I GOT DIAGNOSED YESTERDAY

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ConfusedGal
Regular Member


Date Joined Oct 2006
Total Posts : 77
   Posted 12/22/2006 11:16 AM (GMT -6)   

Hi all,

 

OK, so went back to the specialist yesterday...My MRI showed a growth of lesions in the last two months plus cervical inflammation... So my diagnosis is definite... I am VERY scared...Doc said I have relapsing remitting but was frightened as to the sudden change in the MRI just in two months...Said I need meds ASAP...I will be starting Copaxone as that seems like the best option to me to maintain a normal lifestyle...Also, he said I need the IVY of steroids, which i will be getting done Jan 1,2, and 3.

 I am scared.... I am scared of my future... I am scared of telling my family. I am scared... And I cant believe this could happen to me...i am 27. I strated my career last year and am doing so well as an attorney. I dont have kids yet... I want kids too... I am so scared!!! I wanted to know my diagnosis for sure, and in a way I am lucky I went to a new specialist who didnt want to wait for MRI's otherwise would have waited 6 more months! God knows what would have happened in 6 months...I REALLY PRAY ITS NOT PROGRESSIVE with such quick changes in my MRI....


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 12/22/2006 11:40 AM (GMT -6)   

I'm so sorry you've gotten confirmation of what you've likely suspected all along.  And it's tough having to hear that sort of thing right now, when everyone around you is celebrating the holidays, too.

But it's NOT the end of the world, or the end of life as you know it!  Lots of people continue in their careers, have babies, do all of that, while still dealing with MS (or other chronic illnesses).

It does sound like you have relapsing-remitting MS.  Sometimes folks newly diagnosed will experience a series of exacerbations, and then it'll level off and not be so troublesome. And these days, with the new meds, there is every hope that once you get on one of them (and I see you're choosing Copaxone), the progression will be dramatically slowed, and you'll do well.

I've never done the intravenous (IV) treatment, so can't offer any insights there.  I hope it goes well for you.

You have every right to be scared, by the way -- but I'd really urge you to tell at least some of your family and/or close friends.  You might be pleasantly surprised at how supportive they might be. 

And once the shock wears off, don't hesitate to be back with questions as you start down this journey.  Take care.

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 12/22/2006 11:51 AM (GMT -6)   
Hey ConfusedGal

I'm so sorry!! I guess u knew and it's good to know for sure...no doubt...but to hear the words and face it without any question must be so terribly hard. It's by no means the end of the world for u tho. So much in life lies ahead of u, even with ms or progressive ms. Now u face how to tell u'r family. I'm not in u'r shoes nor do i know u or u'r family personally, but it seems like for sure the thing to do may be to go ahead and face this head on and deal with it and them. I know in my situation my family would want to know and be able to support me. I bet that's the way it'd be with u'r family as well. U'll know what's the right thing to do and how is the right way to handle it. As for work, i heard someone on here advise about that situation once a long time ago. There are many considerations with work. I'm sure u'r aware of the disabilities act and how that works, but just be prepared to know what (if any) assistance u may need (slower pace, etc) before addressing this with u'r employer. Others here will be much more suited to help with anything regarding work should u need it. Just know for sure u'r not alone. We'll hold u'r hand thru all this and help u find the way to make things the easiest they can be for u. I'm so glad u'r going to start the Copaxone right away too. In time this will all sink in and u'll start to see that even tho this is devestating to u now, it's going to be a hurdle u can overcome. Keep talking to us and go to u'r family when u can and give u'rself time to accept this and see the wonderful things still ready to happen for u.

rhonda
 
 

Post Edited (rhondab) : 12/22/2006 11:04:22 AM (GMT-7)


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 12/22/2006 1:58 PM (GMT -6)   
Hi There ConfusedGal -
I just spent the last hour searching back in the forum and reading your history of thread posts. I have just been on the rollercoaster ride of my life in this last hour reliving what you have been going through for the last 2 months boiling down to yesterday. I have no words of wisdom like uppitycats and the others, they really know their stuff. But just from what I've read in the last week from these wonderful people they all will be here for you and if I end up in the same boat after the multitude of tests that I have scheduled in the upcoming weeks, save a life preserver for me and I'll help ya paddle up the creek! Nothing I can say will help the fear go away, but I know everyone here will be here for you, as well as I'm sure your hubby will. You're in my prayers.

my5cats
Regular Member


Date Joined Dec 2005
Total Posts : 67
   Posted 12/22/2006 2:56 PM (GMT -6)   
I'm so sorry to hear how frightened you are!  You are way better off now that you know what is going on and can combat it with the Copaxone.  You are now in charge.  When you do nothing, the illness is in charge.  You don't have to run out and tell everyone you know about it.  Tell whomever it feels right to tell.  It isn't like you will look different or act different to others so don't tell them if you don't feel like it will be well received.  Your family and close friends will support and love you no matter what.  As for the steroids...I spent last Christmas on them.  I felt great!  The couple of days after the iv was done, I was so cranky that even I noticed it though.  I had the worst episode of road rage that I had ever experienced before I realized it was steroide rage...lol  I understand that most docs wean you off with oral steroids after the iv.  I would ask my doc for them if I ever had to do it again.  It really does help!  Keep your chin up and know that there is a whole group of people here who are always around to listen and help.  They got me through last year at this time.  I know that they will do it for you too and maybe this year I can help.  Have a very merry whatever you celebrate!

tropical dreams
Regular Member


Date Joined Sep 2006
Total Posts : 76
   Posted 12/22/2006 4:20 PM (GMT -6)   
Confused girl, I am so sorry about your dx but it is better to know so you can be in charge of this illness. I was so afraid to tell my, friend and work. I was VERY surprised of ll the love and support that all has given me. Work has been wonderful, they ask me so many questions and make sure I am doing ok. My family well, there is enough words to describe how much closer we have all become. I wish you well and please don't be afraid to ask for help. We are here for you.

Lots of hugs and prayers for you
Carla
***Carla***
 
EVERY DAY I WAKE IS A NEW POSITIVE BEGINNING
 
Dx 08/02/06 MS
Betaseron
Citalopram
Gabapentin


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 12/22/2006 4:49 PM (GMT -6)   
  Even though it's something you suspected all along, its quite normal to be scared when you actually hear the words.  I'm sorry that you have to go through all this, but everything will be ok!   Give yourself some time to adjust and tell those that you feel really need to know when you are ready to do so.  Your family and friends can be a world of support to you.  Let them help if they offer, and don't be afraid to ask for help if you need it.
 
  A lot of what ifs might be pouring through your head right now, and it's perfectly normal to be scared about the future.  A lot of people with MS still continue to work and have families.  Even those that can't work can still live very happy, productive lives.
 
  I'm glad you're starting on an injection therapy to slow down progression.  We have several people here on Copaxone should you have any questions about it.  My husband has been on it six years now and does quite well.
 
  Take care of yourself, enjoy your holiday, and if you ever need to vent or talk we will be here for you.
 
Kimber
 
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BGD2Me
Regular Member


Date Joined Apr 2006
Total Posts : 366
   Posted 12/22/2006 5:02 PM (GMT -6)   
Everyone has given you great advice. Try to take it one day at a time. We'll be here to support you.

Lysha
When everything's coming your way, you're in the wrong lane.


mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 12/22/2006 7:38 PM (GMT -6)   
Ditto everything here. I'm sorry about your dx, but now that u know u'r in control. We're all in ur corner and understand the fear and devastation of hearing the words. We care abt u and will be here when u need us.

Sheila
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