Colonic inertia and MS?

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gogently
Regular Member


Date Joined Oct 2006
Total Posts : 80
   Posted 12/31/2006 10:29 PM (GMT -6)   
I'm new to this site but I've been posting to the Ostomies site and was referred over to this site by shellypoo. Has anyone with MS suffered with slow bowel transit time (colonic inertia) or severe constipation? I am having my colon removed on Jan 22 because of this. When I saw a doctor for a second opinion for the surgery she felt that I might want to get checked out for MS. She said I definitely have signs indicating that I have it. I was diagnosed with fibromyalgia about 5 years ago but I keep adding new symptoms to my list and fibro is not progressive. I mainly deal with constant burning shivering pain (which keeps me from sleeping at night), migraines, blurry vision and I'm not able to track with my right eye. I noticed that I couldn't read about 4 years ago when I was having trouble going from line to line in paragraghs. I used to love to read novels at night as it helped me relax. I just chalked it up to one of those weird fibro symptoms or from being too toxic from the IBS-C.
 
Then the past 2 years has been the nightmare with the constipation. I went from being IBS-C to extreme constipation. I found info recently on one of the MS sites where they talk about rectal overload. That is exactly what I have been trying to explain to the docs for the past year. I get so constipated and don't go for about 2-3 weeks and if I don't use any laxatives or enemas, my body will purge on its own and it's as if the dam has broke. It doesn't matter where I am and it happens with such urgency that I don't even have time to think about getting to the bathroom. It's not diarrhea, it is sludge and its like my small and large intestine both empty at the same time because there is so much volume.
 
What are some of the other symptoms of MS? I have read on the fibro sites that some of the symptoms of fibro and MS are similar. Have any of you been misdiagnosed with fibro? I have noticed that my cognitive abilities will go on the fritz sometimes too. Where I'm switching the right words for words that make no sense or I totally get disoriented losing my sense of direction while driving or even forget that I had something on the stove. And the crazy lights off, lights on sensation. Its like someone turned the lights off for a second. I call them brain 'farts'. It scares me because I used to be such an organized person and now I feel like I'm fraying at the seams!
 
Any input will help...thanks
Helena

A good laugh and a long sleep are the best cures in the doctor's book.  ~Irish Proverb~


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 12/31/2006 10:41 PM (GMT -6)   
Welcome Helena!
I have lupus or something like it, as well as the MS.  And as you know, I'm having the major bowel problems.  I too, have the cognitive troubles, I cannot multi-task anymore!
 
You need to see a neurologist and get the ball rolling on tests.  They will probably order a brain mri w/contrast to check for lesions and evoked potentials tests for optic neuritis.  They may also do a lumbar puncture.  I know you have your surgery coming up so take care and get plenty of rest.  I imagine you will probably wait on the neuro until you are healed.
 
Please feel free to come here anytime.  Keep us posted on your surgery.  Take care.
 
 
Michelle ><>
 
The choices you make today will determine your tomorrow.


gogently
Regular Member


Date Joined Oct 2006
Total Posts : 80
   Posted 1/1/2007 12:40 AM (GMT -6)   

Thanks again Michelle :-)

I know that the surgery seems extreme but I also know I want part of my life back. I used to be quite the social butterfly but now with not feeling well because of the constipation and constant pain and not knowing when I might erupt, I try to avoid contact with people just because I feel too pretentious trying to put on a smile. Does that make any sense? What were the symptoms you were experiencing that led the GI doc to think colonic inertia? Do you experience rectal overload also?

I have a neurologist and saw him for 2 1/2 years for my fibro. We have locked horns several times. I think I need to get another doc because we do not function well together. He is the one that first diagnosed me with fibro...although it took me three office visits to convince him. The only test he ever did was an EEG and could only tell me I was very light sensitive (I had already told him that!) It is the light sensitivity that triggers the migraines! He got mad when I went to see the rheumatologist who also diagnosed me with fibro (this was on the first visit with him). The rheumatologist gave me vicodin to help with the pain and xanax to help me sleep. The neuro said if I continued to see the rheumatologist then he would not see me any more. So I haven't seen him for about 2 years. Have you entered the arena of doc wars? Is it a money thing or what? The rhematologist was sending reports to the neuro about what he recommended and it just really ticked the neuro off.

