neoropathy and MS

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

rochestergal
New Member


Date Joined Dec 2006
Total Posts : 7
   Posted 12/2/2006 8:00 PM (GMT -6)   
Hello all,
 
I just discovered this website while trying to do some homework on a current issue.  I hope I can be of help to others here....
 
Question - do any of you deal with neuropathy in your legs as a result of your ms?  I have had problems with this for the last 3 years, and it flairs up when the weather turns cooler.  From about mid-thigh through my toes, if anything cold touches my leg, it is extremely painful.  When it is really bad, just having my clothing brush against it is enough to set it off.  Does anyone have any suggestions for dealing with this?  My doc suggested silk socks meant for diabetics, however those only cover the feet.  I really need to treat the entire leg.
 
Help!  Any useful suggestions that have proven to work for others would be greatly appreciated!
 
 

dx in 1998
on Avonex since 1999


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 12/2/2006 9:12 PM (GMT -6)   
Hey Rochestergal

Welcome to the board! I see u've been dx'd since '98, so i bet u can be LOTS of help to us all. Make u'rself at home and feel free to post often!!

I'm sorry, no experience with the issue u describe here, but hopefully some others will be along soon to offer their input. I do have probs with my legs...pain and weakness and such...but nothing as u say. Are u taking anything for the pain or would it help since this sounds like it's intermittent? I"m very sorry u'r having to deal with this and do hope it gets better for u soon. Again, welcome to the board and i hope u'll find this is a helpful and supportive place for u.

rhonda

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 12/3/2006 2:15 AM (GMT -6)   
Hi Rochestergirl,
 
   Welcome to the Healing Well :-) My husband has neuropathic pain with his MS pretty much like you are describing.  His is pretty much all the time though, but like you it does get worse in the cold weather.  I'm not sure if you've tried any meds for it or want to but sometimes the immunosuppressive meds like predisone can help with that problem.  Thats the only med that seems to work for him, and he only takes it when it gets really bad,  but his doctor also had him try gabapentin and amitrityline which apparantly work for some folks too.  
 
   You might also try sticking to the softer fabrics like silk or fleece on your legs since anything touching your skin hurts sometimes.  We also line our couches and chairs with fleece blankets to make him more comfortable. 
 
   Good luck to you and I'm sorry you have to deal with that type of pain.  Keep us updated.
 
Kimber


 
Allow Healing Well to continue to help others, clink link for details

rochestergal
New Member


Date Joined Dec 2006
Total Posts : 7
   Posted 12/3/2006 6:55 PM (GMT -6)   
Thank you for your input! I am hoping to find a non-medicinal approach for this first. Steriods leave me with stomach pain that is out of this world, so I won't touch them unless I have tried everything else, and it is my only hope. This is going to sound silly - but I am almost looking for something like a giant silk leg-warmer that will cover most of my leg, and can be worn under my work clothes. I wear suits to work every day, so this adds a bit to my challenge.

Maybe someone has either seen or heard of such a thing?

Lisa
dx in 1998
on Avonex since 1999


mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 12/3/2006 8:04 PM (GMT -6)   
Hi rochestergal!!!  I was just dx'd in Sept. of this yr and have no suggestions for u.  I was put on Avonex in Nov. and seem to be tolerating it pretty well.  I have Few side effects (chills and fever).  However, I have noticed that my legs and arms have started hurting since I started on it.  The pain is mostly on my left side but my right leg hurts also occassionally.  Is this a side effect or just a symptom of the ms?  I thought that since u have been on it for so long u were the person to ask.
 
Btw, welcome to the board.  I don't post very much, but I do read them because I have a lot to learn about dealing with ms.
 
Sheila

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 12/3/2006 8:16 PM (GMT -6)   
Hi Lisa,
 
   I was able to find a few things by doing a google search for "diabetic support hose".   I was going to suggest longjohns but i don't think that would look too attractive with a dress suit, unless you wear pants suits?  Good luck and I hope you find something to help!  
 
