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mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 12/28/2006 7:04 PM (GMT -6)   
Well, the nurse is still gone so I gave the Shot to myself.  I think i must have done better than last week because it didn't bleed near as much.  I still want to see the nurse once more tho because I have trouble getting the medicine drawn up into th syringe.  I gonna see if maybe he can change my prescription to the pre-filled syringes.  It might be easier for me.  Does anyone here use them?  Are They easier?  It would seem to me that they would be.  Well,I better go so I'llbe ready whne it hits me and I almost immediately go to sleep (a good side effect).  I'll get cold in alittle while too.
 
BYE!!!
 
Sheila

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 12/28/2006 7:23 PM (GMT -6)   
I'm really glad you're continuing to give yourself the shots. It's empowering, somehow, to have at least that bit of control over this stuff. I'd think that the pre-filled would be easier. I can't imagine why they wouldn't be what would ordinarily be prescribed?! You could call the Avonex help line and ask about it, so you know what to say to your doctor to get them.

I hope the side effects lessen over time, for you.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 12/28/2006 8:16 PM (GMT -6)   
Hey Sheila

YIPPPEEEEEEE.....BRAVO for U!!!!! U did good!!!! I'm so glad u'r tryin this on u'r own. It's prob pretty tough..no doubt, but u'r strong and able to do this. As uppity said, it's empowering to have that much control over a disease that can take so much from u otherwise. U did great and i'm praying this will just be the beginning of u'r total control over this shot!!!

rhonda

carpe diem
New Member


Date Joined Dec 2006
Total Posts : 9
   Posted 12/29/2006 4:54 PM (GMT -6)   
I can't understand how you are getting your Avonex not pre-filled. It's been a few years since I had to mix them up. Mine comes in the syringe. All I have to do is slap the needle on the end. I agree with Uppity and would call the Avonex help line. I'm surprised there are any self-mixer kits left out there.

If you mean an auto injector instead of pre-filled I'm pretty sure that Avonex does not have an auto injector available because it is an InterMuscular injection as opposed to the subcutaneous injections of Copaxone/Betaseron.

Anyway, congratulations on giving yourself the shot. For me, that's the hardest part. After 10 years I still have to psych myself up for it every time. Thank God for the patient nurses (teachers) who help us get there.

mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 12/30/2006 9:07 AM (GMT -6)   
I couldn't believe it when I got this kind either.  Maybe it was because we had planned on the nurse giving my shots because of the weakness and lack of coordination in my right hand.  I have found in the last 2 weeks that I have given the shot to myself that my hand only causes problems with actually drawing the medicine into the syringe.  I'm so proud of myself too.  I took the shot Th.  Not only did it not hurt, it only bled a little and I don't have a bruise.  However, I do have a question how should I dispose of the needles and syringes?  I am just at this time putting them in a secure location and keeping them until the nurse is there and I can see her.  I know that there are certain precedures that have to be followed and I've seen the special disposal containers that are in dr's offices and hospitals but how do I get one?
 
Thanks for everyone's encouragement.  I knew it was going to happen sooner or later that I would have to do it.  I was just scared and needles scare me anyway--especially when they are that long.
 
I asked about the autoinjector before so I know there is not one for avonex.  I almost chose Rebif for that very reason, but the fact that Avonex is only one shot a week won out smurf .  Well, Happy New Year everyone. Don't party to hard.
 
Bye!!!
 
Sheila

carpe diem
New Member


Date Joined Dec 2006
Total Posts : 9
   Posted 12/30/2006 5:28 PM (GMT -6)   
Yeah sheila, I agree the shot doesn't really hurt that much at all.  The only time it hurts is when my mother (retired nurse) gives it to me.  I don't know what she does, but it always stings a bit more.  I think she is just getting even for childhood transgressions. :-)
 
Every thing but the needle can go in the trash as far as I know. I'm lucky I have a friend who is an EMT.  I just put the needles in an old milk jug and give it to him.  He takes it to the hospital. He is a great help with injection site rotation.  I do my legs, but he gives it to me in my arms and he seems to know something my mother doesn't, because it rarely even stings when he does it.  I wonder if she was going somewhere else for all those years she claimed to be a nurse. 
 
You may know this already, but sooner or later you are going to get a gusher.  That's what I call it when I remove the needle and it bleeds pretty good.  Don't let it scare you if it happens, umm, like it did me.  I yelped like I was a dog and someone stepped on my tail.  My long time doctor told me; "Don't be such a sissy" when I told him about it.   A little pressure from the gauze pad will stop it. It will leave a bruise that lasts awhile.  It's no big deal though.  After 10 years the only injection site reaction I have ever had is a little stinging itch that goes away pretty quick and that is pretty uncommon for me. 
 
What I found interesting about your post was that we went the route we did for the same reason.  One shot a week won me over, along with the reduced risk of injection site reactions. 
 
