As many of you know, I haven't been diagnosed with MS. Since my MRIs, LP, and all but one of my EVPs came back normal, I may never be diagnosed with MS, though from my symptoms, I'm almost positive this is what I have.
I'm currently taking nortriptyline for nerve pain and numbness, baclofen for muscle spasms and stiffness, and Zantac for gastric reflux. I've been on all three for about two to three months now, and they have worked pretty well, though there have been times when I've had flares and nothing worked.
I've actually been feeling a lot better recently. I still have the internal vibrations with occassional buzzing (especially in my hands), and my legs get a bit stiff, sore, and weak if I walk too long, but most of my other symptoms, other than the odd shooting nerve pain, seem to be decreasing.
I would like to eventually stop taking some of these medications I'm on. (I've also taken Toprol XL and a diuretic for high blood pressure for the past four years.) I hate taking medications if I can do without them at all. I'm just wondering though if I can stop these three without risking a reoccurrance of these symptoms. I mean, am I supposed to take them forever? What if the symptoms are gone and I don't know it and just keep taking them?
Has anyone else ever been able to stop the medications for your symptoms without having problems?
I also take Toprol XL and I you probably should consult the doctor about stopping anythingthat is controling your hypertension. My doctor has changed my amounts off and on for the4 years I have been on it. Sometimes 50 sometimes 100mg. It depends how my twice a yearexam goes. Once he even took me off it, by going 100 for a week, 50 for two weeks and 25another two weeks. Then I had a month off, but when I returned he put me back on it. Mypressure just wasn't where he wanted it. I can imagine that stopping cold turkey could havepretty harsh reactions and is dangerous. This is one that I will probably on the rest of my life.
I also take stuff for my hiatel hernia.....gastric reflux. However, if I stop and need to go back toit, well it takes days to build up again. But I have skipped a day or two and sub previcid or somethingyou can take anytime you want. It depends on how bad you have heart burn. I have a friend thatjust takes Previcid if he is going to eat spicy italian food or Tex Mex. These are the only foods heknows he will pay for if eaten.
As far as the symptom meds for the MS, it seems to me that a simple call to your Neuro or their nursewill get them stopped or " at your Discretion". All my symptom meds except my anti depres and my injections, is "at yourDiscretion" now. Even my injections are at my discretion as to where I inject. I no longer inject in my legs for instance.
We have talked endlessly about how important it is to have a good working relationship with the med teamslike GP's and Neuro's. It seems to me, that you would be taking an awful chance by going cold turkey on anymedicine without consulting with a doctor.