Post Edited (froggygirl23) : 8/16/2006 9:22:35 PM (GMT-6)
It sounds like you are talking about your husband, or partner? He's a long way from diagnosis, whether indeed it is MS, Lyme, or a whole host of other diseases. He needs to get follow up MRI's, blood tests, maybe a spinal tap.
Without knowing what kinds of testing he's already been through -0- you mention only the MRI -- it would not be possible for us to even begin to help think about next steps. Many diseases look like MS from the outside, and share symptoms such as you describe. All of them have to be ruled out before a doctor will determine it's MS, unless clear signs show up on an MRI (and so far that hasn't happened) or in the spinal fluid.
Presumably he's returned to the doctor to continue to tell him about new or increased symptoms? Was it a neuro that ordered the MRI? Sometimes starting with a good family doctor who can help sort through the symptoms is a good place to begin, and let the doctor decide where next to pursue treatment -- an infectious disease specialist who might recognize Lyme (although, despite Violet's protestations otherwise, many family physicians are aware of that disease), a rheumatologist; or tests to determine whether he has a problem with his thyroid, or has diabetes -- all of these things, and others, share symptoms.
Tell us more about what he's doing to pursue a diagnosis, and we'll try to help you find a good path. Be aware that these things can take a LONG time to diagnose, sometimes. 2 months seems like an eternity when you're the one sick, or worrying about someone who is sick, but some folks go for many months, even years, waiting for something specific enough to be diagnosed.
Come back and tell us more, and we'll try to offer some more ideas.
He has not had a spinal tap yet. The neuro didn't want to to it until the internal medicine doctor looked him over good, in case it wouldn't be necessary. The MRI was of the brain only. His history before he got sick was working at night, sleepin about 3 or 4 hours a day on average, eating once maybe twice a day. He would drink one or two beers a day. He when first started getting sick he had blood work done, which showed an overall low wbc(3.9) normal is 4.2-10.8, but the monocytes were 17.5 H (normal range is between 2 and 10) As far as the protein goes, it just says "total protein" 8.6 H (the range is between 6 and 8.3) Also Glucose was 115 H (normal between 75-100) He stopped drinking any alcohol after the first blood test. The second blood testHis doctor put him on Remeron for depression which he took for 2 weeks but had to stop. (He was having an adverse side effect with his mood) I have read that remeron can make liver trouble. The test that showed alt 74 H was a month after the first blood test and while he was on the medicine. I'm not sure if he would have been on it long enough for it to effect him that way. Glucose 107 H (normal between 75-100) TSH 0.59 was in the normal zone (0.47-4.
I finally talked to both doctors. Both of them didn't want to write him off for more time, they both wanted the other one to do it. That caused a big mess because they also wouldn't write a release for him to go back to work. They said they couldn't. Well, that made me mad because we were getting the run around very bad. I had to make 2 trips to the doctors and several phone calls to get it sorted out. Finally the internal medicine doctor wrote him a release to go back to work. So now at least he won't lose his job (his employers insist on medical release). 2 more big problems... 1.) he's still not any better. (stumbling, real bad weakness in his hands (they have ruled out carpal tunnel) constant dizziness, weakness all over, and numbness in his face/head) So he's going to have to try to work like that and his job is a physical labor job that is timed. 2.) The internal medicine doctor has told me that she has no idea what could be wrong with him. She has only seen him once, and only gave him another blood test that also tested for hepatitis which was negative. No other testing preformed by her! The neuro orginally told us she thought maybe he had a metabolic problem, that he needed to see an internal medicine doctor to go over him, not the family doctor he had seen to get a referral to her. She said that if that doctor didn't come up with anything that she would do a spinal tap then. But that she didn't want to do that until she was sure it wasn't something simpler. Ok, so the internal medicine doctor and the neuro call each other and talk... and this is what I understand to be true. The neuro wanted him to be referred to a big city clinic (won't list name) that has better tests and so forth. Well, after calling and visiting the office twice the internal medicine doctor did not say anything about that at all. I found out later by neuro's office. (I'll just say IMD short for internal medicine doctor, although it's probably not the right abbreviation) Meanwhile the IMD office is telling me that he's suppose to see neuro and figure out what to do from there. So I go back to IMD and say "look, neuro told me u was suppose to refer to "insert big clinic" and you haven't said anything about it to us. They told us that it was because the neuro said she was going to refer us (which I don't believe) so I call neuro again and she says no imd will refer. So I say again firmly, the neuro isn't going to refer us. Can imd doctor call neuro and get this straightened out please? so now I'm waiting on phone call from nurse that will probably not happen. I am so frustrated. Why didn't the imd doctor do more tests on him besides blood work? Why are we getting the run around? Now he's going back to work, which is good for money and insurance reasons, but he's very sick, I'm afraid he will get worse working, especially since we don't know what wrong with him. We still know nothing and the imd doctor was a huge dissapointment because she basically didn't do anything to him, and didn't offer any suggestions. AND she didn't say "maybe it's due to stress or some kind of mental issue" she didn't say anything this time. The only thing she told us at first was that it sounded like he got a "virus" and he would get better any day all on his own. (within the next two weeks) which he didn't. She said she would refer to infectious disease if he didn't get better by that time. NOt only did she not refer to infectious disease but she also didn't say she wanted to see him back at any time. Why?
