Update: Neuro Appt

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Sandy C.
Regular Member


Date Joined Feb 2006
Total Posts : 129
   Posted 11/9/2006 10:07 PM (GMT -6)   
Well saw my neuro today. She is a good neuro, i think I got lucky on many levels with her! Knowledgable and compassionate as well as understanding yet firm!
 
Well, she said I am currently in a Relapse and she insists that I start the rebif now, regaurdless of my concerns of the terrible side effects I had when I took betaseron. This is my last semester and I get my BSN in December, I feel like the rebif has the potential to pull my focus and drive away from my goal that is sooo close!
 
I will be taking solumedrol for 3 days via a home health nurse to speed up the recovery time of this relapse.
 
She has placed my on short term disability and has taken me off work for 3 weeks.
 
I have been switched from welbutrin to Cymbalta and taken off the Baclofen and aricept.
 
In the morning I am getting several labs drawn including one to check corticol level which checks for addison's disease (I insisted on this even though she remineded me several times that I ahve MS and I don't have lesions near my pititary. I told her addisons is treatable and MS isn't, but I really think there she didn't change her mind about why I am so tired, I HAVE MS lol)
 
In three weeks I return for a follow up. Yes, I think this is all. Printing up previous posts really helped me to address all my concerns to my neuro in the 40 minutes that I spent with her today.
 
In the assessment part she repeated a few tests such as the walking 25 feet, and the reflexes in my right hand. Not sure why the walking test, but she did say that I had hyper-reflexes in my right hand.
Sandy C.
Diagnosed with Multiple Sclerosis September 2003 currently taking Aricept 10mg PO QD, Welbutrin XL 300mg PO QD, and Provigil 200mg PO BID.


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 11/10/2006 8:15 AM (GMT -6)   
She may have repeated the walking test because she might have seen something in your walk into her office that focused her attention on that. (When I was first diagnosed, my neuro told me later that he was pretty sure I had MS just by the way I walked, when I came into his office. He took three months to complete other tests before telling me, though.)

Or she may have repeated the walking test because MS very often shows up first in someone's legs, and is evident to a doctor even before a patient realizes it.

Or she may have repeated the walking test because one of the things you reported was difficulty walking and standing.

At any rate, it sounds like a good and thorough exam, and she was willing to listen to your concerns and try to ease your mind about the Addisons thing.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


pegleg
Regular Member


Date Joined Oct 2006
Total Posts : 257
   Posted 11/10/2006 3:31 PM (GMT -6)   
tongue  andy C:  I had the IV steroids x 3 days (solumedrol) followed by 6 wks of oral steroids to taper down.  Be prepared to gain a little weight (not too bad) and have an appetite of a horse!  Just keep plenty of fruit and raw veggies for snacking and the weight gain is very minimal.  You may also have headaches and hot flashes (I did).  All in all, it was one of the best things I ever agreed to.  I had to use a cane and sometimes still hold onto the wall for walking.  Right after the 2nd IV I saw a tremendous difference!  I could walk straight and had more energy.  If you are graduating in December, this is probably the ticket you've been waiting for. yeah tongue    GOOD LUCK!  Be prepared for a very pleasant surprise! tongue

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 11/10/2006 4:54 PM (GMT -6)   
Hi Sandy,
 
    Sounds like a great appointment and you have a caring doc that listens.  Hopefully the solumedrol will help end this flare quickly so you can get back to feeling better and concentrate on your studies.  Please keep us informed on how you do with the med change.  Take good care of yourself!
 
Kimber
 
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