OK, so went back to the specialist yesterday...My MRI showed a growth of lesions in the last two months plus cervical inflammation... So my diagnosis is definite... I am VERY scared...Doc said I have relapsing remitting but was frightened as to the sudden change in the MRI just in two months...Said I need meds ASAP...I will be starting Copaxone as that seems like the best option to me to maintain a normal lifestyle...Also, he said I need the IVY of steroids, which i will be getting done Jan 1,2, and 3.
I am scared.... I am scared of my future... I am scared of telling my family. I am scared... And I cant believe this could happen to me...i am 27. I strated my career last year and am doing so well as an attorney. I dont have kids yet... I want kids too... I am so scared!!! I wanted to know my diagnosis for sure, and in a way I am lucky I went to a new specialist who didnt want to wait for MRI's otherwise would have waited 6 more months! God knows what would have happened in 6 months...I REALLY PRAY ITS NOT PROGRESSIVE with such quick changes in my MRI....
I'm so sorry you've gotten confirmation of what you've likely suspected all along. And it's tough having to hear that sort of thing right now, when everyone around you is celebrating the holidays, too.
But it's NOT the end of the world, or the end of life as you know it! Lots of people continue in their careers, have babies, do all of that, while still dealing with MS (or other chronic illnesses).
It does sound like you have relapsing-remitting MS. Sometimes folks newly diagnosed will experience a series of exacerbations, and then it'll level off and not be so troublesome. And these days, with the new meds, there is every hope that once you get on one of them (and I see you're choosing Copaxone), the progression will be dramatically slowed, and you'll do well.
I've never done the intravenous (IV) treatment, so can't offer any insights there. I hope it goes well for you.
You have every right to be scared, by the way -- but I'd really urge you to tell at least some of your family and/or close friends. You might be pleasantly surprised at how supportive they might be.
And once the shock wears off, don't hesitate to be back with questions as you start down this journey. Take care.
Post Edited (rhondab) : 12/22/2006 11:04:22 AM (GMT-7)