How long does a MS Hug last?

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Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 10/27/2006 3:10 PM (GMT -6)   
I was wondering if someone could tell me how long a Hug lasts?  about 6 years ago I had a terrible migraine, didn't eat anything all day long, and took an aleve before going to bed, shortly after falling asleep I was awakened by this terrible pain/cramp feeling in my stomach/back, it hurt real bad, it would come on then slowly subside and each time it came back it was less pain than previously, this lasted for about an hour, I took a gas-x, because hubby said it was gas, it didn't feel like gas, but it seemed to alleviate it some.  It scared the dickens out of me.  Could this have been a hug, being it only happened this one time, and it was such a short period of time, or do you think it was from irritation from the aleve on an empty stomach?  I have weird tickly sensations now that are only provoked from clothing, heat does not bring on these sensations, normal brain MRI, normal cervical MRI, doc feels that this is health anxiety, and diesn't think its MS, this is my only symptom, its just weird tickly, crawling sensations provoked by clothing, no numbness, no weakness, bladder and bowel fine.  Someone let me know please!!!!

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 10/27/2006 4:04 PM (GMT -6)   
What you describe sounds more like a reaction to the medication -- gas, intestinal distress, something like that -- than an MS hug.

The "hug" is a sensation of being squeezed in, all around the torso (or wherever there are muscle groups that go around the body, rather than up and down). It is not generally a pulsing sensation like you describe, but more a steady squeezing in, like having some overweight-but-loving auntie give you a hug.

The fact that this happened 6 YEARS ago and hasn't returned..I'm surprised you even remember it! And all your other test results are normal? Have you been tested for allergies, or sensitivities, maybe, to some soap or laundry detergent or softening products you're using on your clothing? Or some bath products you're using on your skin that..when they come in contact with your clothing..produce the tickly sensations?

While one of the symptoms of MS can be strange sensory symptoms, if that is your ONLY symptom, and all the usual tests are normal, I'd think your doctor is right -- it's not MS.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 10/27/2006 4:18 PM (GMT -6)   
Uppitycats, thanks so much for your reply!!!  This sensation that I had 6 years ago was something that I never had before, it really scared me.  Does the hug stay tight and never relax and come back again, relax and    come back?  This would feel like pressure and pain then subside, and each time it came back it was less intense till it went to nothing.  It did knida feel like someone pushing something real hard into my stomach area, but it let up right away, only to return with less pain, til it vanished.  I never thought of the laundry detergent thing, or soap, I use the same stuff on my bed sheets and comforters and it doesn't do it when I go to bed and there up against my skin, its weird, maybe I'm just really scared of the whole thing.  My doc seems to think this is coming from migraines that I get, in fact this is how the whole MS got in my mind, my mom and grandfather have both suffered from migraines their entire lives, when I started getting these 8 years ago, I told my opthamologist about seeing black spots in my vision for a few minutes, he told me that I should have had a MRI done right away because that was considered optical neuritis, I then googled "optical neuritis" and MS came up, off course I panicked and went off the deep end, that was 6 years ago, I never had the MRI done until April of this year, I had to know if I have MS, it was normal, done with and without contrast, and the cervical MRI was just done in Sept of this year, it was normal except for a bulging disk at C-3, the doc seems to think that this is the cause of my migraines and neck stiffness.  Do you think that I'm alright with saying this isn't MS?  Would I have more symptoms than this in 8 years and wouldn't my mris have shown something by now?  Thanks so much for your thoughts and patience, it is greatly appreciated!!! Jen

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 10/27/2006 9:19 PM (GMT -6)   

Optic neuritis can be seen by a good opthamologist. It is an inflammation of the optic nerve. I've actually seen pictures of the optic nerve in my right eye -- which is the one affected by the optic neuritis, and the optic nerve in my left eye, which was not affected.  The opthamologist looks into your eye with a flashlight sort of device, which also magnifies the optic nerves.

The affected optic nerve is pale, the other one is a "healthy" pink.

