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FamilyGuy
Forum Moderator


Date Joined Jan 2004
Total Posts : 3365
   Posted 8/8/2006 10:05 AM (GMT -6)   
I'm still in limbo-land, but wanted to ask your opinion on fatigue. 
 
What do you guys do to fight it?
 
I can sleep for 8 hours, go to work, fight to stay awake, get drowsy driving home, eat supper sleep for a couple of hours in the chair (sometimes all night), go to bed, then do it all over again.  It doesn't leave much time for family and I'm concerned.
 
PS: sorry I missed your chat about it yesterday...
 
Thanks,
Jon
 
"The man who insists upon seeing with perfect clearness before he decides, never decides. Accept life, and you must accept regret."
-- Henri-Frédéric Amiel (1821-81), Swiss philosopher, poet
 
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rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 8/8/2006 11:00 AM (GMT -6)   
Hey Jon

I don't have much prob with fatigue anymore, but for awhile it was horrible. I can tell u my turning point was when i starting using Cymbalta for it. Not only did it help my fatigue, but also other bothersome symptoms such as that ant biting feeling, crawling feeling of u'r skin, etc. Of course they still come back and i deal with them, but to a far lesser degree. Otherwise, knowing u'r limits and not pushing them. Now with the Cymbalta i can still become so tired and weak and have those really sleepy times, but it seems very much to revolve around how well i take care not to push things to the limit. Maybe u'r doc could prescribe something helpful and that with some careful planning of u'r time and it's uses, u'll be up and going well soon. One other thought...i did try Provigil for a few weeks and it helped for awhile, but then began to feel as if it wasn't. Some others here are using Provigil now tho with much success. Best wishes to u and i sure hope u get some relief on this soon.

rhonda

snowdog
Regular Member


Date Joined May 2006
Total Posts : 137
   Posted 8/8/2006 11:38 AM (GMT -6)   
Hey Jon,

I was just like you. Exhaustion was killing me. It was dangerous just driving home every night, much less if I tried to go anywhere or do anything after I got home. My career was crumbling before my eyes. I did ok and still do, in the mornings. But the afternoons were terrible. As my symptoms got worse, the exhaustion took me down. Depression set in and I ended up in place I never want to go again. I just could not fight it. However, my GP stepped in when he called me for an update to the MS investigation I was going through at the time, and knew something was wrong. He gave me a script of Provigil and 3-4 days later I was out of bed and dealing with symptoms and doctors again. That was when I too, was a limbolander. Now that I am Dx'd I still have my Provigil. I don't use it everyday any more. You adapt as time goes by. You change your habits, your work load, and other things to take advantage of the time you can function better. In my case, the mornings. As the afternoon comes on, I usually have enough energy stored to get by and get home. I still have a problem after about 8pm everyday. The days that catch up to me, I have my Provigil to lean on and it has always worked for me. They are always in my briefcase and my car.

Exhaustion is the number one MS problem that will take you down hard. It leaves you vulnerable to the symptoms and the depression of this crumby disease. Everyday that you deal with it, it will take you down more...until you just can't force yourself out of bed, out of the house or to do anything.

I was told when I was going through it, by the members of this forum and others, that you don't need a Neurologist to help you with exhaustion. I will give you the same advice. Do somthing about it now and you will miss some of the pitfalls I fell into. Tell a doctor that you are being investigated for MS and you are having such severe exhaustion, that you are scarred to drive home everynight, that you cannot function at work and may lose your job, and it is so bad that you may hurt yourself just going down stairs. Make them understand. Ask about Provigil or something similar.

Do this, and you will be better equipped to spend time with your family, get your work done, and finally...have the strength to deal with symptoms and other effects that you may face down the road.

I do still get exhausted and I am lucky enough to take a friday or monday off every few weeks to have a 3 day weekend to just kick back and rest. This time, we my family's blessing, is just my time to rest...because even with Med's like Provigil, the disease itself wears me down.

Take some steps now to get hold of your exhaustion, not only to spend time with your family.....but to save your life. Driving while exhausted is the number one cause of accidents, passing drug drivers, in this country. Your family won't spend time with you if you are dead.

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 8/8/2006 12:11 PM (GMT -6)   
Excellent advice, Dogday! Sounds like you're adapting pretty well to a bunch of unfortunate circumstances (having a chronic illness, trying to work and maintain a family life around it..)
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 8/8/2006 9:52 PM (GMT 0)   
Hi Jon,

Dogday gave some great advice! Even without a dx, if you impress on your doc how disabiling the fatigue is to you they should be willing to try something to help with that. My hubby currently takes Provigil which he finds to be very effective. He has also taken Ritalin, a cheaper alternative, which seems to work for him also.

The meds themselves might help a great deal for you, but you may also need to change your daily routine a bit too. Learn how to pace yourself, eventually you will know how much is too much. If possible do your more challenging work load earlier in the day when youre not as tired and see if you can take more breaks during the workday to give yourself time to rest.

I wish you luck, and hope you find something that helps. Please let us know!

Kimber
 
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FamilyGuy
Forum Moderator


Date Joined Jan 2004
Total Posts : 3365
   Posted 8/9/2006 7:19 AM (GMT -6)   
Thanks for the replies. I guess it is time to talk to my pcp about a plan of action.
Jon
 
"The man who insists upon seeing with perfect clearness before he decides, never decides. Accept life, and you must accept regret."
-- Henri-Frédéric Amiel (1821-81), Swiss philosopher, poet
 
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

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