Provigil update

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photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 9/5/2006 4:46 AM (GMT -6)   
Hi everyone,
 
Maybe I haven't been taking it long enough (a week) but it doesn't seem to be helping me much with my fatigue.  I am taking two a day.  I took one yesterday and an hour later went to sleep for 3 hours.  The MS clinic had said don't take any after 11am or you won't sleep at night!  eyes
 
I'm trying to work my way back up to 8 hour shifts at work.. but after 3 hours and 2 Provigils the other day I was mentally pooped and barely made it through the last hour.  I hope this gets easier with time. 
 
I sure miss my old brain. sad
 
 
Shar
 
If it's meant to be, it will happen


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/5/2006 9:22 AM (GMT -6)   
Hey Shar

Wow, i'm sorry. I'd prob give it more time, but be in touch with u'r doc's office and let them know of u'r progress...or lack of it! I tried Provigil and found it helpful at first, but then began to notice it didn't seem to be helping anymore. I now use cymbalta and it's helped a lot. I'll keep u in my prayers and thoughts and hope u'll be doing much better very soon.

rhonda

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 9/5/2006 1:11 PM (GMT -6)   
Hi Shar,

Goodness I'm sorry you are having such dreadful fatigue. Provigil is a very good med but it doesn't work for everyone. You may want to give it some more time, but still I would contact the doctor and explain you haven't noticed much improvement with it, see if more time is needed or possibly switch to something else. Hope you get some relief soon!

Kimber
 
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Sandy C.
Regular Member


Date Joined Feb 2006
Total Posts : 129
   Posted 9/6/2006 3:38 PM (GMT -6)   
I have been takign provigil for almsot two years now and I UNDERSTAND!!! when I first started taking it the same would happen to me, I would sleep for 4 hours or more an hour or two after taking it! CRAZY! Well now, I have learned to take it when I am NOT fatigued, most likely when I first wake up. If I forget and two hours later I feel the overwhelming exhaustion setting in, I know that provigil cannot help me at that point. So I don't take it.

I take 200mg when I want to start my day and 2-4 hours later I take a 200mg. I have also noticed it takes about 2 hours for the provigil to work and 8 hours after I take it the effect is gone. Please note: taking 400mg at one time does not increase the effect! (says that right in the drug info sheet and in a drug book I have)

I also know that I can take provigil any time and sleep any time as if I were a "normal" person with a "normal" fatigue lvl. Provigil helps me to function at a fatigue lvl that seems to be JUST BELOW what I see others without MS functioning at. If that makes sense. When I see my PCP and he sees the amount I take he stated "MY GOD SANDY, DO YOU SLEEP?!!!" Of course I do.

With provigil I DON'T sleep 15-20 hours a day! I can clean my house, go to work and go to school. I cannot do heavy lifting, drive for long periods of time or clean for extended periods of time. OK the provigil I took about 2 hours ago is starting to kick in. lol. I do get chatty....

Hope this helps. It was so fustrationg for me taking provigil and going through what u are going through. Just take it when u have the most energy u know u are going to have that day, and the seccond one two to four hours later.
Sandy C.
Diagnosed with Multiple Sclerosis September 2003 currently taking Copaxone SQ QD, Aricept 10 mg PO QD, Welbutrin XL 300mg PO QD, and Provigil 200mg PO BID.


Sandy C.
Regular Member


Date Joined Feb 2006
Total Posts : 129
   Posted 9/6/2006 3:48 PM (GMT -6)   
oh yeah, and are u taking any interferon-based disease modifying med (betaseron, rebif, avonex) because these have a "sleepiness" (SEDATION) side effect. I was taking Betaseron and switched to Copaxone because of the severe fatigue. I didnt' tell my family taht I stopped the betaseron for Copaxone, but within a week they noticed the "light" come back in my eyes. I was on disability almost the whole time Iwas on betaseron because of the fatigue, sinceI started copaxone about a year ago,I have not gone on disability once!
Sandy C.
Diagnosed with Multiple Sclerosis September 2003 currently taking Copaxone SQ QD, Aricept 10 mg PO QD, Welbutrin XL 300mg PO QD, and Provigil 200mg PO BID.


photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 9/6/2006 7:31 PM (GMT -6)   

Hi.. thanks for your replies.

I called the MS clinic today and let them know, and they said to give it another week and only take 200mg a day total.

Sandy I am on Betaseron, started 4 months ago.  But I was quite fatigued before that and I am tolerating it so well I can't see changing it for now.  I'm glad to hear you are doing so well on Copaxone :-)

I think I do need to take the Provigil earlier, so that maybe it's working by the time I get to work instead of taking it when get I there.  I had another 6 hour shift at work the other day, 2 Provigils plus coffee and diet pop seemed to keep my heart racing a bit which kept me pretty alert for my shift at least.  Not sure I could do that on a full time basis though.   tongue   

I will keep trying.. thanks again everyone!

Shar 


If it's meant to be, it will happen


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 9/7/2006 4:29 AM (GMT -6)   
Hi Shar,

I hope the time change helps it kick in when you need it. Sandy brought up some excellent points that seem to be true for Mike as well. He takes first pill at 6am goes back to sleep and by 8 hes wide awake. He doesn't really have flares but according to his neuro it doesn't seem to be as effective during those times or on days when extreme fatigue sets in. It does however on most days provide much relief and allow him to continue to function without sleeping all day. Best of luck and I hope with the changes it works! Take care.

Kimber
 
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