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mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 12/26/2006 4:21 PM (GMT -6)   
Well folks,
 
Today I'm having my first real bout of fatigue since I found out that I have ms.  I've been tired and sleepy because I don't sleep well at night, but today is an entirely different thing.  I was standing a while ago making lunch and it seemed that my legs could hardly hold me up.  I haven't felt this tired since I went on my thyroid medicine.  I know there's nothing ya'll can do or advice ya'll can give me really.  I just felt like telling someone how I feel.  I've been saying I was tired before but I've never felt exhausted like this befroe. 
 
Thanks for just letting me tell you about any new symptoms that I have and for caring enough not to say "Well, I'm tired too".  I don't think anybody (friends,family) that I know actually understands except the people I've met through this board.  My sister really cares about me a lot and would do anything she can to help me, but everytime I mention another pain or symptom she says, "oh I get that it's nothing."  She has a lot going on with her healthwise as well so I don't say anything but it really kind of hurts my feelings.  My friends try to tell me things they have heard or read that will help me (the diet coke thing) which is wonderful that they want to try and help but that's what I have a dr for.  I just want them to say that's a horrible disease but I love you anyway.  I guess ya'll can tell I'm depressed today as well.  I won't go to family or other friends about this and am very glad to have found all of you.  Thank you all for being here.
 
Bye,
 
Sheila

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 12/26/2006 4:57 PM (GMT -6)   
The MS related fatigue can be a real challenge, as it'll come on unexpectedly..you think you've had enough rest, you thought you planned your day accordingly...then WHAM!!...you're hit with a wave of fatigue, and about all you can do is stop what you're doing, and at least sit down, if not lie down for a nap.  Bummer.
 
One more week, we're through this holiday stuff, and back to a more normal routine and schedule. Hang in, there...
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 12/26/2006 5:54 PM (GMT -6)   
Just wanted to say we are here for you Sheila, anytime!  Sorry you are feeling a bit down and have to deal with that awful fatigue sad Hope tomorrow is a better day for you!
 
 
 
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rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 12/26/2006 7:57 PM (GMT -6)   
Awww Sheila, i'm so sorry. I've been right where u are and i know it's tough! Hang in there. It does pass, tho may take some time. Be prepared to make the adjustments to give u'rself time to rest thru and get thru this. No matter the amt of sitting i do during this kind of fatigue, it's still there, but still sitting and resting is best at this time. U just don't have strength to do much more...no sustained anyway. If it persists and u see a pattern of it or feel it's not letting up any, u may want to discuss some sort of med to help u get past this. Some here use Provigil and have had great success with it. There are other meds as well and u'r doc can advise u on them. Take good care friend and know i'm thinking of u and praying for u'r good days.

rhonda

tinydancer
New Member


Date Joined Apr 2006
Total Posts : 10
   Posted 12/26/2006 8:44 PM (GMT -6)   

Hi all,

Sheila, I know where you are  in all this and I so feel your pain, I have this all the time. The feeling that your legs are just not going to hold you up any more. My doc is always telling me you have got to learn to pase yourself, and just say no sometimes when people want you to do more than you can. You have to take care of you.

I too have family who just dont want to hear what I'm going through, they ask but they really dont want to know. The people on this forum do want to know so share, we are always willing to to lend a ear, I know they have gave me great advice. So consider us your MS sisters and brothers we will understand all you tell us. And if we dont have any answers, we will just let you say what you need to say.

 

Your friend in the MS world

tinydancer, :-)


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 12/26/2006 9:43 PM (GMT -6)   
Tuesday p.m.
 
Good evening, Miss Sheila:
 
...no one can understand the depth of MS fatigue unless you are another MS patient.
 
It is by FAR the most frustrating symtom of MS which I have experienced in the 19 years since I have been diagnosed.
 
Not close friends or relatives can understand...but all of us here at Healing Well sure do...
 
I take a script...Provigil....twice a day....Good Luck    John

AnitaLynn
Regular Member


Date Joined Mar 2006
Total Posts : 75
   Posted 12/26/2006 9:45 PM (GMT -6)   
I hope you have a better day tomorrow. I think most of us with MS understand what you are going through. It just sucks.
I totally agree with you about when you try to explain to people what it feels to be tired and they just think it is trivial, or not that important. So most of the time when a person asks how I am doing I just say I am fine because they really won't understand anyway. THey just say go to bed earlier or rest more. They just have no clue! Sometimes relaxing makes the my fatigue worse and I go to sleep and miss the whole day!!! My son says I can sleep for days and days and actually that is true.

I believe most people don't understand what we go through because they can't see how tired we are, they only see when we limb or stuggle to see sometimes but the tiredness is invisible.

mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 12/27/2006 7:36 AM (GMT -6)   
Thanks guys!  I feel a little better this morning.I'm still tired but not as bad as yesterday.  I'm having some vision problems,but not real bad.  I'm going to work but may leave early if I get to fatogued.
 
Bye!!!
 
Sheila

mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 12/28/2006 7:42 AM (GMT -6)   
I'm feeling better today. still somewhat fatigued and depressed but not as bad.  Thanks for being around when I need to talk.  I haven't quite got used to the idea of having ms and even just reading other posts helps me a lot.
 
BYE!!!
 
Sheila
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