Hughes Syndrome, anyone???

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uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 11/22/2006 6:57 PM (GMT -6)   
I was hanging out on another MS forum and somebody mentioned "Hughes Syndrome"...
 
which I'd never heard of, so I went googling and came up with this site:
 
 
It strikes me that some of you in limbo -- with gastrointestinal problems that seem unusual for MS -- might check this out.  A lot of similarities...and yet some distinct differences, but it might be something your doctor hasn't considered!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


mommyto3
Regular Member


Date Joined Nov 2006
Total Posts : 94
   Posted 11/26/2006 9:08 AM (GMT -6)   

Hi uppitycats-

Thanks for the great information! I definently will be asking my rheumy and neuro about this, very interesting. I popped over from migraine. I do tend to look a little at MS, lupus, and lymes, as I can somehow relate to them. I was given a dx 6 months ago of probable MS, another neuro ruled out this. My grandma had lupus, so it's still game. My first lymes test came back equivocable (sp?), and western blot negative according to rheumy. I have many things going on at once and the doctors are trying to sort through, paralysis and weakness on one side they have attributed to my migraines, so that is why I hang out that board. I also have arthritis, fatigue, and am 28.

When I pulled up the symptom list of Hugh's so many fit me, it was weird. The skin thing--wow! I have had so many tests done--the rheumy keeps seeing it and says well it could be Raynauds, but it looks very mottled (just like the picture), even my doc was stumped. It is the weirdest looking thing, and my skin is soooo cold, they would page the doc when I was in the hospital and rehab, because it was the weirdest thing (I have it documented all over my charts).

The memory loss, migraines, visual stuff, pregnancies, confusion with ms (if I understood that right), etc.
 
Wow, it may be worth a shot with the docs. My doc wanted me to get a second opinion and referred me to a different rheumy on the lymes, lupus, well just all of it--I am going next week. I wonder if it also explains why some of my problems are better when I am on a blood thinner like now to reduce my risk of stroke.
 
Thanks uppitycats for the great info-I have read many of your posts and have always found them very informative! I just joined the migraine forum a few weeks back and wasn't sure until recently if we could post on more than one. Take care!
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