I need some help. I have been unwell for more than 2 months. It seems my flare up has ended but many of the symptoms are still there. The symptoms are as follows:
headaches, neck pain, hair loss, flushed cheeks, pain in arms and legs, for a period of 3 weeks could barely walk due to joint stiffness and pain, heavy feeling limbs, muscle spasms, fatigue, sleeping issues (think it may just be largely due to my lack of activity) tingling in limbs also hands & feet, numb patches of skin, burning patches, creepy crawly feelings in legs and back(like strange vibrations) dizziness, blurry vision, numbness and pins and needles in legs feet and hands and tremors. My hands have taken on a life of their own and when they are resting my fingers will move on their own spasmig. It is not painful when they do this but is distrubing.
Before this I was a healthy and active 36 year old. about 2 months ago I realized my arms would get tired fixing my hair or picking up the milk jug. Then it was difficult for me to get up from sitting or kneeling and things just kept on getting worse. The worst of the symptoms lasted for about 4 weeks.
My doctor sent me for MS MRI's and was diagnosed with a meningioma (brain tumor)on the saggital sinus. To add insult to injury my symptoms I am told are a NOT a result of the tumor which can not be removed until the neurosurgeon feels the "Flare up" is over. Great.....
I was tested 2X for lymes the MS MRI did not show lesions on the brain or spine. My EMG was normal. I am waiting to see another neurologist Nov 1st for further testing. If this is MS and a spinal tap is done and I am not in a full flare up will the tap still show positive if I have MS?
My symptoms change daily and the unbearable pain has gone. The general day to day living is OK. I am weak and have pains, muscle spasms and pretty much all the symptoms above other than rolling around on the floor in agony! I am at a loss.
The doctor tells me my reflexes are way too strong and my SED rate went from 1-60 in 3 weeks. My white count bounces not too high but higher than it should be and now my SED rate is down again.
I feel as though I am losing my mind. 1 neurologist told me she could not help me my issues are not neurological my own doctor and 2 neurosurgeons seem to think differently. I have been to a rhuematologist(sp?) and he says not arthritic/rhuematic.
I am so upset and confused and fearfull that the pain will be like it was.... I am about 2 and a half months into this hell and have no idea what else I can do. I posted this on the Lymes forum also as I have heard you can sometimes get a positive negative but I am running out of ideas Does the ANA blood test apply to MS or just other auto immume diseases. Would I have lesions on spine and brain first time I have a flare up?
Carolyn, Virginia Beach