We are neighbors!! I live in Alabama, near Auburn, but UAB is in Birmingham. My daughter goes to college there.
Thank you for your thoughts and prayers. I hope they figure this out soon too. It's just annoying, when you know something is not right and not know what it is.
Take care and you are also in my thoughts and prayers.
Tks Rhonda, Uppity, Life and Kimber,
Rhonda, I hope things go well for you MIL and SIL at UAB and they have a safe trip. The idea of a digital recorder sounds good. Tks for your thoughts and prayers. Let me know how your in-laws do at UAB. Take care and God Bless You!!
Uppity, Tks for putting that link up. I guess I should have done that for everyone, but wasn't thinking at the time. My labs and other symptoms have already comfirmed the dx's of lupus, RA, Sjogren's, Fibro and Raynaud's. These recent symptoms and the ones I was having last year are the ones that are different. I just hope she knows what she is doing, because she has given me the meds that treat dysautonomia. I hope I get to see the neuro before I go to the clinic to get his prespective on this. Tks for your help. You are a very wise and helpful lady. Take care and God Bless You!!
Life, Thats interesting that you were dx'd with autonomic neuropathy before your dx of MS. Tks for letting me know. I will be hanging....I have for awhile...lol. Tks again and take care.
Kimber, Tks for your support. You are always so sweet and helpful. I'm going to start the new meds tomorrow, so I will see if they help soon and if so, that will be good. My sleeping pattern has been messed up lately and I have to take these meds at the same time each day, so I will have to make myself get up and take them in the mornings and the same time at night. I will let you know how the appts go. Tks again and God Bless You!!
You are all great and very supportive. I do appreciate each and everyone of you. Tks again and take care. Hope you all have some great days ahead!!
I'm not sure about the dysautonomia dx. I have been on the new meds since right after I last posted over a month ago and they are not helping at all. My symptoms are actually getting worse.
I have an appt on monday to get a VEP test done and I see the neuro on the 27th. I have called my rheumy about 3 times in the last month and I dont think she knows what to do to help. Thats why she scheduled the appt to see the neuro.
I have been having blurred vision, muscle weakness, my balance is worse, I have been falling, I get vibrations sensations in either one leg, one arm or my head.., my feet and legs burn at night when I lay down, I have been having urinary urgency, loosing bladder control or sometimes hesitate..., my bowel movements have changed, Swallowing problems the last few days, slow word recall, memory loss is worse and more forgetful, parts of my body get cold at times, I still have the tremors, but have just found out this morning that they stop when I lay down for some reason, more headaches, pain in the back of my neck and lower back.
I know that was alot, but I just wanted to let you all know what has been going on since I last posted. I hope to finally get some type of dx underway when I have the VEP and see the neuro. I will let you know what I find out.
Tks for all the help you have been giving me. You all are great and caring!! Take care and you are all in my thoughts and prayers.