made appt with neuro but...

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booboobum
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 1/20/2007 7:03 PM (GMT -6)   
Well, I made my long awaited appointment with Dr. G (the neuro) but can't get in until March. Oh well. I was browsing through the Fibromyalgia threads and most of my symptoms are very much like the ones i see on that forum. I would think that they would be similar to those of MS? I've heard that you can have the "white spots" and not have MS - right?
I also read somewhere that a study showed that migraines may cause lesions (i emphasize "may") on the brain. Has anyone heard anything like that before? I've suffered from migraines since I was about 10. The burning/pain in the back of my neck and shoulders is just getting to be so irritating = it's pretty much constant. I don't know if I should see a rheumy or not. I just don't know. I think I need to go back on Lexapro.
migraines since 1974; septic hip - 1999 with birth of daughter ; hip replacement 9/2003; MS limbo since 3/2004; dx IBS - 5/2005;dx acid reflux - 11/2006; dx compressed L4-5 and T 7-8 - 5/2006; dx RLS - 9/2006
Clonopin, hydrocodone, Butalbital, prevacid and anything else that helps!


rhondab
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Date Joined Mar 2006
Total Posts : 2146
   Posted 1/20/2007 7:25 PM (GMT -6)   
Hey Booboobum

GOOD!!! I'm glad to see u'r moving forward with this and seeing a neuro. Yes, it can take a long time to see one, but the time up til u'r appt can be used to note u'r symptoms if u have any probs remembering things. Yes, u'r correct, migraines can cause lesions and white spots aren't always from ms. Lesions can be from many things...that's why even tho someone may have them, the neuro may tell them that they're aren't 'indicitive of ms'. I"m not certain of the fibro symptoms and ms symptoms being similar, but i think u'r right about that.

I hope u'r burning and pain ease up soon for u. Is the Lexapro for the burning/pain?? Maybe contact u'r pcp to see how he feels about u going back on it. If u'r hurting u need something. Please let us know how u'r appt goes and how u'r doing along the way..and keep asking questions! ;)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


booboobum
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 1/20/2007 7:30 PM (GMT -6)   
no lexapro for anxiety/depression. I have mood changes a lot.
I'll keep you posted.
migraines since 1974; septic hip - 1999 with birth of daughter ; hip replacement 9/2003; MS limbo since 3/2004; dx IBS - 5/2005;dx acid reflux - 11/2006; dx compressed L4-5 and T 7-8 - 5/2006; dx RLS - 9/2006
Clonopin, hydrocodone, Butalbital, prevacid and anything else that helps!


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 1/20/2007 7:31 PM (GMT -6)   
Hi Boo Boo -

Yes, my neuro told me that migraines can cause lesions on the brain, the other reasons she gave me were old infections, head trauma or old stroke.

I'm not a major migraine sufferer though, I've never had to go to the hospital for a migraine like most. All of this stuff is brand new to me and I'm just learning and I only remember parts of what my neuro tells me. I don't remember/comprehend things very well anymore for some reason. If I don't have MS, I'm going to ask about the location of the lesions on my brain and see if that could be affecting my memory and thinking.


I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


rhondab
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Date Joined Mar 2006
Total Posts : 2146
   Posted 1/20/2007 8:02 PM (GMT -6)   
Hey Denda!

Just wanted to jump in here a second and tell u something. I too have times where it's VERY hard to follow someone. At first when i went to see a neuro i didn't go alone. Now my husband doesn't want me to go alone, but i insist. He's right tho...i can walk out of the doc's offic and can't repeat when he said..even the things i told myself i was gonna remember! Comprehension must be part of it too...it's like when i'm experiencing times of increased symptoms i just can't focus and comprehend or remember things. It's soooo frustrating!!! Good thing is tho, when i'm not having those times of increased or worsening of symptoms i'm SOOOOO much better!! My memory is better...much better...and i can follow much better!! Hopefully that'll be the way for u in time too. Best wishes to u both! This is journey is no fun, but thank goodness we're all here to help each other.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


booboobum
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 1/20/2007 8:13 PM (GMT -6)   
my cognitive functions have decreased over the past several years so i understand. I have to think about what i had for dinner the night before and can't remember words etc. I also forget a lot of what the drs. tell me too. I like what you said about asking the dr where the lesions are located in regards to brain function. That would be something to find out.
migraines since 1974; septic hip - 1999 with birth of daughter ; hip replacement 9/2003; MS limbo since 3/2004; dx IBS - 5/2005;dx acid reflux - 11/2006; dx compressed L4-5 and T 7-8 - 5/2006; dx RLS - 9/2006
Clonopin, hydrocodone, Butalbital, prevacid and anything else that helps!