Thank you for your time reading this, any posts appreaciated.thanks again for your time.
The IMD is falling down on the job. She did do the blood work -- which, along with testing for clinical signs, and a spinal tap, are really all that CAN be done at this point...but doesn't seem to be willing or able to follow up. I'd be on the phone to both the IMD and the neuro, and press them to get him referred to the "big city clinic" -- which, given the length of time this is going on, and the bouncing around you're getting, would be a GOOD thing.
Or I see you do have a family doctor -- another plan is to get back to the family doctor, tell him/her about the run-around you've experienced, and ask him to serve as "gate-keeper" -- he can get on the phone, sort this out, make referrals to the "big city clinic" and get that on track.
Usually what happens there is - - because they have a variety of specialists there and "on call" -- referrals among them are quicker and more direct. Maybe they'll be able to sort out exactly what's going on. I don't know enough about the test results you offered to begin to give you any advice except that -- if they are abnormal -- that would not be typical for MS, but indeed typical of some metabolic or infectious disease going on somewhere, so the comments the one doctor made about a "virus" may not be far off the track.
Violet drops in on posts all the time to suggest that people with MS-like symptoms might have Lyme disease. That might actually be a good thing to follow up on, with your (husband? boyfriend?). There is a "first response" test that isn't always accurate -- but if it IS Lyme, may well indicate that. If not, you'd need to pursue a different, more definitive test. Has he been in/near woods at any time prior to these symptoms occurring? In the grass, at a park, anything where he might have come into contact with ticks?
At any rate, do keep on being persistent...but again, you might get back to your family doctor, tell him what's happening, and see if he's willing to go to bat for you. Good luck!
tsh checks thyroid levels, I am told free t3 and free t4 as well as t3 and t4 are more specific tsh levels. Yes he has symptoms that could be attributed to his thyroid. His tsh was the only thing checked so far and while not technically Low, was right on the end of the normal range. Normal range is .47 to 4.68 His result was .59
My uneducated opinion is that since he has symptoms that could be thyroid related and his tsh was on the low side, more testing into it wouldn't hurt.
Also I have been over & over his blood tests results and see haven't come across anyting that has to do with nutrition or viatmins. The only thing I have found is calcium, potassium, sodium, but aren't those all electrolites? There is nothing in there about vitamin levels like b-12 or D or any of those. I know they can check for these things because they have done so on my daughter a long time ago.
And I feel they should because he has always eaten poorly (as in not eating much of anything) and these past few days he has gotten worse!! He has had this for 2 1/2 months. He is sick to his stomach all the time, won't eat anything. Sleeping more, and isn't doing the thing he enjoys most (his computer game) because his hands won't let him (they are too weak too type) and even when he gets up he doesn't stay up for long before he lays back down again. How long do you wait before you take someone like that to the hospital. How bad does it have to get?
Post Edited (froggygirl23) : 8/16/2006 9:21:10 PM (GMT-6)
Post Edited (froggygirl23) : 8/17/2006 9:40:46 AM (GMT-6)
Requip can indeed cause at least some of the symptoms he's experiencing. Here is a website that talks about it, and side effects: http://www.requip.com/requip_just_started.html
Given all the problems he's having, I'd be talking to the doctor about stopping that (only do it under a doctor's supervision, though), and see if that doesn't help. Looks like it can affect the appetite, too; you said he wasn't eating, feeling nauseous...