A few quick questions...

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got better things to do
Regular Member


Date Joined Jan 2006
Total Posts : 176
   Posted 8/18/2006 7:44 AM (GMT -6)   
 I have a neurogentic bladder and have to cath due to  retention.Here are a few of my quick questions hope you all do not mind,and thanks for taking the time to respond.
 
-Do any of you have bladder retention and have to catharize yourself ?
 
-If you take medications for bladder retention,what are you on and does it help ?
 
I am battling this myself and hope to get some info from folks who suffer from bladder retention. :-)


Just when I was getting used to yesterday......Along came today.
 
             
~~LIFE~~


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 8/18/2006 9:39 AM (GMT -6)   
I don't self-catheterize. You say you're "battling this myself" -- I hope you have had lessons on how to self-catheterize? There are lots of opportunities for infection with that!

I do have a neurogenic bladder. I've used oxybutanin for years. The brand name is Ditropan. The version that is "once a day" doesn't work well for me. I take one pill in the morning, one before going to bed, each 5mm, and it seems to keep the bladder under control, most of the time.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


DBG
Regular Member


Date Joined Sep 2004
Total Posts : 235
   Posted 8/18/2006 10:40 AM (GMT -6)   

Uppity, what are the side effects of this med?  I have bladder problems but I feel like I take so many meds between the Epilepsy and MS I don't want to add more med side effects.  Going to the bathroom 20 times a day isn't much fun though either. 

Christine


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 8/18/2006 10:54 AM (GMT -6)   
I have the gotta-go problem.....I do retain some urine though.  I was put on Enablex after having all those lovely bladder tests and the Enablex made my stomach hurt terribly and caused nausea and constipation(which I don't need!) 
 
 I am going back this next Tues. to uro for another cystoscopy and will ask what else to go on.  I would like to have one that came in generic and that didn't have side effects, is that possible?  Also, I am having bladder pain everyday.
Michelle ><>
 
"Life shouldn't be a journey to the grave with the intention of arriving
safely in a pretty and well preserved body, but rather, to skid in
broadside, thoroughly used up, totally worn out, and loudly
shouting...."Wow! What a ride! Thank You Lord!!!"
 
 
 
 


got better things to do
Regular Member


Date Joined Jan 2006
Total Posts : 176
   Posted 8/18/2006 11:07 AM (GMT -6)   
Uppity,
Yes I was taught by the urologist how to self cath and might I add, it was a terrible experience.......NEVER AGAIN!!!! I currently take urocholine for this problem but do not seem to be having any luck with it.
Just when I was getting used to yesterday......Along came today.
 
             
~~LIFE~~


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 8/18/2006 12:02 PM (GMT -6)   

Oxybutanin is the generic form of Ditropan.  Ditropan now comes in a version that is a "once-a-day" -- I think it's called "Ditropan XL".  Detrol is another brand of medicine for this problem.

As I mentioned, I've taken oxybutanin for years.  The main side effect is -- particularly when you first start -- a VERY dry mouth, and any other oral cavities you have (like, the vagina, if you're a woman).  It can also cause constipation.  For the first few weeks, I sucked on (sugar-free) candy or chewed gum, until I adjusted.  Now I experience the dry mouth for the first hour or so, and it goes away.

Like any of these meds, some trial-and-error is necessary.  I was first prescribed it 3 times a day -- and that was way too much; I wasn't urinating at all.  Dropping back to two times a day -- when I first wake up, and right before bedtime, seems to work well.

I have been advised by my dentist to practice careful oral hygiene while on it (since it does dry the mouth and gums, and the dryness can cause all sorts of dental problems.)  I brush thoroughly and well, at least twice a day, and use an *alcohol free* mouthwash (like ACT; there are generic forms of it, too.) So far (I've been on oxybutanin for probably nearly 20 years, now) I've not had any increase in dental problems while on it.  Most of my dental problems now relate to age -- old fillings cracking, teeth cracking due to age, that sort of thing.

Don't be afraid to talk through this with your doctor.  There are several meds for bladder control. Not all of them work well for everyone.  Like, when Detrol came out, my doctor wanted me to try it...I had multiple bladder accidents.  Then she wanted me to try the DitropanXL -- once a day.  Again, problems.  So I went back to the generic oxybutanin, and seem to be able to keep the bladder under control.  So if one med isn't working well for you, ask about others, and keep working with them -- and with dosages -- until you find something that works for you. There's no guarantee that you'll remain completely dry "forever", but surely you can avoid bathroom runs 20 times a day.

I generally try to urinate once every 3 hours or so. I usually wake just once during the night for a bathroom run, but not always.  When I'm out in public..and don't know for certain when/where the next bathroom is!..I'll make use of the bathroom if one is available, but I rarely have the urge that I've "gotta go, RIGHT NOW!!", or worse yet, not being able to control it at all.

 

 

 

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


got better things to do
Regular Member


Date Joined Jan 2006
Total Posts : 176
   Posted 8/18/2006 1:10 PM (GMT -6)   
Uppity,
You may have misunderstood me,I have no urge to go nor can I void on my own.This is why I have to cath on a daily basis. Maybe I did not make it clear in my original post but that is what I am dealing with, and wondered if anyone else may be experiencing the same as I. If so, what types of medications does anyone experiencing bladder retention take.Sorry if I confused you, I seem to have a way with that.


Just when I was getting used to yesterday......Along came today.
 
             
~~LIFE~~

Post Edited (lifewithms) : 8/18/2006 5:33:34 PM (GMT-6)


lmb
Regular Member


Date Joined Aug 2006
Total Posts : 48
   Posted 8/22/2006 8:20 AM (GMT -6)   
yes i have trouble with that but not as bad as having to be catherdized but my bladder is easily irritated and i have to go alot and still dont alwasy get it all out..i had a buch of tests and they said it was fine for now and just gave me detrol but the kidney dr i saw said that it was normal for ms even though he knows that they arent sure thats what is wrong with me he said what ur going through is normal and the mild case i have is also normal so hope that helps and makes u feel better....also do u guys have pain in the smooth muscles around ur kindeys and very senstive bladder?
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