booboobum
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 1/20/2007 8:14 PM (GMT -6)   
do you guys find it hard to pay attention when in conversation or reading> I can read the same paragraph several times and still can't remember much of what I've read.
migraines since 1974; septic hip - 1999 with birth of daughter ; hip replacement 9/2003; MS limbo since 3/2004; dx IBS - 5/2005;dx acid reflux - 11/2006; dx compressed L4-5 and T 7-8 - 5/2006; dx RLS - 9/2006
Clonopin, hydrocodone, Butalbital, prevacid and anything else that helps!


tropical dreams
Regular Member


Date Joined Sep 2006
Total Posts : 76
   Posted 1/20/2007 8:49 PM (GMT -6)   
Hey BooBoo,

Yes I have a horrible time remembering things. It is now starting to interfere with my job. It's a horrible feeling when you can't think of anything to say or you are so confused by conversations. If this gets any worse I will be out of a job and then I can sleep all the and any time I want hahahaha.
***Carla***
 
EVERY DAY I WAKE IS A NEW POSITIVE BEGINNING
 
Dx 08/02/06 MS
Betaseron
Citalopram
Gabapentin


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/20/2007 8:49 PM (GMT -6)   
YES!!!!!...YES, YES, YES!!! Hard to pay attention and hard to remember things!!! I can soo relate to not being able to remember what u ate for supper. My husband will tell me things like 'call me when u get home' and i'm going straight there...and i never remember til he calls hours later and asks. It's so aggrivating too...i'm trying to read a book now and it's my daughter's book. She had it at an appt one day and i was reading over her shoulder...i kept having to re-read lines and really pay close attention to follow the book. She was sitting there page after page waiting for me to finish up one page so we could move on. That was frustrating and made me just want to quit trying to read. I ended up telling her to just give me the book when she's done. I could go on and on with examples...suffice it to say that i totally understand u'r question! It gets worse at times and better at times as i said before, but those worse times are the WORST!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 1/20/2007 10:44 PM (GMT -6)   
Hi booboo,
 
    I'm glad you got an appointment!  March seems like a long way away but it'll be here before you know it :-)
Migraines can indeed causes lesions as well as many other things too.  As far as fibro and MS being similar, they are very much.  My dx now is RA, but my original dx was fibro and I can say that aside from the joint pain the other issues I have, memory problems, numbness and tingling, burning pain, dizziness and others all very similar to what my husband with MS has problems with too. 
 
    Both of us have terrible memory problems, and we both keep some kind of daily planner to help remember things.  I can't tell you how many times appointments have been forgotten, get to the store and forget what you went for, forget to pick up kids from school.  Kind of makes you feel really bad you know?  The kids bought a wipe board for the kitchen last year and use it as remind mom and dad board LOL.  Funny thing is it helps! 
 
    I'm sure you are frustrated and unsure, but try to hang in there a little longer til they figure everything out and rule out all the mimicers.  We'll all be here with you for the ride!
 
 
 
Co-moderator for Multiple Sclerosis
 
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uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/21/2007 8:06 AM (GMT -6)   
booboobum said...
Well, I made my long awaited appointment with Dr. G (the neuro) but can't get in until March. Oh well. I was browsing through the Fibromyalgia threads and most of my symptoms are very much like the ones i see on that forum. I would think that they would be similar to those of MS? I've heard that you can have the "white spots" and not have MS - right?
I also read somewhere that a study showed that migraines may cause lesions (i emphasize "may") on the brain. Has anyone heard anything like that before? I've suffered from migraines since I was about 10. The burning/pain in the back of my neck and shoulders is just getting to be so irritating = it's pretty much constant. I don't know if I should see a rheumy or not. I just don't know. I think I need to go back on Lexapro.

