Oh hon, I am so sorry. I have been reading many of your posts since I found this forum and I feel close to you somehow. I, too, am in limboland and have been for 2 years now. I, like you, have a negative brain MRI, negative LP and positive symptoms. I have been diagnosed with ON and I have lesions in my spinal cord but I have actually been told by my neuro that this might all be in my head! It doesn't make any sense to me. I actually haven't been posting lately because I have been trying to grapple with this whole idea and sort things out. I will share with you what I have done:
1. Make a list of symptoms. I determined that the ON had to be real because it had been diagnosed and I had a daily reminder. For you, the positive babinski, altered reflexes and abnormal EVP are proof that the symptoms you have in your leg are "real"...something is going on.
2. Set the list aside and try your darndest to relax and not think about all the possible things that could be wrong with you and that you have all these problems (like Rhonda suggested). I tried to throw myself into my work, my family, christmas...things that would distract me in order to do this. The chances are pretty good that the "real" symptoms will show themselves even in the face of living a normal life.
3. Go back to the list and try and sort out what you've determined for yourself are real (this likely will be most of them, I willing to bet because you don't sound like a person who has "slipped the cheese off her cracker").
4. I then had to repeatedly tell myself that these symptoms are real and accept them. Now I am keeping a little notepad of how, when and what the symptoms feel like. I have actually found that the list is narrower than I initially thought and have attributed some of the things I was/am experiencing to stress. Now, though, I have a concise list to present to a doctor along with possible things that exacerbate these symptoms.
This is a slippery slope I think though because I would hate to leave something off that may be key for a diagnosis. So, I still remark on the things I think could be stress related so that I can report those as well.
I have to admit that I am taking the watch, wait and see approach currently. I am following up with my optho appointments and my GP and will have repeat MRIs done. I am also taking my medication (neurotin and synthroid). I am practicing good self care including eating well, exercising and sleeping adequate amounts. I am also seeing a counselor to help me with all of this and just to talk to. My husband doesn't quite think that I am nuts, but he doesn't like to talk about it. I don't know if it scares him or he actually does think I am crazy, but either way he won't really discuss the situation. FYI my counselor doesn't think this is in my head either :)
All we can do is keep going. Keep fighting. I now actually have accepted that, yes there is something wrong with me and right now they can't tell me what it is. It is either going to get better and go away or some other symptom will come about and they will finally tell me what it is and treat me.
I don't know if this has helped. I really just wanted you to know that you are not alone. All the best to you!