Actually, a regular neuro, if he has the right small magnifying glass, can see whether you really had a bout of optic neuritis.  Usually folks get a pain in the eye, sometimes lose color vision, sometimes get real distorted vision (blurry, or seeing "ghosts" around objects, that sort of thing), not just black spots for a few minutes.

Migraines can cause all sorts of strange visual sensations, and aren't always accompanied by headaches, either.  Lots of "auras" and strange effects can come about because of a migraine disorder. I don't know if a bulging disc can cause migraines, but it certainly could cause stiffness in your neck, or a painful back!

I still think the episode you described 6 years ago was some gastro-intestinal thing, related to taking the meds, or gas, or just some fleeting thing.

Generally the sensation of the MS hug comes on slowly, over a few hours (sometimes folks wake up feeling like they're being hugged), and hangs around for several hours..or days...or longer.  Not the fleeting sort of thing you describe.

MS is really variable in folks.  But if that's the only symptom that occurred 6 years ago - -apart from the tingly sensations on your skin -- and you've had no further symptoms at all that even seem to be MS related -- I'd stop worrying about the MS, for now, and deal with the migraines (which, by the way, can be an inherited thing; you described that several family members also have/had migraines...)

 

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Shashi
Regular Member


Date Joined Jul 2006
Total Posts : 156
   Posted 10/27/2006 9:52 PM (GMT -6)   
Jenny, I've had what seems to be the MS hug several times (even though, according to all my tests, I don't have MS.) The last time was the day I had my LP and it was the worst occurance yet. It came on shortly after the procedure and lasted for almost two days. I was numb from my armpits all the way around and down about 5 inches (about the area that my bra covers) and all the way down to the end of my rib cage, I felt like I was being squeezed tightly by a python. I couldn't get a good breath. It didn't exactly hurt, but it was very uncomfortable.

As Uppity says, your symptoms and length of time between occurances don't seem consistent with MS. You should talk to your doctor about this, just for your own peace of mind.
Lisa ~
Living in Limboland!


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 10/27/2006 10:45 PM (GMT -6)   
Uppity and Shashi, thank you guys so much, what is frustrating is that the eye doc never even examined my eyes before he said this, and one time I was having the black spots during an eye exam and they said my eyes looked fine.  Thanks so much for your help.  The stomach incident scared me because it woke me out of a dead sleep and I felt pain and pressure, it never happened before, when I started to look up the symptoms of MS, I read about this, and wondered if indeed this is what I experienced that night.  It didn't last no more than an hour and I haven't had it since, but of course, I never took Aleve after this either.LOL.  My docs feel that this is all sort of a combo of migraines and anxiety, along with the disk problem.  I hope so, the reason that I'm concerned is because my gram was diagnosed with Ms at age 60, she died at 79, not from MS, but she did wonderfully in the 19 years that she had it.  So I have migraines and MS in my family, and the symptoms can be so familiar at times.  Thanks so much for your time and answering a friend in need.  God bless and have a nice weekend!!!!    Jen :-)

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 10/28/2006 10:33 AM (GMT -6)   
Jenny R. said...
Uppity and Shashi, thank you guys so much, what is frustrating is that the eye doc never even examined my eyes before he said this, and one time I was having the black spots during an eye exam and they said my eyes looked fine.  Thanks so much for your help.  The stomach incident scared me because it woke me out of a dead sleep and I felt pain and pressure, it never happened before, when I started to look up the symptoms of MS, I read about this, and wondered if indeed this is what I experienced that night.  It didn't last no more than an hour and I haven't had it since, but of course, I never took Aleve after this either.LOL.  My docs feel that this is all sort of a combo of migraines and anxiety, along with the disk problem.  I hope so, the reason that I'm concerned is because my gram was diagnosed with Ms at age 60, she died at 79, not from MS, but she did wonderfully in the 19 years that she had it.  So I have migraines and MS in my family, and the symptoms can be so familiar at times.  Thanks so much for your time and answering a friend in need.  God bless and have a nice weekend!!!!    Jen :-)
You might want to do a google search on "floaters" and vision and see if what you find describes those black spots. Lots of folks with normal health and vision get floaters...it's a sort of debris that you can see floating around, sometimes large "chunks", sometimes very small. They'll be there for awhile (and if you notice them, seem REAL visible!) and then disappear. The debris in fact dissolves.  Anyway - -they're harmless, won't affect your vision, aren't related to having MS (or migraines), but just "happen".
 