And yes I do have brain lesions. I went into emergency about two years ago for a killer migraine. The emergency doc was more interested in that the upper half of my body was super hot but the lower half was ice cold. They thought I might have had a stroke so they ordered a catscan and would have done a spinal tap but my husband said no to that. The results of the catscan was no brain bleed but I did have lesions. The doc thought they might be from previous migraines. I always seem to get them over my right eye and it will actually make my vision in that eye blurry for a couple of days. I never thought much of it until I started reading about MS. Do you have vision problems and migraines also?

Helena

 


A good laugh and a long sleep are the best cures in the doctor's book.  ~Irish Proverb~


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 1/1/2007 10:14 AM (GMT -6)   
Hi Helena,
 
    I'm sorry you are going through so many health issues and I hope the surgery gives you your life back regarding the constipation problems you are having.  Best of luck with that and I hope all goes well.
 
    My husband, with MS, does have severe constipation.  The pain medication he's on though, makes it worse unfortunately, and he does have to use laxatives and stool softeners on a regular basis just to be able to go (doctor recommended).  He does have the state of urgency you are describing, no warning, just boom it hits and off to the bathroom he goes. 
 
    A good site to start with regarding MS symptoms is the National MS Society website at www.nmss.org
Both fibro and migraine sufferers can have symptoms similar to MS.  Both can have issues with dizziness, pain, blurred vision, light sensitivity, and congnitive problems.  To make matters harder, people with migraines can indeed have lesions show up on brain scans. 
 
    You talked about burning pain?  Where does this occur on your body and is it only at night? Do you have any other symptoms that you didn't mention?
 
    I do wish you luck with your surgery and your search for answers.  Feel free to ask anymore questions you may have, we'll try to help.
 
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gogently
Regular Member


Date Joined Oct 2006
Total Posts : 80
   Posted 1/2/2007 5:10 PM (GMT -6)   

Thanks Kimber for the encouragement. I have finally settled down about the surgery. The type of pain I have is a chronic burning shivering pain. The kind you get from a bad sunburn or like after burning yourself on the stove. It doesn't really involve my skin or joints but seems to be in the tissue. I get electrical jolts of pain here and there in my body through out the day and night. I feel like I'm short circuiting like a neon sign that's going out. Cold temperatures make the pain worse, as hot temperatures make me nauseated and light headed and seeing stars. Taking a shower is not fun. I have Raynauds syndrome so when I get out of the shower I'm usually two-toned...half bluish purple and half red and feel like I have to throw up. I know alot of this stuff could just be the fibro. I get bladder infections about every other month and they are usually bloody. I've even had bloody urine and not had an infection! They have run so many tests over the last five years and found nothing. The only tests I have not had done is for my heart and vascular system. I know my endocrine system is completely out of wack and I have adrenal fatigue and low thyroid but not low enough to have medication. I usually run low temps 97.2 and have low blood pressure. Other than these few things that are not fibro, I'm your typical fibromite. I will do research on the MS site. Thanks for the info, Helena

 


A good laugh and a long sleep are the best cures in the doctor's book.  ~Irish Proverb~


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/2/2007 7:18 PM (GMT -6)   
Hey Helena

I'm sorta late jumping in here, but wanted to let u know i'm following u'r thread and hoping u'll be much better very soon. U'r in my thoughts and prayers for u'r surgery and upcoming neuro visit. Please ask all the questions u have and let us know how u'r surg went. I pray it'll all go smoothly.

rhonda

gogently
Regular Member


Date Joined Oct 2006
Total Posts : 80
   Posted 1/2/2007 8:02 PM (GMT -6)   
Thanks Rhonda
A good laugh and a long sleep are the best cures in the doctor's book.  ~Irish Proverb~


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 1/2/2007 8:34 PM (GMT -6)   
 
  No problem Helena, we're here to help.  The pain you are describing sounds very much like my husbands.  After your surgery, it might be worth seeking out a different neurologist and see what they can do for you.  At the very least, I hope you can get some relief for the pain issues.   Best of luck!
 
Kimber
 
   
 
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