New to forum. MS symptoms?

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petunia
Regular Member


Date Joined Aug 2006
Total Posts : 61
   Posted 8/18/2006 7:04 PM (GMT -6)   

Hi everyone.

 

I have been posting on the Lyme forum because I feel that i may have Lyme disease, but seeing as my symptoms are also very similar to MS i thought i would post here and ask a few questions.

 

In the past 2 months I have had the onset of several symptoms (some have come and gone, but most are persistent):

 

-Daily persistent headache (sometimes one sided, sometimes dispersed…usually a dull pressure)

-eye pain and sensitivity to light (but 20/20 vision)

-red eyes

-numbness starting on whole left side of the body, but also moves to the right sometimes. This numbness is usually constant for days or weeks, with fluctuations in severity. Usually worsens while lying in bed.

-Joint pain and stiffness in my knees, shoulders, wrists, fingers, toes, rib cage, neck, back.

-stiff neck

-abdominal and chest pain

-shortness of breath

-ear clog

-"brain fog” every day

-minor short term memory problems

-anxiety, mood swings

-missed menstrual cycles

-itchy skin

-facial flushing

-swollen glands, minor sore throat and cough

-general feeling of achy-ness throughout body

-fatigue

-heavy feeling in limbs and chest

 

 

The onset of symptoms were flu-like…started with daily headaches and following fatigue, achy-ness, and sore throat. Neurological symptoms came on later, followed by joint pain even later.

 

Does this sound MS-like?  Many of my symptoms are concurrent with MS, but to my knowledge the flu-like symptoms and joint pain are not. Am I right?

 

Would appreciate your opinion on this!!

 

Oh, and I got an MRI of the brain and cervical spine which were normal. Going for EEG and transcranial dopplar at the end of the month.

 

Thanks!!

 

 

 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 8/18/2006 8:13 PM (GMT -6)   
Hey Petunia

I know i can't be much help to u, but i can tell u that the flu-like symptoms aren't the MS symptoms i'm familiar with. It really sounds much like an infection or other similar issue. Joint pain, as i understand, can be a symptom of Lupus. We have a member here with both Lupus and MS and maybe she'll be posting soon to advise further on this. I suspect u'r on the right track with the Lyme testing. I'm sure u'r aware of this, but Lyme dx can be difficult as well. There're very few labs with good track records for correct results, but that is an ever improving field.

Best wishes to u in u'r search. I sincerely hope u'r not in limbo with this too long.

rhonda

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 8/18/2006 9:10 PM (GMT -6)   
Hi Petunia,

Some of the symptoms you are describing are present in MS, but the flu like symptoms and joint pain are not usually seen. I think you are doing a good thing by testing for Lyme as more of your symptoms seem to point that way. I hope you get a quick answer and if you have anymore questions don't hesitate to ask, we'll do what we can to help.

Kimber
 
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petunia
Regular Member


Date Joined Aug 2006
Total Posts : 61
   Posted 8/19/2006 7:03 PM (GMT -6)   
Thanks all. Glad to hear i'm on the right track (hopefully!). Good luck to you.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 8/19/2006 10:11 PM (GMT -6)   
Hey Petunia

I hope u'll let us know how u'r doing and what u find out. Feel free to come ask questions or just post about u'r experiences as u'd like. Best wishes to u in u'r search for a dx!

rhonda

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 8/19/2006 11:43 PM (GMT -6)   
Hi,
  I saw this post and looked at your symptoms. I'm from the lupus forum and see that you do have alot of the symptoms of lupus. Also, lupus can mimic other diseases as well, like lymes. I'm glad you are getting tested for that, but if the results come back negative, I hope you will get some testing done for lupus.
  Here are some of the labs that should be done to check for lupus: ANA, Anti-Dna, Anti-Ro., Anti-sm, Lupus coagulant, Cbc, Cmp, Crp, and Sedrate.
  I hope this helps. I do hope you get some answers soon. Take care and good luck with your dx.
                                                Babs
Diagnosis: Lupus and Restless leg syndrome 1990, RA, Asthma and  Fibro 1994, Sjogren's and Raynaud's 1995, Diverticulitis 1998, Minor stroke 2004, Atherosclerosis 2004, Seizures march 2005
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.
 
Please help Healingwell succeed in helping others. Any donations will be greatly appreciated.
 


petunia
Regular Member


Date Joined Aug 2006
Total Posts : 61
   Posted 8/20/2006 12:54 PM (GMT -6)   

Mom46,

I did get tested for Lupus while I was in the hospital and it came back negative. Do you think I should pursue this further anyway? Is the laboratory testing for Lupus reliable or is it like Lyme where you could easily get false negatives?

Thanks.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 8/20/2006 6:55 PM (GMT -6)   
Hi Petunia,
   We have alot of members in the lupus forum that have gotten false negative tests results. It is fairly common in lupus for the tests to be neg then pos and back and forth.
   Feel free to post in the lupus forum anytime. I know you will get alot of replies to your post on the tests results with the symptoms you have.
  I would pursue all angles until you get a dx of some kind. You definately have something going on with all those symptoms. Hang in there and keep fighting for answers.
  Take care and I wish you luck with your dx. You will be in my thoughts and prayers.
                                                     Babs
Diagnosis: Lupus and Restless leg syndrome 1990, RA, Asthma and  Fibro 1994, Sjogren's and Raynaud's 1995, Diverticulitis 1998, Minor stroke 2004, Atherosclerosis 2004, Seizures march 2005
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.
 
Please help Healingwell succeed in helping others. Any donations will be greatly appreciated.
 

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