going to be tested for MS need some input please

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freezinginAK
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Date Joined Nov 2006
Total Posts : 1052
   Posted 11/23/2006 1:10 AM (GMT -6)   
  Well here I em not really knowing where to start, I was told by my doc. that I need to be checked out for MS, I know you have heard the samething over and over again. I hate the fact that I may have to put another notch on the old pole, but here go's
1. I know I have diabetes
2. I have anxiety disorder but have not have a p/a in years
3. chemical sensitivity from over exposure to chemicals
4. I have chronic fatigue
5. I have to take a nap daily from fatigue
6. a shocking sensation in my eyes and head that go down my body
7. lost of fine motor skills
8. pain that comes and go's even on pain killers
9. numbness in my arms
10 body tremors
11. uncontroled movements of limbs
12. gastro-intestinal disorder
13 mri that showed I hade cns damage 12 years ago
14. memory lost (short term) and so on
 
  Are these really signs of MS and what kind of testing is going to be done?
 
 

cocobean
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Date Joined Apr 2005
Total Posts : 538
   Posted 11/23/2006 2:11 AM (GMT -6)   
When I was tested, I had evoked potentials studies, MRI done.  Both were normal so they did not proceed with spinal tap.  I have not been diagnosed with MS but possible fibromyalgia.  Are you getting your testing done in Alaska?  If you can I would reccomend seeing a MS specialist in Seattle at Virginia Mason.  It is worth the 400 dollar or less plane ticket.  You can call them ahead of time to schedule the apt and let them know you are coming from out of state and they will schedule it so you can have your testing done in a day or two to help expedite your trip.  I saw a neurologist in Anchorage at first to be tested for MS and she was awful, arrogant, and wanted to keep me on xnanx,,and I mean a high dose that I couldn't even function on.  See an MS specialist!  Virginia Mason in Seattle downtown clinic.  Dr. Kita.  Virginamason.org I think is the web address where you can get the phone number.  You will most likely need a referral from your general doctor.  Good luck.  Evoked potentials test don't hurt..a little uncomfortable some parts but no real pain, MRI no pain at all.

freezinginAK
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Date Joined Nov 2006
Total Posts : 1052
   Posted 11/23/2006 2:31 AM (GMT -6)   
  Yes I live in Alaska in a small town here and I really don't feel that my doc really knows that much or cares to I have though of go to seattle for it, I didn't feel that good about the doctors in anchorage when I first got chemical overexposure to paints but are these things apart of MS?

uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 11/23/2006 7:17 AM (GMT -6)   
freezinginAK said...
  Yes I live in Alaska in a small town here and I really don't feel that my doc really knows that much or cares to I have though of go to seattle for it, I didn't feel that good about the doctors in anchorage when I first got chemical overexposure to paints but are these things apart of MS?


Hello. When you ask "are these things a part of MS" -- I'm taking that to mean the symptoms you listed (not the chemical exposure, which is a separate issue...but which can cause some of the symptoms you're experiencing, too.)

The problem is this:  There are LOTS of disorders, some neurological in nature (like MS, like the chemical exposure you've suffered)

and some metabolic -- like the diabetes you already have

that can cause similar symptoms.  And in order to make any sort of diagnosis and start you on treatment, the doctor has to determine what exactly is causing the symptoms. 

  There is no one specific determining test for MS, unfortunately, so it's a matter of testing to eliminate or factor in other disorders.

Given your rather complicated medical history -- the chemical exposure, the diabetes -- I think it even more critical that you indeed get to an MS specialist somewhere. I know a couple of folks in Alaska who head to Seattle for care, so you might really consider that.  Be sure to take along any medical records you have already, from your current doctors (or when you set up the appointment, give the Seattle folks the names and addresses of your cureent doctor and they can request the records be sent to them.)

As Jen said, you'd be given MRI's of your brain and probably your spinal chord. I don't know why they didn't do a spinal tap on her..generally if the MRI's come back "normal" and the patient is still experiencing symptoms, the spinal tap is next on the list, as that can show not only whether you might have MS, but also if there is some other problems somewhere in your body, like an infection of the central nervous system.  You'll also undergo lots of blood tests to try to rule in or rule out other things.  And maybe a referral to a rheumatologist, or someone trained in chemical exposure and its long-term effects, to see if what you're experiencing might be related to that. They'd need a complete medical history, so you might want to start now, writing down dates when you were exposed to chemicals, when you were diagnosed with diabetes. Also make sure to take along any meds you're already on -- sometimes drug interactions can cause physical problems, too.

 

Good luck! Let us know how it goes.


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


cocobean
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Date Joined Apr 2005
Total Posts : 538
   Posted 11/23/2006 10:43 AM (GMT -6)   
I hear you about the doctors in Anchorage also. Believe me it is worth your time and money to go to Seattle. The doctors are much more professional and they are exposed to more people than the doctors in Anchorage. They didn't do a spinal tap on me because she believed that my symptoms were more like periphial neuroapathy than MS. So I am having a muscle nerve biopsy done in about six months. I have had 2 MRI's of brain and spinal cord in 2 years and both normal. NO sign of anything. TONS of blood work and other test all normal so she believed that at this time a spinal tap is a little more invasive and she just really didn't get the sense that I had MS. I really hope you do make the descion to go to seattle and see the specialist. At least then you know that you are getting an experienced opinion. Also if they don't believe you have MS they can refer you to a doctor who ha dealt more with pataients who have been exposed to chemicals. I felt lost and back to square one when seeing the doctors in Anchorage. You won't feel that way after going to seattle. Good Luck again!

freezinginAK
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Date Joined Nov 2006
Total Posts : 1052
   Posted 11/23/2006 12:33 PM (GMT -6)   

 From reading all your post I think I make the Seattle trip I got family there that I do need to see there anyways and came run me around.

How and where can I find these specialist I allready have most of my medical records now and I know that the chemicals I worked with years ago can cause MS as well as other things as I'm seeing more and more of the affects of the exposure coming about but my doctor just seems to be at a lost about it as I'm I

I really don't know that much about MS or even if I have it, but just from what I do have now can it be any worse then that. I'm not a worry wart and I don't just freek out but I really would like to know how bad it can be to have MS and yes I think that the oil companys here have lined there wallets well. 

Thanks you all for posting and happy thanksgivings to you all


Post Edited (freezinginAK) : 11/23/2006 11:52:26 AM (GMT-7)


cocobean
Veteran Member


Date Joined Apr 2005
Total Posts : 538
   Posted 11/23/2006 2:00 PM (GMT -6)   
206-341-1900 is the phone number to neurology at Virginia Mason Main clinic in downtown Seattle. The main clinic number is 206-223-6600. The web address is www.virginiamason.org The MS specialist I saw was Dr. Kita. She sees several patients from alaska. Happy Thanksgiving to you!

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 11/23/2006 2:51 PM (GMT -6)   
The chemical exposure and the MS are really two separate issues. It's not like -- all of us with MS have had chemical exposure in our past, or chemical exposure becomes MS...

it's more that -- both MS and some chemical exposure can have similar outcomes..similar disability..in a patient: weakness, nerve tingling, some paralysis, numbness, cognitive difficulties...and so on.

How bad can it be to have MS? It can be bad...or not so bad. Hard to tell..depends on each individual. But again, with your complications of chemical exposure -- which can cause MANY of the symptoms you describe..and diabetes..which can cause some of them -- you really need to let a doctor experienced in these things, sort it all out.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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