Question for PEGLEG

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ConfusedGal
Regular Member


Date Joined Oct 2006
Total Posts : 77
   Posted 10/27/2006 1:28 PM (GMT -6)   
Hi Pegleg
 
I noticed that you said you have 5 lesions on your MRI. This is exactly what I have...Can I ask you what other tests of yours was positive? Was the LP and EP positive as well?

pegleg
Regular Member


Date Joined Oct 2006
Total Posts : 257
   Posted 10/27/2006 6:15 PM (GMT -6)   
My LP was negative, but MD stated that approx 10% of MS pts do not have lesions on the spinal cord. If you have 5 lesions like mine, I was told this will probably lead to the 9 giving you the diagnosis of MS. I was told that it may take time and depends on how many exacerbations you have. My MRI also showed periventricular leukomalacia. This disease in adults is similar to MS and usually develops into MS. I was also informed that my weakness, numbness, & tingling in leg & arm will not go into remission. I am again on steroids to try to control balance. It's just a 6 day dose and doesn't seem to be working. MD wants to schedule me for another MRI because of increase in symptoms and degree in progression. I only got through half of the EP before problems became worse and had to stop. I'm being scheduled for neuropsych test to determine which areas of the brain are permanently impaired. When I was informed of neuropsych, I thought they suspected I was crazy (haha)! It's performed by psychiatrist trained in MS. If ppsychiatrist is not fully trained, they can miss something (so MD informed me). Best thing to do is get pocket calendar to carry w/you, record all symptoms & what you were doing when symptoms occured. Have you had a vision test? I had trouble going down stairs (none going up). It appeared I was at bottom, took a step, and fell down rest of stairs. I also at times feel as if there is a slight film over lt eye. This is optic neuropathy (I'm informed by MD). There are also other things that can cause lesions on the brain and have to be ruled out (high blood pressure, etc). Do you have a BP machine at home? If not, some stores have them available for patrons use. Keep record of this also. Is your MD doing anything at the moment? Do you have high BP? Don't dispare. Now that I understand what is fully happening to me after a yr of full exacerbations, I feel content... there are no more questions & I know what's ahead of me (PT, OT, brace shop). I thought I would be upset, but I'm just relieved. My neuro MD has a neuro practice, but also teaches neurology at a university Med school. Keep in touch!

ConfusedGal
Regular Member


Date Joined Oct 2006
Total Posts : 77
   Posted 10/27/2006 10:56 PM (GMT -6)   
Hi Pegleg,
 
Thanks for the detailed answer...I had an EP last Friday and am having an LP this thursday...I havent gotten the results of the EP but the doc hasnt called me... His secretary said "If there was something to worry about he probably would have called you..." So maybe the EP was normal or maybe he is waiting until I see him for the LPto talk with me...I dont have eye problems. My vision is really bad so its tough for me to determine if it has "changed." But no double vision etc... My big symptom is my right hand which has been numb for 3 months. It doesnt go away... I have scalloping of the muscle under my thumb also..It can also be very painful and my joints are stiff... I literally woke up with it numb one day... My left hand has also starting hurting and numbing a bit... But my right is very prominent...I have already been tested for carpal tunnel twice and I dont have it. My right leg has also been cramping and my toes hurt...According to my doc report, I have a "mute" right toe as well... And of course, I have the 5 lesions.
 
 
I dont have high BP...Its been normal every time it has been checked... I am only 27. I dont have migraines. I havent been bitten by a tick (Lyme) etc... I dont have fevers and never had any horrible virals in my life (beyond the common cold etc) to cause these lesions... I have been tested for my sugar level and dont have diabetes...arthritis etc... Its all confusing...WHere did these lesions come from?? What caused my hand to suddenly go?? The wait to find out is awful...
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, October 19, 2017 7:51 PM (GMT -6)
There are a total of 2,884,475 posts in 316,490 threads.
View Active Threads


Who's Online
This forum has 157612 registered members. Please welcome our newest member, Naturelover.
458 Guest(s), 13 Registered Member(s) are currently online.  Details
bleepitybleep, RedEyedArab, Lapis_29, Tsak11, dacarte3, Scaredy Cat, Girlie, jessihes, Old Mike, gypsyfp, Lostcoast, Tall Allen, Lanie G


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer