Therapy options

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colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 9/1/2006 3:03 PM (GMT -6)   
I saw my Nuero on Tuesday..WOW! He gave me a HUGE bag full of all the videos/DVD's and tons of info about thearpy options. He told me it was my choice and to call when I have decided(although I have an appt in October). So,I havent watched all or read all yet. But I am strongly leaning toward Copaxone. Anyone here have any input..good or bad..they can share with me from personal experinces with Copaxone? Thanks...of course,I know everyone is different...just wanting a "general" opinion.
 
~Nichole~
 
 
 


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 9/1/2006 4:32 PM (GMT -6)   
Hi Nicole,

I remember well the big bag of videos :-) Mike's neuro told us the same thing, it was our choice to pick one. After watching all the vidoes and reading all the literature we decided on Copaxone mainly because of the side effects associated with the interferons. To him that was the biggest issue on the decision because he didn't want to deal with anything else. He's been on it for six years now and his neuro is very happy at how well it is working. It doesn't completely stop progression, he is still progessing slightly (not very noticable though), but he has no new lesions since starting it. Side effect wise, he doesn't really have anything major. There is a burning sensation upon injection that lasts about 15 minutes and there has been a few occassions over the past six years where he has had chest pain and shortness of breath, lasting about 15 minutes as well. The biggest downside to it is it's an everyday shot, but that makes it easy to remember as we just inject right before he goes to bed. If you do choose to go with Copaxone, I would highly recommend getting the autoinjector as it makes things much easier in the beginning.

Good luck with your decision, and if you have questions on any of the other choices I'm sure our other members would be happy to help :-)
 
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jojoblu
New Member


Date Joined Sep 2006
Total Posts : 1
   Posted 9/1/2006 5:06 PM (GMT -6)   
Hi Nichole,

My name is Jo and we were newly diagnosed at the end of February when I spent a week in the hospital although I have had intermittent symptoms for the past 18 years.

The end result of all our research is that we chose the Betaseron, the main reason being that you have a more constant level of medication in the body with the every-other-day shots than you do with a weekly or three times a week shot. We have been very happy with the medication so far (my husband does many of my injections), and the only side effects I have had since May have been a few bruises.

Good luck to you!

photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 9/2/2006 2:30 AM (GMT -6)   
Hi Nichole,
 
I'm in Canada and started on treatment this May.  The MS clinic also told me to choose.  I finally decided on Betaseron as it's been around a long time and the nurse said if it was up to her, she would choose Betaseron or Rebif.  At diagnosis I had a lot of symptoms and wanted the highest dose one available to give this disease a good "kick in the butt" early on.  I've been tolerating it very well..
 
I've heard that all of the drugs work well so you really can't go wrong.  Whatever you choose, I wish you the best of luck :-)
 
Shar
 
 
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