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starrnr
Veteran Member


Date Joined Dec 2005
Total Posts : 1782
   Posted 8/11/2006 11:01 AM (GMT -6)   
Hi all. I normally post on the Crohn's board, but have a need to be here today. My dearest friends' 23 y/o daughter has been tentatively diagnosed with MS. She complained about losing her vision a few days ago and it's been a roller-coaster ride since. She's in the hospital now undergoing more tests. So far, she's had 2 MRI's which found lesions by her optic nerve and a couple of other places in her brain and a gazillion blood tests which really doesn't mean much when you're "searching" for something. She's having another MRI today and a spinal tap (looking for bacteria?). Based on what they have found to date, they've said MS. They've ruled out an aneurysm, Alzheimer's and a couple of other things.

I've been on the Internet a lot this morning - holy cow, there is a lot of info on MS, but really nothing that can help find a doctor. May I presume that a neurologist is the doctor of choice? (I'm presuming). I want to be able to get information on a good doctor in her area. Where can I pursue that? The National MS website doesn't seem to have a "find a doctor" section. Also, is there one test for MS or is it really a rule out everything possible and settle on this? This is what the doctor's at the hospital said.

Any information you can pass on to me so I can pass to her would be greatly appreciated. They are freaking out at the moment (understandably) and I'm the conduit of information for them right now.

Feel free to email me - click the envelope.

Thanks so much for any help you can provide.
"My "Trifecta" - CD, AS & RA...

Co-Moderator Crohn's Forum


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 8/11/2006 1:37 PM (GMT -6)   
Hi starr,

I'm sorry for your friend's daughter. That's such a young age to be having issues like what's she's experiencing. Yes a neurologist is the doctor you are wanting, perhaps the hospital could give a recommendation or you could contact your local MS society chapter for a list of neurologists in your area. On the website there is a section for finding your local chapter and you can find a phone number there.

Unfortunately there isn't one test for MS. The doctors have to rely on multiple tests which include MRI's of the brain and possibly the spine, evoked potentials tests, and spinal tap. And, like the doctors at the hospital said MS is an exclusion based illness meaning that there are many other things that can look like MS and need to be ruled out. Things like Lymes disease, thyroid problems, b-12 deficiency, Lupus, fibromylagia and a bunch of others have similar symptoms.

The spinal tap can be used to check the spinal fluid for things like bacteria, glucose levels, or infection. If antibodies and oligoclonal bands show up in the spinal fluid that might suggest MS.

Please feel free to ask any questions you may have, we'll do our best to help. Tell your friends to hang in there and they are more than welcome to post as well. Please let us know how the young lady is doing.

Kimber
 
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shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 8/11/2006 1:40 PM (GMT -6)   
Hi!
You are correct, she needs a neurologist, preferebly one who specializes in MS. The hospital should point her in the right direction. It sounds like they are doing everything right test wise. They were corrct in telling you that it's usually tests to rule out other causes but also if you have a postive mri and spinal tap as well as other tests it can give them more of a positive diagnosis of MS.

I hope all goes well for her, you're a good friend to check into things! Let us know and I hope she visits Healing Well!
Michelle ><>
 
"Life shouldn't be a journey to the grave with the intention of arriving
safely in a pretty and well preserved body, but rather, to skid in
broadside, thoroughly used up, totally worn out, and loudly
shouting...."Wow! What a ride! Thank You Lord!!!"
 
 
 
 


starrnr
Veteran Member


Date Joined Dec 2005
Total Posts : 1782
   Posted 8/11/2006 2:02 PM (GMT -6)   
Thank you both. This has been one crazy day! I haven't heard how the spinal tap & latest MRI has gone. I found a local chapter of the MS Society for her and will be getting more local information from them.

I appreciate your help and will let you know how things progress. Are there any 20 somethings that post here? I'm definitely suggesting HW as a resource for all of them in any case.

Thanks again, Sherree
"My "Trifecta" - CD, AS & RA...

Co-Moderator Crohn's Forum


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 8/11/2006 2:13 PM (GMT -6)   
I'm sorry about your friend's daughter. Like the others said, it sounds like she's getting good solid medical care: things that could cause her symptoms other than MS are being ruled out, and the focus is narrowing in MS as a diagnosis. The local chapter of the National MS society is a good place to start, but presumably she's being treated by a neurologist in the hospital, and it may be that she'll be released to his care. Do tell her about this board, where she'll get support and hopefully some solid advice, if she does indeed have MS.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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