the numbness I feel in my pinkie down the side of my hand, which switches from one hand to the next. I am very frustrated and very afraid, and tired of feeling so tired all of the time.
 
Rick
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