"Rippling" leg muscles and weird test results

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Lisa Smith
Regular Member


Date Joined Oct 2006
Total Posts : 76
   Posted 12/13/2006 2:02 PM (GMT -6)   
I'm new to this forum, but for quite awhile, I spoke to the Lyme forum.  Here's my background.  I know the symptoms are very similar, but my Lyme test came back with only a positive 41 band, which I know means I could still have Lyme.  My initial reasoning was that I had been camping, was bitten by what I thought was a spider and then developed ringworm and a lot of strange symptoms very shortly thereafter. 
 
So, my thoughts are this:  I read that some folks with MS have some kind of event prior to their first thought that something may be wrong.  I wonder if a severe bacterial infection like the ringworm, which I'm still fighting, could have gotten it started.  There are a couple of things that have been going on for a few years, such as blurry vision off and on in my right eye (which I thought was glucose related) and my right arm going numb (which I thought was from too much typing).  Then a few months ago, suddenly (and I mean within an hour) it felt like somebody was stabbing my left foot with an icepick, it then ran up my leg and then to both legs, then to both arms, then I started getting vertigo and confusion.  This went on for a couple of weeks.  Some other things have happened as well (headaches, backaches, loss of concentration, excessive thirst, etc.), but most symptoms are virtually gone with the exception of very sore leg muscles - from my butt to my feet, and this almost constant "rippling" of my leg muscles.  I do get, but very rarely, "zingers".
 
I'm wondering about the pertinence of having a positive band 41 and the ringworm.  Has anyone had a Lyme test or gotten a positive band 41, but didn't have Lyme?
 
I am in shape - I rollerbladed most days, walked, ran two miles every other day, the kids couldn't even keep up with me.  I actually still feel much better when moving than when sitting still as long as I don't overdo it.
 
My doctor wanted me to get an MRI and leg muscle probe (forget what it's called) ASAP, but am waiting for the new year due to insurance reasons.
 
So, any thoughts?
"May the most you wish for be the least you get.  May the best times you've ever had be the worst you will ever see."


Mezazinine
Regular Member


Date Joined Aug 2006
Total Posts : 100
   Posted 12/13/2006 4:04 PM (GMT -6)   
Hi,

The folks in the lyme forum can tell you more about lyme testing than most of us here can. I do know that the results of lyme and other infectious diseases can change over time. If you were tested recently after being infected, then your body may have not had enough time to build up the antibodies that these tests are measuring and thus may initially be negative. Also, different results can be obtained from different labs.

Was the ringworm you are referring to actually diagnosed as ringworm?

Once you have your insurance issues straighten out, you should perhaps see a neurologist. There are many conditions that can cause your symptoms that need to be investigated.

Lisa Smith
Regular Member


Date Joined Oct 2006
Total Posts : 76
   Posted 12/13/2006 4:59 PM (GMT -6)   

I know all about the Lyme testing - getting ready to send sample to Igenex.  I read somewhere that MS can also cause band 41 to show positive on the IgG test and and wondered if anyone else had the test.  The two doctors I've seen both kept mentioning MS.  As I said, the last doctor insisted on an MRI immediately. 

The ringworm was diagnosed and was treated, just not as effectively as I thought.  It keeps coming back in one place.


"May the most you wish for be the least you get.  May the best times you've ever had be the worst you will ever see."


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 12/13/2006 8:14 PM (GMT -6)   
I've never had any sort of "band 41"results. Sounds like you have some sort of chronic infection of the central nervous system, or bacterial or viral infection. MS isn't either of those, of course, but is an autoimmune disease. I'd probably continue to get treatment for the infections that you know you have, and see if, once those are cleared up, you start to feel better. But of course Lyme disease can cause disability that is permanent.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Lisa Smith
Regular Member


Date Joined Oct 2006
Total Posts : 76
   Posted 12/14/2006 10:05 AM (GMT -6)   
Here is a link the what I was referring to regarding the IgG test for MS. They also give Lyme patients IgG and IgM tests.  I wondered if it was the same thing and if I was reactive on the IgG test, could that show early MS as opposed to early Lyme.  The rippling continues, the numb arm continues, the brain fog and nauseu continues, the blurry vision continues, waxing and waning.  ***sigh***

"May the most you wish for be the least you get.  May the best times you've ever had be the worst you will ever see."

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