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TiaJoy
Regular Member


Date Joined Sep 2006
Total Posts : 59
   Posted 9/22/2006 11:40 AM (GMT -6)   
Hi
I am scheduled for a LP on the 29th. I was trying to do research on what exactly they are looking for. For some reason I can't concentrate on what I am reading. I think its to clinical and its going right over my head. I know its a tool to help diagnosis ms. But I dont know what o bands are or what they are looking for. I apoligize if this was already addressed in another thread. But if someone could shed some light on this I would appreciate it.

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 9/22/2006 12:27 PM (GMT -6)   
TiaJoy said...
Hi
I am scheduled for a LP on the 29th. I was trying to do research on what exactly they are looking for. For some reason I can't concentrate on what I am reading. I think its to clinical and its going right over my head. I know its a tool to help diagnosis ms. But I dont know what o bands are or what they are looking for. I apoligize if this was already addressed in another thread. But if someone could shed some light on this I would appreciate it.
I can't offer a more specific explanation, but there is apparently a particular protein in the spinal fluid that is elevated -- more than usual -- causing bands to appear (the o-bands) in the spinal fluid. If the o-bands appear, it is one more tool to suggest that the person has MS. 
 
There are no definitive tests for MS, so just that result in itself is not enough for a diagnosis, but if o-bands appear in the spinal fluid AND you have one or more other definitive results on tests, and clinical signs, then it's more likely that you have MS.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/23/2006 6:05 PM (GMT -6)   
Hey TiaJoy

I just wanted to say best wishes on u'r lp. Uppitycats explained it to u very well and i hope that helps u feel at ease for it. Have u had one done before? I'm sorry, can't remember if u've said. I hope it all goes well and is revealing.

rhonda

TiaJoy
Regular Member


Date Joined Sep 2006
Total Posts : 59
   Posted 9/24/2006 7:09 AM (GMT -6)   
This is the first one, and hopefully the last. Uppity, thank you for your explaination. my eng showed likely that my problems where coming from the central nerve system, mri showed "several lesions" and evoked potential were boderline(borederline what?) Nueroligist said its not likely that it can be anything else. He does NOT think its lyme or a stroke,those were the only two things he said it could be, he is pretty sure its ms.
okay, my other question is- its agreed that lps neither comfirms or uncomfirms ms. In my situation I dont know why I'm getting it done, when I asked the dr that he basicaly said that its the last piece of the puzzle.
I'll be the good patient and listen to the dr and get it done(on potest- lol) Does any one know if insurance companies require the lp for a dx?

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 9/24/2006 9:10 AM (GMT -6)   
TiaJoy said...
This is the first one, and hopefully the last. Uppity, thank you for your explaination. my eng showed likely that my problems where coming from the central nerve system, mri showed "several lesions" and evoked potential were boderline(borederline what?) Nueroligist said its not likely that it can be anything else. He does NOT think its lyme or a stroke,those were the only two things he said it could be, he is pretty sure its ms.
okay, my other question is- its agreed that lps neither comfirms or uncomfirms ms. In my situation I dont know why I'm getting it done, when I asked the dr that he basicaly said that its the last piece of the puzzle.
I'll be the good patient and listen to the dr and get it done(on potest- lol) Does any one know if insurance companies require the lp for a dx?
A result of "borderline" on the evoked potentials would suggest that there is something wrong..not right..about the signals received in the body. Something wrong indicates a problem with the central nervous system. It wasn't absolutely positive..but near enough, that -- combined with the other test results -- it points to MS.  You're getting the lp done precisely BECAUSE the other test results are coming back "borderline", or not exactly definitive.  If the o-bands show up there, all the "borderline" results, combined with "several lesions", would be the clincher that the doctor is right, you have MS.
 
Some insurance companies require the lpb for a diagnosis, particularly when other results are not definitive (which appears to be the situation in your case).
 
I'm wondering why you're waiting until after the holidays to start one of the drugs? 3 months can be a long time. While the side effects can be challenging for some, for many of us it simply means a bit of a headache and lethargic feeling the next day.  I was working full-time when I started Betaseron (every other day injection, so every-other day side effects) and never missed any work because of them.  So have others.
 
Indeed, MS can be a very disabling disease, for some. And the problem is that you'll not know if you'll be one of the more fortunate ones and have a relatively mild course...or if you'll have a serious exacerbation tomorrow that leaves you significantly disabled.  I wasn't willing to take that chance, and got on the drug at the first opportunity.  Unfortunately by then I was already significantly disabled, though....  But I'm convinced that, in my situation, it dramatically slowed down the course (progression) of the disease, and I'm able to function pretty well now, even though I use a wheelchair full time.  I don't think I'd be nearly as competent now, had I not been able to get on the drugs when I did (about 14 years ago.)
 
Good luck with whatever decisions you make.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


TiaJoy
Regular Member


Date Joined Sep 2006
Total Posts : 59
   Posted 9/24/2006 10:47 AM (GMT -6)   
what all you said does make sense to me. thank you for clarifing(sic) about the lp, it make me feel better about getting it done. As for waiting untill after the holidays it was because of the financial reason, feeling sick, being a burden to my family. And the fact that I'm a big scaredy cat. huge actually lol. Also by taking the medications for it, it makes the ms real. Up untill now I knew that I probably have it, in my heart I know I do. BUT without the possitive dx and not taking meds, it might not be true. even though I do want a definite dx on what I have so that I can come to terms with it and deal with it. Am I crazy or does that make sense?

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 9/24/2006 12:51 PM (GMT -6)   
You are not crazy. But don't play mind games over something as serious as your long-term health, particularly when you have children to consider. You're pretty sure you have it..all the tests seem to indicate that...having a doctor talk with you about the medications points to that...frankly, I'm concerned that you're NOT taking the meds. Feeling sick, being a burden to your family -- neither of those are your fault, but both of those are now your reality. You ARE sick...and maybe these meds will keep you from getting sicker. You are a burden on your family...but then, anyone can become a burden on her family at any time, for all sorts of reasons. And if you get on one of the meds and it does slow the course of the disease, you'll be even less than a burden.

You're an adult, though, and have to make your own decisions.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


TiaJoy
Regular Member


Date Joined Sep 2006
Total Posts : 59
   Posted 9/24/2006 1:26 PM (GMT -6)   
wow, that was harsh lol. like I said , i'm call the avonex hotline tomorrow and will get the answers I need, it will probably put my mind at ease, If so will call my doctor about what I need to do to start

TiaJoy
Regular Member


Date Joined Sep 2006
Total Posts : 59
   Posted 9/28/2006 12:28 PM (GMT -6)   
Well, after doing my research on avonex and talking to the representive, I decided to go ahead with it so I just now got off the phone with my doctor, they are going to get it set up for me with my insurance. Also my Lp is tomorrow. I'm holding it together pretty well right now, but the closer it get the more nervous I get. I'm afraid that I will have a panic attack when I get into the room tomorrow. I've heard of people who had an okay time with it. Then I get people who say its horrible. I figure that no matter how terrible it is, it will be over soon. question though- if it turns out negative, do dr normally have it repeating later?

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/28/2006 12:40 PM (GMT -6)   
Hey TiaJoy

Just hoping u've gotten some answers and were able to move forward with whatever decision u made. I know u'r scared of these things and this whole pic is pretty overwhelming to say the least. Take care and let us know how u are.

rhonda

snowdog
Regular Member


Date Joined May 2006
Total Posts : 137
   Posted 9/28/2006 1:22 PM (GMT -6)   
Nice thing about an LP, this time next week it will be a memory good or bad. You will make it through tomorrow. Nobody I know that has had an LP, including myself, wasn't full of anxiety and scarred to death. We all made it. Remember to take control, don't let them rush you, ask questions, it helps to understand what they are doing, what they are looking for.....at least it helped me.

And I will tell you that you did the right thing getting a script and starting on an ABC drug. My problems started back in April of this year and I finally got started on my first injection last week.
My last MRI 3 weeks ago, showed why I should have been on it sooner. It was obvious compared with my first one, that in 5 months the disease had progressed. Hopefully (because it doesn't always work)
it will now be slowed. Uppity was right....3 months would have been to long to wait. Good Luck, we are all pulling for you.

TiaJoy
Regular Member


Date Joined Sep 2006
Total Posts : 59
   Posted 9/29/2006 5:18 PM (GMT -6)   
I just wanted to let you all know that I got the LP today and everything was fine. it wasn't nearly as bad as what I thought it would be. The injection for the novicain was worse then the procedure. It was uncomfortable and the pressure made me feel very sick. But there was hardly any pain. Right now my stomach is a little upset and my back is sore and weak. But I'm doing good and happy that it's over.

photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 9/30/2006 1:38 AM (GMT -6)   
You must be so glad it's over!  What a relief for you.. I'm glad it went well
 
:-)  
 
Shar
If it's meant to be, it will happen


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/30/2006 10:21 AM (GMT -6)   
Hey TiaJoy

Great!! I'm so glad it went so well for u and am hoping for revealing results and some answer for u!! Take care.

rhonda
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