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photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 10/9/2006 8:49 PM (GMT -6)   
Hi everyone,
 
I was diagnosed with MS in April of this year.  Since then I've had:
 
numb left leg, left arm, neck, right arm (all at different times)
weak right leg 
cognitive troubles
fatigue
balance problems
 
My question is.. everything seemed to have stablilized and I am back at work.. the only bothersome thing left was my numb (but getting better) right arm.  Last week I got SOO tired after work, and the next day a bunch of this stuff has returned that was gone for the last few months.  It's been about 4 days now with no change.. are these symptoms from being so fatigued?  If it's a new relapse, does that mean the lesions have "reactivated"?  I'm also experiencing some new tingles in my face... does a new relapse ususally trigger all the old stuff?  I'm thinking I'm working too many hours and it may be a good idea to cut back a bit, but I hate to do it.
 
Any help is appreciated.. thinking about visiting the neuro.
 
Thanks!
 
Shar
 
If it's meant to be, it will happen


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 10/10/2006 4:33 AM (GMT -6)   
I'm sorry you're feeling poorly. It does sound like you might be experiencing a relapse.  You should at least call your doctor and report it. He may not want you to come in, but it should be noted in your records.  I hope you feel better soon!

...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 10/10/2006 2:53 PM (GMT -6)   
Hi Shar,

I agree, at least give your neuro a call and see what he has to say especially since you have new stuff going on. You might be experiencing another flare and yes old symptoms can appear then, and sometimes new stuff happens. Also stress and overdoing things can also make symptoms appear or worsen them. Hope you feel better soon, keep us updated.
 
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photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 10/12/2006 1:16 PM (GMT -6)   
Hi Uppity, Kimber
 
Thanks for your replies.  I called the MS clinic yesterday to report this, and am waiting to hear back about decreasing my hours at work.. hopefully to 6 hour shifts.
 
The nurse told me that getting very fatigued, or an infection can make your old symptoms surface again as the signals don't travel as well through the damaged areas.
 
Shar
If it's meant to be, it will happen


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/12/2006 6:40 PM (GMT -6)   
Hey Shar

I hope u do get to reduce u'r hours. Fatigue is my worst enemy and i can't imagine working with all that's been going on with me. I certainly feel for u! Hummm...wonder if this can be done under the workers with disabilities act??? I'm totally unfamiliar with that, but it was a second thought as i was posting just now. Maybe that would offer some sort of security in increasing u'r hours again later on if u should decide to do that. Just a thought...tho it may be way off. Best wishes to u and i hope u'r feeling better by now.

rhonda

photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 10/18/2006 6:20 PM (GMT -6)   
Hello...
 
Good news.. no one seems to have a problem with me decreasing to 6 hour shifts indefinitely, as long as I get a letter from the neuro which is on it's way.  My long term disability coverage (which should be approved anytime now) will also top me up to 100% of my wages for the next two years.
 
Not so good news... I'm a bit bummed at the moment because just a few weeks ago I was feeling so good.  I had so much more energy and even said to myself "enjoy this, you never know how long it will last".   Now I'm just pooped and I'm trying not to let it get me down.
 
The nurse said the neuro may want to see me as this is my 5th relapse since being diagnosed in April, and maybe the Betaseron isn't working.  Thankfully no major debilitating flare ups have occurred, and I gotta think the Betaseron is doing something to help with that.  I would be very interested to see what my MRI would look like now if she orders one.
 
I am so very thankful I can keep working for now as I really enjoy it and need the distraction.  I'm very fortunate to have found the perfect sit-down interesting job before all this happened, and I have THE best coworkers. yeah
 
I'm also so glad to have found this forum.. you guys are the best.  Hope everyone managing okay.
 
Shar
If it's meant to be, it will happen


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/18/2006 6:31 PM (GMT -6)   
Hey Shar

I"m so glad for u and u'r great news!! I hope the long term disability comes thru very quickly and u can take some time to focus on u. I'm sorry u are having such a bad time with flares and are so down about it, but hang in there. It does seem to be universal for most and so is the passing of that feeling thankfully. I do think being tired and stressed has a very pronounced effect on the reappearance of symptoms and just having time to relax and rest should help u a lot. I hope if it's a prob with the Betaseron that it can be remedied very easily and u'll be on the way to feeling great again soon.

rhonda

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 10/18/2006 8:09 PM (GMT -6)   
Hi Shar,
 
   That is terrific your employer is willing to work with you and I do hope the decrease in hours will help you feel better.  I'm sorry you are feeling a bit down right now with all the flares, but it is good though that they aren't as bad as they were before you started Betaseron.  That might be something to tell the doc, that flares are still coming but they aren't as bad and see what he wants to do.  Thinking happy thoughts for you!  Keep us updated :-)
 
Kimber
 
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