Went for bloodwork today, scared

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Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 12/26/2006 6:44 PM (GMT -6)   
Well today I went for bloodwork that my neuro sent me for.  The one test was SPEP/IPEP, I looked this up, its to look for multiple myeloma, now I'm really scared.  I just had the ESR done in April this year, it was normal, the same as my CBC.  They also drew blood for ANA, Lupus, EBV titers, and something else that has to do with the heart.  I am really scared now, and the best part about it is that my neuro isn't in until Jan 8th.  Great!!!  Now I have to sit and worry some more.  If I had multiple myeloma, wouldn't I have more severe symptoms than I have had the last 6 years.  I guess after this bloodwork comes back she may want to do a LP.  Well they took 9 tubes of blood, so we'll see.  If something was wrong would they get in touch of my neuro or PCP right away?  Hope everyone had a great Christmas!!!!

uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 12/26/2006 8:11 PM (GMT -6)   

They're doing all these blood tests to RULE OUT various illness...not presuming that you have them. So think POSITIVELY. 

Sure...something seems not right.  But the chances are, that ALL these test will come back "negative", meaning you don't have these unusual illnesses, and what you might have is common, and treatable, and ordinary. 

Did you do some research on all the variants that migraines can have?  Sounds to me that many of your symptoms can be connected to having migraines....


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 12/26/2006 8:21 PM (GMT -6)   
Uppitycats, hope u had a great x-mas.  I asked the neuro about this, she said that it wasn't migraine related, but she did give me a script for Topamax to take.  I didn't get it filled yet, its very expensive and I don't have prescription coverage, so I have to wait until payday, which there won't be one of those, because I owe from Christmas, LOL.  I hope that everything turns out alright, I'll be uptight now til next week.  Your a great friend, Uppitycat!!!!!   Thanks for all your support, God Bless, Jen

tropical dreams
Regular Member


Date Joined Sep 2006
Total Posts : 76
   Posted 12/27/2006 2:09 AM (GMT -6)   
Jen, I understand what you are going through. For me it all started with a blasted headache that was so bad I couldn't see. Doc checked me out and immed sent me for a CT (cat scan). I had 12 viles of blood the nx day taken out of me and every test immaginable done. I had to wait for 2 and a half weeks to find out anything. Most results were neg and I think it was Lupus that was boarderline. Saw a nero had mri's and LP was told had couple leisons and LP neg so not dx. When I moved here 2 yrs ago I was ref to a Nero, had more bloodwork and Mri"s and had more leisons and was dx. apparently my LP was pos and I should have been dx back in 03 and started on meds then.

Most likely your bloodwork will come back neg, try not to worry too much. We're here for you.

Hugs
***Carla***
 
EVERY DAY I WAKE IS A NEW POSITIVE BEGINNING
 
Dx 08/02/06 MS
Betaseron
Citalopram
Gabapentin


rhondab
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Date Joined Mar 2006
Total Posts : 2146
   Posted 12/28/2006 8:06 PM (GMT -6)   
Hey Jen

I'm sorta late jumping in here, but wanted to let u know i'm following this and hoping for good results on u'r blood work. Please let us know what u find out and how u'r doing. I'm sure it'll be some time before u know anything, but hang in there. Try not to worry and keep busy! We'll all be right here in u'r corner hoping and praying for the best for u.

rhonda

Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 12/31/2006 11:03 AM (GMT -6)   
No results yet from bloodwork.  I guess if it was something bad they would have gotten in touch with me already. Just about every night when  go to bed, I get this real cold feeling on my left cheek, and I noticed that if I put my head straight it stops, I don't know if it has something to do with the bulging disk in my neck or not.  Its really weird.  It seems that the Metanx is helping some with the feelings everywhere else, she said though it will take a few weeks to see a difference.  Its only been 9 days, so we'll see.  I really need to feel better, I have so much I'm missing out on.  Happy New Year everyone!!!! 

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 12/31/2006 1:08 PM (GMT -6)   
Hang in there Jenny, it might take a bit more time to get the results of the bloodwork.  Good to hear the Matanx is helping you!  You have a wonderful New Year as well, and know we are all thinking of you here.
 
 
 
   
 
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tropical dreams
Regular Member


Date Joined Sep 2006
Total Posts : 76
   Posted 12/31/2006 2:17 PM (GMT -6)   
Hey Jenny, I'm a little late as well, just wanted you to know that some of your tests are sent out to a reference lab (I work in a hosp lab) and can take up to 5+ days to get final results and then the Doc needs to get them. So you may not have all your results for a while. It took 2 weeks to get mine.

Hang in there:)
***Carla***
 
EVERY DAY I WAKE IS A NEW POSITIVE BEGINNING
 
Dx 08/02/06 MS
Betaseron
Citalopram
Gabapentin


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 12/31/2006 3:36 PM (GMT -6)   
Hey Jenny

Hang in there! Just a while longer and u'll have the results and hopefully some answers. I know it's hard to wait, u'r still sitting there with all the same symptoms, but they'll be here before u know it and it'll be such a relief to get them. We're all here holding our breath with u. ;)

rhonda

Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 1/4/2007 7:14 PM (GMT -6)   
Well, today I called my PCP to see if he got the results of the blodwork that my neuro sent me for, he looked everything over and said that everything was normal, ESR, ANA, the other two that I can't even spell, and he said that the IGG level of my EBV bloodwork was elevated.  From what I understand this would be considered chronic EBV.  I have to wait til tomorrow to talk to the nurse at my neuros office to see what she says about the bloodwork.  To be honest with you all, I don't think that my PCP knows how to read the results.  He has probably never had to read bloodwork results like this before.  Isn't IGG levels considered "chronic?"  And I thought that IGM was "acute" infection.  I still have the weird feelings in my face and legs, but it has calmed down some since starting the Metanx.  My pcp never heard of this.  I just hope that the pcp knows what he's talking about and tomorrow the neuros office says the same.  Now all I have to worry about is when the neuro looks at my brain and c-spine MRI she doesn't see something that the radiologist missed.  That would be my luck.  What do you guys think? :-)

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 1/4/2007 8:30 PM (GMT -6)   
Hi Jenny,
 
    I'm not familar with how to read that type of bloodwork, but just wanted you to know I'm thinking of you and hope it gets sorted out for you soon.  Good luck with the neuro, hope you get some definate answers.
 
 
 
 
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uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/4/2007 8:37 PM (GMT -6)   
I don't think I'd be so quick to underestimate your primary care doc. The tests you had run were pretty standard....he really should not have a problem interpreting them. "elevated" does indeed mean there is a continued infection somewhere...which translates as "chronic"...so he's saying the same thing. Whether that can cause the problems you're experiencing is something the doctor and/or neuro will have to determine. Or perhaps send you on to an infectious disease specialist, or a rheumatologist, as chronic EBV really isn't a neurological disorder. I hope you get some satisfactory answers soon, and get the treatment you need.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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