Allow Healing Well to continue to help others, clink link for details

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 12/3/2006 8:42 PM (GMT -6)   
Hey Lisa

If u go to Cabelas.com (hunting goods site!) and look for the 'longjohns' section....u'll see some silk long johns. My husband has a pair and they aren't real tight, but he ordered them to be loose. They're really soft and i think may be helpful to u. U can order both top and bottoms or just the bottoms. I'll see if i can find an exact link, but until then u may want to try looking as well and see what u think.

rhonda

rochestergal
New Member


Date Joined Dec 2006
Total Posts : 7
   Posted 12/4/2006 7:32 PM (GMT -6)   

Funny you suggest that - I dug out a pair of Duofold longjohns I purchased from Cabelas last year, and they are working great for around the house.  They are very thin and partially made of spandex, so they are not moving around when I move, therefore rubbing against my leg to aggrivate it.  They won't cut it for work though as I don't exactly thing it would look very professional!  :-)

I will look for some of those diabetic hose - it cannot hurt, can it? 

 

Mesea - I have not experienced any increase in pain tied to the Avonex.  My understanding is pain, otherwise unexplained, is a predominant symptom of MS, along with numbness and fatigue.  In 1998 I had a horrid bout of optic neuritis.  It was the most frightening thing I have ever experienced as for about a month I could barely see.  My boss at the time did not believe me.  Optic neuritis not only disrupts your ability to see, but causes stabbing pain in your eye(s).  Fortunately for the most part my vision came back.  There are days when the pain comes back, although not nearly as intense, or my vision becomes "dim".  Although not everyone who gets optic neuritis has MS, I was immediately tested as my father has it.  Consequently I moved rapidly into care.  Thinking back once I was diagnosed, I had been experiencing symptoms for years, yet never associated any of them as having a common cause.  Stick with it Mesea - I would be more than happy to talk about Avonex more with you if you wish.

 


dx in 1998
on Avonex since 1999


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 12/4/2006 10:41 PM (GMT -6)   
Hey RochesterGal

Here's a link to the silk underwear that i mentioned above. They're 100% silk, so shouldn't adhere to u as spandex does. Even if u can't wear them to work, it may be helpful to know about them for other times...also they're on sale!! :))

http://www.cabelas.com/cabelas/en/templates/pod/horizontal-pod.jsp?_DARGS=/cabelas/en/common/catalog/pod-link.jsp_A&_DAV=MainCatcat601085-cat21192_TGP&rid=&indexId=cat21192&navAction=push&masterpathid=&navCount=1&parentType=index&parentId=cat21192&id=0009139

rhonda

mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 12/5/2006 7:47 AM (GMT -6)   
rochestergal,

That's exactly what my right eye feels like except along with the blurry vision unless I look straight at something I see double. I didn't know what it was at first. I've worn glasses since7 grade and just thought my vision was getting worse. Like you I can look back over the yrs and see other things that I didn't even pay attention to. I don't have much time I'll tell u more about my situation later. I have to get ready for work.

sheila

rochestergal
New Member


Date Joined Dec 2006
Total Posts : 7
   Posted 12/9/2006 6:36 AM (GMT -6)   
Thank you all!  I am going to order some of both those pants, and they have some silk over the calf sock liners as well.  Hopefully between the two it will help!
 
Sheila - if you want to talk more about either the avonex or the neuritis, let me know, and I will give you my email.
 
dx in 1998
on Avonex since 1999

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, October 24, 2017 3:44 AM (GMT -6)
There are a total of 2,886,463 posts in 316,716 threads.
View Active Threads


Who's Online
This forum has 157812 registered members. Please welcome our newest member, ghsebdw07.
682 Guest(s), 3 Registered Member(s) are currently online.  Details
ghsebdw07, jmadrid, ZoeUK1989


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer