Not really as concerned as I am unaware. I've been injecting Rebif since my diagnosis and have no major problems with it.
I was mainly just wondering how everyone handled their situation. It seemed like my Dr wanted to see me once a month but had nothing much to say when I was there. I got a little irritated and tired of wasting my time in the doctors office on my day off. Needless to say I haven't seen her in 6 months.
You did answer my question though Uppity... I haven't had an MRI to judge my progression, but I really don't care to know at this point. I will get the MRI first quarter of 2007 just to be able to judge if the meds are helping.
Thanks for the advice...
Chin up everybody!!!
I'm glad the rebif seems to be "agreeing" with you.
I haven't seen a neuro in years (I've had MS since at least 1983). The last time I saw one was nearly 10 years ago, when we moved out of one area into a new community, and I got a new primary care physician. She didn't doubt that I had MS, but did want me to see a neuro just to be examined and give her a sort of "base-line" -- "here's where she is now, and here's what I recommend..." which essentially was, "She's on Betaseron; nothing much has changed; probably secondary-progressive, but then she's had MS for a long time, now..."
and that has been that. I get a physical with my primary care doctor every year, she gives me a new script for the Betaseron and oxybutanin (the only meds I'm on, at present), and I wheel off (I use a wheelchair).
I say the Betaseron is "working" primarily because: prior to when I started the Beta in 1993 or so, I was experiencing 2-3 exacerbations a year. Since getting on it, I had just one, and then none. As the neuro noted..there's been a slight decline, which has continued since I saw him..but no real exacerbations, so for an old lady (soon to be 60), I'm hanging in there.
I hope you continue to do well on the rebif.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....