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colee1979
Veteran Member


Date Joined Jul 2003
Total Posts : 667
   Posted 12/17/2006 7:20 PM (GMT -6)   
How often are you all "homebound" either by choice or because of health conditions?
 
Since I have been dealing with My Ulcerative Colitis so much this year I have about 5-8 days a month the UC almost forces me to stay home...maybe not all day,but it cuts me short alot. With the MS,mostly because of my head hurting or from excessive fatique...maybe 1-2- days a month I will stay in doors...just because it's easier to stay home then become drained from leaving. This past week I just couldnt get myself motivated to leave the house. I didnt want a shower,or to go outdoors. I wanted to sleep and mope. I hate feeling like that. But with the holidays I have been feeling sooo extra tired,and not wanting to do much of anything.
 
~Nichole~
 
Dx with Ulcerative Colitis September 2002
Dx with Multiple Sclerosis August 2006
 
 
 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 12/17/2006 9:32 PM (GMT -6)   
Hey Nichole

I can certainly understand how u feel. I'm not dx'd, but do understand the fatigue and moping. Some days u just wonder 'why", but that is a form of depression in me at least. I have to push some days, as i'm sure others do as well, and find some thing...whatever i can...to motivate myself to get up and get going. I guess for me it's my need to care for my girls and what they'll be lacking in if i don't do things, but whatever it is, find it and focus on it. Use that drive to get u'rself where u need to be. I do hope u feel better and the UC and MS give u a break as u need it. Try to have a great holiday season and remember that stress is gonna make things worse for u. Find ways to lower that stress level...let some stuff go and just enjoy the day for the day...and be the best u can be day by day. Take good care of u'rself and let us know how u are.

rhonda

tropical dreams
Regular Member


Date Joined Sep 2006
Total Posts : 76
   Posted 12/18/2006 7:00 AM (GMT -6)   
Hi Nichole,

I understand how you feel, it is awful. My fatigue was so bad that I went from working days (never a set schedule, one day would be 9-7:30pm th next day 6-4:30pm, one day off then work 2 or 3 etc) to nights which is a set schedule sat thru tues. That seems to work much better for me as I can just sleep and relax for 3 days in a row. There are some days when I need to do errands that I just can't I am soooo tired.
I work for a hospital and need to be careful about calling in, they will fire you, go figure! Needless to say I will drag myself in and if I am really bad they will send me home BUT it is recorded (I end up getting bronchitus so they send me home for that not knowing it is my ms). I need the insurance so I HAVE to work and I bought my house last june 05. We just have to push ourselves really hard some days just to get through it.
Rhonda is so right about the stress which adds to depression, so on those awful days I try to make a list of all the things I am grateful for at that moment like I have yummy ice cream, I have a good book to read, my best friend will call me later today, the sun is shining etc.
I do hope you feel better and anytime you need us we are here for you. Hope my 2 cents helped a little.

Carla
***Carla***
 
EVERY DAY I WAKE IS A NEW POSITIVE BEGINNING
 
Dx 08/02/06 MS
Betaseron
Citalopram
Gabapentin


frannie55
Regular Member


Date Joined Dec 2006
Total Posts : 29
   Posted 12/18/2006 4:56 PM (GMT -6)   

hi colee,

i've been homebound to the point of if i do/can go anywhere it's with my husband pushing me in wheelchair.  years ago i could use my walker with 'trusted' friends but its hard to depend on more people than needed. my wc is cumbersome enough i won't accept friends help as they mean well but know they can't pick up wc to even load!   i can see well enough and use my hands but not to the point of an electric wc.

i read when possible, refuse tv as i want to keep my mind active as possible.  discovered watercolor painting this past summer and is best homebound therapy i can advise.

 

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