I voted yes. Here are some random thoughts I hope you consider:
1) You're a NURSE. Would you advise your patients to not tell your doctor everything that is going on with them? How can the doctor begin to help you learn to deal with your disease if you don't tell her what is happening? Just as you do with your patients, you need to develop a list of most troublesome symptoms and if you're afraid to voice those to your doctor, then hand her the list.
2) You're a nurse. You probably have access to many more medical journals than I will ever encounter. If you do a bit of reading in some of those, you'll learn that "remission", when it comes to MS, does not always mean a complete absence of symptoms as it might with some other diseases that also "go into remission". "Remission" in MS very often means a lessening of symptoms, a reduction in intensity of symptoms. Once the damage is done to the central nervous system, once the myelin is destroyed, the disability...the symptoms...remain. They may lessen in intensity over time, and then intensify other times -- particularly when you spend all day on your feet, "grocery shopping and cleaning, and having a BBQ". You noted that you sit a lot at work -- so don't notice or pay attention to the fact that your legs are weaker...but it becomes obvious when you're on your feet all day, at home.
3) People can be diagnosed with secondary-progressive MS at the start. Sometimes it means that indeed you've had MS for some period of time before you sought medical help (and a diagnosis). Sometimes it just is that your particular "case" is that you have spms. But it sounds to me like you probably do have relapsing-remitting MS, but are just hoping that "remitting" means an absence of symptoms...and while some folks do talk about that, all the folks that I've known who have MS will report that they've never had a complete absense of symptoms,
but have always experienced some symptoms. Fatigue is common -- you may have to consider working fewer hours. And while you're seeming to cope now with keeping track of all you need to, to serve your patients, that might become a problem in the future, so you might want to think about how to deal with that. It's easier to think about work accommodations now, before it's a crisis, than later, should you have a major exacerbation and be unable to work.
This may sound kind of airy fairy to you but maybe not. I wonder if you have ever tried a cleanse or considered this. I had symptoms similar to you and they went full blown into left side paralysis. I had all the tests and second opinions. Then after the first bout of steroids I investigated and researched alternative therapies. I did this for over a year and got better despite what the experts were telling me. I appreciate Dr's, my boyfriend of 2 years in fact is in med school so I do think there is definitely a place for allopathic medicine, I just wonder if you have been exposed to alternatives. I had all my mercury fillings taken out, changed my diet and started to meditate. I watched this movie recently that was awesome called The Secret - you can order it from www.thesecret.tv and I also did a cleanse. www.endlessenergy.ca - this cleanse is different from those I usually hear about. The others are taking away lean muscle as well as fat but this flooded my body with nutrients while I cleansed and I felt awesome and continue to feel so every day. Hope this helps.