Lupus + RA + Enbrel = MS? (X=Post)

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AlligatorAnnie
New Member


Date Joined Oct 2006
Total Posts : 3
   Posted 10/16/2006 9:00 PM (GMT -6)   
A co-worker and friend has Lupus and RA.  Her Rheumotologist put her on enbrel 5 months ago, and she has been so happy with it - The only noticeable side effect has been some spots of numbness on her back.  When she told her rheumotologist about it he immediately sent her for a blood test, then an MRI, and said that 1 in 500 people who take Enbrel get MS. 
 
Today, the Physician's Assistant told her that she has Stage II MS. Has anyone else had this happen?  What effect does the MS have on the Lupus and vice versa?  Any information/experiences would be very helpful.  She is devastated by the news and waiting for the Rheumotologist's office to squeeze her in for an appointment this week.  Thanks. 

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 10/17/2006 6:21 AM (GMT -6)   
AlligatorAnnie said...
A co-worker and friend has Lupus and RA.  Her Rheumotologist put her on enbrel 5 months ago, and she has been so happy with it - The only noticeable side effect has been some spots of numbness on her back.  When she told her rheumotologist about it he immediately sent her for a blood test, then an MRI, and said that 1 in 500 people who take Enbrel get MS. 
 
Today, the Physician's Assistant told her that she has Stage II MS. Has anyone else had this happen?  What effect does the MS have on the Lupus and vice versa?  Any information/experiences would be very helpful.  She is devastated by the news and waiting for the Rheumotologist's office to squeeze her in for an appointment this week.  Thanks. 
I have never heard of "stage II MS".  Does the Assistant mean "secondary-progressive MS", perhaps?
 
Lupus, rheumatoid arthritis and MS are all autoimmune diseases.  While it surely is possible to have more than one autoimmune disease at a time,
 
it is also possible to be misdiagnosed -- to have been told that you have one of them, but over time, as the disease progresses, it become more clear that you really have one of the others.
 
Enbrel is a drug that is properly prescribed for rheumatoid arthritis. Here is a web site that describes it:
 
 
and indeed it does state that a possible side effect is the development of MS!  I'd certainly encourage your friend to talk with the doctor directly (as opposed to the PA) to understand better how the conclusion was drawn that "...since the Enbrel seemed to be working..." that she developed MS?? (Or am I misunderstanding your statement, above??)
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


smhiles
New Member


Date Joined Apr 2006
Total Posts : 12
   Posted 10/20/2006 5:39 PM (GMT -6)   
Hi AlligatorAnnie,

As Uppitycats stated above you can develop an effect to your central nervous system. I have read that if you have an autoimmune disease it is possible to be prone to another. I was on Enbrel and then Humira for RA, I also have FM, and I started having sx of MS, I was dx'd with MS in Jan06, had ON and other sx, then a LP and MRI was done I have lesions on brain and spine. I was immediately taken off the Humira and hospitalized. Since then my RA has been out of control, after some IV treatments it has calmed (RA). Please have your friend request to see a neurologist. I hope it is not MS, Lupus is enough for her to deal with I am sure, I hope this helps. Remember, unfortunately, this is only MY experience. Take care.

Smhiles tongue
Dx'd RA, MS, FMS, CTS, CFS, Hypothyroidism, Dep, Migraines, Optic Neuritis.
 
still i gotta keep on smhilen' 
 
Many smhiles 4 u.

Post Edited (smhiles) : 10/20/2006 4:48:41 PM (GMT-6)


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 10/21/2006 10:39 PM (GMT -6)   
I'm from the crohn and arthritis board and i take Humira and was warned that ms coul be a side-effect of this drug but when weighed I chose to take my chanses.I to have alot of MS symptoms and have seen a neurorolagist and I have had blood work and Ct Scans and I have had MRI's with and with out contrast and I have what they believe to be leasions but was told they still could not give me a dx of MS.I have how ever found that i have inflamation in the lining of my nerves and muscels.
Thanks
Curley......
a.k.a.Mela...........


Spicey
Regular Member


Date Joined Mar 2009
Total Posts : 131
   Posted 6/8/2009 8:59 PM (GMT -6)   
Hi , I just found this old post when I goggled Enbrel and M.S.. I hope all who posted are hanging in there with good family, MD, and support of friendes.
I"ve been on enbrel for about a year and a half for R.A. But have been having "M.S. like" sx's for a few months. I never knew that about enbrel.

I did know about a risk for other things,infections,blood dyscrasias, and lymphoma. I'll get the LP. results this week. Please say a little prayer. thanks, Michelle

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3141
   Posted 6/8/2009 9:52 PM (GMT -6)   
Hey Michelle,
 
I am praying for you.  I didn't know either.  Keep us posted.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 6/17/2009 2:13 AM (GMT -6)   
Hi Curley,

I have found that fish oil & tumeric capsules keep my inflammation down. Dont know if you could tolerate them? Thought it might help. Good luck.
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
Plant your own garden & decorate your own soul instead of waiting for someone to bring you flowers.
Know that you are strong, worthy and can learn & endure.


gbash
New Member


Date Joined Oct 2010
Total Posts : 3
   Posted 10/28/2010 12:22 PM (GMT -6)   
I took Enbrel for 4 years with great results, and then I came down with bad MS-like symptoms. My doctors took me off Enbrel and put me through an IV steroid treatment for the nerve problems, which did help some. Three months later, I am in so much pain from the return of my ankylosing spondylitis, in addition to the nerve damage (weakness in legs and arms and numbness over most of my body). Is there anyone who stayed on Enbrel, even with the nerve damage? The MS is bad, but the AS is killing me.
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