I wish you continued confidence in yourself and Avonex.  I guess that goes for me to.  I like to think it keeps me on my toes on days of doubt.

mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 12/30/2006 6:56 PM (GMT -6)   
Carpe,

I had a gusher the first time I did it. It bled and bled. Scared me. I thought I had done something wrong. My brother in law who used to be a fireman and went out on rescue jobs told me that I had pulled the needle out too slow and that's why it bled. He's crazy(HaHaHa) so I don't know if that is true or not. I still have a bruise from that one and it's been over a week. I bet you would have given your mom fewer prob when you were a kid if you had known she would be giving you shots in the future. (HAHAHA)

Sheila

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 12/30/2006 8:29 PM (GMT -6)   

You can get a "sharps" container at your local pharmacy -- big red plastic bucket -- for under $10, and it'll hold enough needles for a VERY long time.

I don't know how the Avonex needles are put together -- the Betaseron ones twist apart, leaving the plastic syringe part, and the actual needle with a plastic end.  I'm able to burn trash here in the country -- so everything BUT the plastic needle goes into the trash and is burned...the needle goes into the sharps container.

My doctor has told me to bring it in anytime, and she'll dispose of the needles.  Sometimes some of the pharmacies will do that, too.

For awhile the Betaseron folks were sending me sharps containers. I actually have two extras in my closet...it'd probably cost me more to  mail them to you, though, than you'd pay for one at the pharmacy.  But if you want it...email me privately and we can work something out.


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 12/31/2006 6:52 AM (GMT -6)   
Thanks uppity!! I'll check with the pharmacy.

Sheila

mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 1/4/2007 2:23 PM (GMT -6)   
I talked to the nurse about the pre-filled syringes and she called the pharmacy and got my prescription changed. I'm picking them up this evening. She wants to see me give myself the shot so I have to go by there in the morning and do my shot. The prefilled should make them a breeze for me. I hope. I'll still have to psych myself up to give it tho.

I'll let you all know how it goes.

Bye!!!

Sheila

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 1/4/2007 3:16 PM (GMT -6)   
I know you'll like the prefilled much better! I use the 25G 1 inch needles for my arms and they work great. I buy them at Target here for 8 cents each, they fit on just like the regular ones.

This month Avonex is supposed to come out with a new formula that can be at room temp for up to 7 days instead of 12 hours. also, a better locking system for the needles. (I've never had trouble with mine). There is supposed to be a yellow sticker on the boxes telling you there are new instructions for storage...yippee!
Michelle ><>
 
The choices you make today will determine your tomorrow.


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/4/2007 8:31 PM (GMT -6)   
I'm so glad this is working out for you. And indeed, getting the Avoenx so it doesn't need refrigeration is a great thing. I remember struggling with the Betaseron, keeping it cool..and now it's in neat self-contained packs that I can just toss in my suitcase or in my purse, and head out of town. If I have to do this shooting up, it's nice that at least it's convenient!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 1/4/2007 9:19 PM (GMT -6)   
I hope the prefilled is much easier for you Sheila.  Good luck tomorrow! I know you can do it :-)
 
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mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 1/6/2007 9:40 AM (GMT -6)   

Hi Guys!!!

It's done for another week.  I went in yesterday and let the nurse watch me.  She said she was impressed yeah and that I was doing great.  Also, I got my pre-filled syringes.  They were great and much easier to use.  The needle is only 1inch instead of 11/2 inch.  I know that its the gauge that determines how painful but to me that half inch makes all the difference.  I still hate needles but I feel so good about myself because I am able to give myself my shot.  I didn't think I'd ever be able to do it--physically with my right hand spasticity or mentally with my fear of needles.

BYE!!!

Sheila :-) :-)


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/6/2007 1:15 PM (GMT -6)   
Hey Sheila

WAY TO GO!!!! I'm so glad u decided to try this on u'r own and soooo glad u'r doing so good with it. "Keep up the good work' ;)

rhonda

Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 1/8/2007 7:33 AM (GMT -6)   
First things first...WWOOoooHHoooo you are awesome.  Doing it yourself it hurts less for some reason, maybe its a whole controll thing. I just wanted to mention, because this was never mentioned to me, but you can get shorter needles and a smaller gage.  FDA approved.  Ask your doctor.
I am/was/am/at times  LOL very athletic and I don't have a whole lot of skin to push through.  The smaller thinner needles were soooo much better.
Just thought i would mention it in case anyone out there is having problems or it gets harder down the road.
 
Did I mention that you are amazing for doing it yourself.  Great Job.  Hope it continues to work for you.

mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 1/8/2007 5:26 PM (GMT -6)   
Thanks Buckeye,
 
I feel pretty good about being able to do it.  I never really thought I'd be able because of my absolute and total fear of needles.  I still have to make deals with myself before I do it (u can have a cookie afterwards, etc.--doesn't work to good cause I get a cookie anyway.) but then I just do it.  If I get it over as fast as I can, it's ok.  Right now I'm not having any problems with the needle-size, but it's nice to know that I can get smaller if needed.  If u don't mind my asking which of the drugs are u on?  Are u recently dx'ed?  I'm the nosey type.  I was just dx'ed in Sept,2006 so am still trying to get a handle on all of this stuff.  Welcome aboard and don't be afraid to ask questions or even just vent here.  There are many very knowledgeable and experienced people here.  Again thanks for the kind words of encouragment.
 
BYE!!!
 
Sheila
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