Saw my nuero today...

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theLight
New Member


Date Joined Dec 2006
Total Posts : 18
   Posted 1/11/2007 6:50 PM (GMT -6)   
It's shameful but this is the first time to see, or talk with, my nuero in 6 months.  I had another episode that started last week but, I have nearly recovered from it already.  The episode started as spatiscity and then next day changed to the tingling/numbness in my right leg/arm.  Also the Dr. found that my right arm had reflex problems probably from a new lesion in my neck.  I'm a little nervous because I'm having my second brain MRI so I'll know how fast it's progressing! sad Going to the doc and knowing about the changes is the most depressing part of it all. I would almost rather not know and live my life without MS being the center of it.  I guess all we can do is keep our chin up and roll with the punches.  Some days its just easier to deal with than others.
 
Question? Some days, from variable circumstances, my arm will burn; hopefully, this is the result of a previous episode.  Does the coming and going of the burning necessarily mean another episode?
 
 

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/11/2007 7:20 PM (GMT -6)   

How long have you had MS?  It's common to have "residual" symptoms -- stuff that occurs from time to time, sometimes even continuously. Once the central nervous system is damaged, until they figure out how to repair it entirely, it's damaged, and you're going to experience symptoms.

Think of it this way:  If you cut your finger, it's sore and works differently until it heals.  But if you cut it again (or way deep the first time!) it's scarred -- and may never work "normally" again.  The plaques are scars -- if they're small enough, they may not interfer with function. If they're severe enough, they may indeed cause problems.

Are you on one of the meds designed to slow (or stop) the progression of the disease?  As for seeing a neuro -- I have had MS for 24 years, now. I haven't seen a neuro in the last 10.  My primary care physician takes care of all my health needs, including anything relating to having MS.  She prescribes and monitors the Betaseron, for example. She'll consult with a neuro if she or I have quesitons, but otherwise I don't see one. I haven't had an MRI in 15 years or so.  They're a diagnostic tool, not a treatment tool.  Once I was convinced I had MS, neither I nor my neuro felt any need to continue the expense or bother.

If I were to change medicine, or dramatically fail or improve, I might have one to see if there are changes...but otherwise, I just don't see the point.

 

Just my opinion, thoug!  eyes

 

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


theLight
New Member


Date Joined Dec 2006
Total Posts : 18
   Posted 1/11/2007 7:44 PM (GMT -6)   
I have been on Rebif since my diagnosis October 2005.  My nuero wants another MRI to see if the meds I'm on are having any effect on progression. My first MRI showed 7 brain lesions, 1 neck and 1 spine.  She estimated I'd had MS for 2 maybe 3 years and never knew, but she wants to compare for better judgement.  The burning comes and goes but its good to know that it isn't necessarily another exacerbation.  The burning equates with the original symptoms that sent me to the doctor but haven't progressed further from what I can tell.
 
I guess for me its depressing to focus so much on the illness.  I'm just not sure how I want to handle everything, but I know that it can't be the center of my life.  I've got to get to a point where life with MS is on "cruise control."
 
Thanks for the advice
 
Chris 

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/12/2007 8:16 AM (GMT -6)   
I think since you're relatively newly diagnosed, seeing your neuro is a good thing, until you and she feel relatively confident that your condition is stable, and you just need to keep on doing what you're doing.

Do ask though, how you would get in touch with her if you do experience a flare, or have other things happen. In time you will indeed be able to move to "cruise control"..it'll always be there, but other stuff in life will move back to center stage...
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 1/12/2007 9:03 AM (GMT -6)   
Friday a.m.
 
Good morning, Chris:
 
Your attitude is great...about "getting your MS on cruisr control."
 
That is something that is tough to do with a ever changing situation like MS.
 
But it seems like you have the right attitude.
 
John

theLight
New Member


Date Joined Dec 2006
Total Posts : 18
   Posted 1/12/2007 4:15 PM (GMT -6)   
I'm just thankful that I know what is going on with my body.  My heart goes to these guys that are in "limboland" and still wondering what to do and if there will be a resolution. Atleast I know the battle I'm fighting and for that I'm grateful. yeah
 
I appreciate the reinforcement from both of you...
 
Thanks
Chris
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