Shelley, -- and all you Lyme Advocates out there -- this is MY experience and my husband's experience only. Our experience might not mirror yours.
No. My husband's experience was NOTHING like what I experience with MS. If I had to compare what he experienced, I would say it was more like someone with a really awful case of flu -- body aches, pains, swollen joints, major fatigue, fever, night sweats. He never got the typical bullseye rash they talk about, although he did experience a rash on the leg that got bit...just not near where the bit was, so it may or may not have been related. This occurred maybe a week or so AFTER he got bit (or at least, a week or so after he was camping, where it was most likely that he got bit). He felt awful, then OK, then awful again..went on for about 4 weeks before I finally got him to go to a doctor. After she examined him, discovered the swollen joints, took his "history" (his complaints about the body aches, pains, swollen joints, the re-curring symptoms, etc.), she was convinced that it was Lymes and started the course of antibiotics before ever sending off the blood sample to be tested.
It came back about a week later, as "positive". He was on the antibiotics for a month, then re-tested. She extended the antibiotics for another month, as the test still came back positive. After the second course, the test came back negative, but she had him come in for the next 2 years on an every-four-month basis to be tested, just to be sure.
He was still suffering from the fatigue and some body aches and joint pain, but it dissipated over time. This was 3 years ago. I'm guessing here, but it seems like it was about 18 months or a bit longer before he felt good again.
I know that this site (and a host of others) talk about long-term neurological deficits. As best as I can determine, while there may well be neurological problems with late-stage Lyme disease, they are different from what folks with MS experience, and different from what follks with long-term MS experience.
I also know that all the Lyme advocates will be here bashing me as quickly as they can, doing their best to prove me wrong. I'm sorry you have to bear the brunt of this.
It's got me thinking too.. but I think in my case it's wishful thinking. I have a family history of MS and Lyme is rare in BC, Canada.
-can Lyme cause spinal lesions, severe constipation, or bladder problems?
I don't have any joint pain at all.
Yes, Lyme can cause lesions, constipation and bladder problems. But of course so can many other things! I didn't have much joint pain. The confusing thing about Lyme and MS, lupus, ALS, CFS (and the list goes on) is that everyone is affected differently. I feel like I'm in an episode of the Twilight Zone sometimes. Anyone else think that too?!
Shar...I agree with Denise. My brother-in-law from Vancouver had a severe case of lymes and was very sick with it. Also, debate can be a good thing if one is not doing it to be a star just because they feel they are right. Eveyone one has to be their own advocate but if we can give each other food for thought then we can go forward and hopefully find our own truth about what is right or wrong for each of us but hopefully with the support of all!!! Dale
I think that we have hit on a very interesting point and that is we are not doctors and that we must be supportive as only those who deal with chronic illnesses know what they are going through on a daily basis. I watched a documentary a while back on the author Carol Shields and she very correctly pointed out that even though the future is an uncertainity for all of us, it is human nature to overlook this. However as she quite correctly pointed out when you are chronically ill you realize that this uncertainity is a very real thing and we have to live with it up close and friendly irregard of what people see on the surface. She has since passed away.Yes there is the physical deficits but it is the cognitive ones that no one sees that concern me the most. Michelle don't be afraid to explore your options but also believe in your medical caregiver and only question what does not fit. Medicine is not an exacting science and it is doing the best it can. This is especially true when it comes to MS and other diseases that are so variable and at times are difficult to diagnose. Just don't jump on a bandwagon. Like you said life is a journey and we will not come out of it unscathed (nor should we)! Questioning even though it will sometmes confuse us will not otherwise hurt us. You have a strong faith so follow that and believe in that. It will work out as it should, but in the meantime you will have explored all options. Know this is a rant but have only the best intentions, Dale