Your grantmother was diagnosed with MS at age 60??  That's pretty old! I wonder if in fact she had it long before, and it just wasn't diagnosed early?  Or if in fact she didn't have MS but some other disorder (like vasculitis, or TIA), which can mimic MS?  No way to tell now, of course...
 
Lots of us have had MS for a long time, by the way -- I've had it for at least 23 years --and continue to rock along....
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 10/28/2006 2:03 PM (GMT -6)   
Uppitycats, I do have floaters, but the black spots were not floaters, these were big, and round spots that were on everything that I looked at, if I were to look at my husbands face the spot was located on his nose, I could not see his nose just a black spot.  It wasn't floaters, my floaters are like little hairs that float in my vision, and then diappear as they come to the corner of my eye.  I wonder too about my grams diagnosis too, they have come a long way from 22 years ago with the testing for MS.  They also told her that she had the early stages of Parkinsons disease right before she died.  I, wonder if she didn't have Lyme disease, her pattern wasn't really typical of MS.  She drug her left leg a little, and her left arm would go numb occasionally, she had bowel problems, but no bladder issues, never had vision troubles either.  My only problem is the clothing issues.  I was just on another health board forum and there was a girl on there that has the same symptoms of me with the itchy, tickly, bug crawling sensations, she is not diagnosed with MS, but has had many tests.  Supposedly she has alot of other symptoms also.  Do you think my sypmtoms sound like MS?  It is nice to know that you are doing well after 23 years, thats great.  I am so tired of worrying about all these freaky sensations, I just want them to go away forever.  Would these symptoms be here everyday, if it were MS?  Thanks for your patience!!  Jen

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 10/28/2006 2:17 PM (GMT -6)   
"Do you think my symptoms sound like MS" -- seems like that was your original question. My answer -- and I'm not a doctor, nor health professional, and don't pretend to be one, here --

is no. Your symptoms don't sound like MS. With a history of migraines, I'd do more research there and see if there might be some descriptions of some of the vision problems migraine can bring ( You're correct -- the black spots you described more fully weren't floaters...but they're not at all typical for optic neuritis, either., ) and some sensory disturbances (the itchy/crawly). The sensory stuff still sounds like something you're allergic to, somewhere. Without actually going to an allergist and undergoing testing, there's no way to tell, of course. And even then, there might not be an conclusive answer.

And you're right -- MS diagnosis 22 years ago when your grandmother was diagnosed was pretty primitive, compared to what it is today. MRI's didn't even exist then, for example. And it was only a few years before THAT that the test for people with MS was to submerge them in a tub full of hot water and let them sit there for awhile -- and then try to get out. If they couldn't use their legs ...they'd have MS!

Anyway...I'm sorry you've got whatever it is that is causing your skin problems. I hope you find some answers soon.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 10/28/2006 3:10 PM (GMT -6)   
Uppitycats, I think I might go about with the allergy testing, being I do suffer from seasonal allergies/sinus issues, maybe there might be an answer there.  I have heard of the hot tub test, actually my mom told my gram one day to come out to her house because her back was hurting really bad, they have a hot tub, she thought that would hurt her back, needless to say we didn't know about the heat effects of people with MS, and neither did my gram, she was in there for about 1 minute and she said, get me out of here, now.  She said she felt like a rag doll.  I don't have these symptoms, in fact heat does not bother me at all, I feel better when I get in the hot tub, those crawling sensations don't even exist when I'm in the tub. Thanks for your patience with me and all my "crazy" questions.  You have a nice weekend!!!  Jen
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