Welcome Ronnieroller

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Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 10/1/2006 8:49 PM (GMT -6)   
Ronnieroller said...
 

 Hey, I'm new here and newly diagnosed with MS just this past thursday.  I have been waiting for a diagnosis for about 12 years now.  I have a younger brother who has been diagnosed with MS for about 3 years now.  He only had symptoms for about 6 months before diagnosis.  We both have other autoimmune diseases ( I have Graves disease and he has Alopecia) and there are many autoimmune diseases that run on both my mother's and my father's side of the family.  My mother has been struggling with Trigeminal Neuralgia for about 25 years and has recently developed some other MS symptoms and has been sent for an MRI which has not yet been done.    

I have to say that this site is a god send for me.  It makes me realize that I am not alone in this struggle and I am not the only one who had to struggle to get a difinitive diagnosis.  My Doctor was extremely worried about how to tell me the news on Thursday.  I have to say that when he said "there have been some significant adverse changes on your MRI,"  the first emotions that I felt were happiness and relief.  I felt about 20  years younger and about 50 pounds lighter.  I know this may sound weird and it's not like I want to have MS but now the Doctors can't call me a hypochondriac or crazy and tell me there is nothing wrong with me.

 
Hi Ronnie,
 
   Just wanted to welcome you to the site!  So sorry for your recent dx but I hope you find the people here as wonderfully supportive as I have.  Feel free to ask any questions or vent if you need to.  This site has some wonderful resources and another good reference site is the National MS society page at www.nmss.org.  We'll do what we can to help.
 
Kimber


 
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Ronnieroller
New Member


Date Joined Sep 2006
Total Posts : 6
   Posted 10/1/2006 9:09 PM (GMT -6)   
Hey Kimber,
 
thanks for the welcome and the other info.  I really appreciate it.  It's nice to know that there is a place where I can go to vent. 
 
I know yesterday I said I was happy for the diagnosis but today I feel a bit numb.  The initial excitement of finding out I'm not crazy has worn off and I think everything is starting to hit me.  Everytime I think about it I get a big knot in the pit of my stomach.  I don't know if this will make sense or not but I feel like I should act differently now that I know that I have a diagnosis.  You know.  I'm someone who has an illness what do I do now?  Should I be sick or is it ok to be feeling ok for now?  Is every little twinge MS or is it just a little twinge?
 
Any how, I'm rambling.  Thanks again for the welcome.
 
Sheila 

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/2/2006 1:19 PM (GMT -6)   
Hey Sheila

Welcome to the board! I'm so sorry u have this dx, but i can understand the immediate relief u felt. Yes, it must be very staggering to realize, but u've found a great place for help and support and i hope we'll hear lots from u. Please feel free to come share/vent/ask questions as much as u like or need. The people here are great and have been a life saver to me.

rhonda
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