Yes, many symptoms of fibromyalgia mimic those of MS. With fibro, though, there are specific "pressure points" that, if a doctor presses on them, the patient will feel a distinct pain. Those "pressure points" are not common to MS.
 
Yes, migraines (and other conditions) can cause white spots, or lesions, to appear on MRI's.  And yes, white spots can occur without there being any known cause, and they don't cause problems.
 
 
You said you "need to go back on Lexapro".  You might find that going back on it not only relieves your anxiety, but also reduces pain. Doctors don't exactly know why -- but some of the antidepressant/anti-anxiety meds also work to reduce pain in some patients. Given all the other physical conditions you describe (back problems, hip replacement, etc.) it's no wonder you have pain in your neck and shoulders.  Some of that may well be caused by your other physical conditions.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 1/21/2007 10:36 AM (GMT -6)   
I'm with you Carla, if my memory and cognitive functions don't get better I know I'll be out of my job. It's pretty scarey right now, since I haven't told my boss anything about what's been going on with me. I wanted to know answers before I killed all my chances of being promoted.

I'm also in an accelerated business degree program in my 2nd year, target graduation date of May 2008 and I'm hoping I can make it. I've noticed that I can't remember what I just read the night before or even an hour before which makes taking tests absolutely horrible.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


tropical dreams
Regular Member


Date Joined Sep 2006
Total Posts : 76
   Posted 1/21/2007 5:55 PM (GMT -6)   
Hey Denda,

This ms thingy is sooooo scary, just when I think I can handle it WHAMO something else. My work knew something was wrong with me b4 I was dx and when I told them they all seemed to support me. Hmmmmm I was so wrong, now they are looking to boot my butt rgt out, why I'm not sure. I work in a lab so I deal with patient tests but i only process the specimens (bar codes) not the actual tests. I stand 12 hrs a day which is a killer. If I lose this job I lose my insurance as I am single. I hate to think about the future now being 51 and out of work is a nightmare!

Hang in there girl I'm rooting for ya :)
***Carla***
 
EVERY DAY I WAKE IS A NEW POSITIVE BEGINNING
 
Dx 08/02/06 MS
Betaseron
Citalopram
Gabapentin


booboobum
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 1/21/2007 6:33 PM (GMT -6)   
Thanks guys - I do notice that when someone massages my legs (due to RLS) there are certain areas that really hurt - also inside my knee when pressed and inside my arms by the elbows.
whatever I have is real - just not sure what it is yet but determined to find out in 2007. My back hurts so bad right now, it's hard to sit here and type. There are several people at my job who have been dx'd with MS (we have about 5000 total employess) and as far as I know, ther e has been no discrimination and HR has worked with them to find other positions if needed, so I'm not too worried about that aspect of it. I changed positions last year from a supervisor to QA due to stress and find that I am bored out of my mind and that is a big distraction for me.
And I do feel that my previous health issues probably add to everything else. Before I had my daughter I had 2 things happen that I remember - one was not being able to get out of bed for about 3 days and the other was the "ms hug" around my waist for a few weeks. I really didn't have any other symptoms until after the "trauma" when my daughter was born. I had to have emergency surgery to remove the infection from my hip 4 days after I had her, was out of work for 6 months and then from then on more and more symptoms started appearing. I wonder if a traumatic experience joggles or jump starts things?
migraines since 1974; septic hip - 1999 with birth of daughter ; hip replacement 9/2003; MS limbo since 3/2004; dx IBS - 5/2005;dx acid reflux - 11/2006; dx compressed L4-5 and T 7-8 - 5/2006; dx RLS - 9/2006
Clonopin, hydrocodone, Butalbital, prevacid and anything else that helps!


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 1/21/2007 6:48 PM (GMT -6)   
Carla -

That's horrible! I'm so sorry to hear about that. Can you go to your HR dept and talk to them? Is there maybe a desk job of some kind that you could xfer to or record dept? It's got to be hard if you enjoy your job.

I didn't want to make waves at my place right away, but my boss ( who is very needy and pushy ) was pushing me for information on why I was taking so many of my personal days for dr visits and why I wasn't 'myself', I seemed 'off'. I think he was trying to be the 'shoulder to cry on', but he was coming off on being the nosey guy. Back in March last year I had found a lump in my breast and with all the dr appts (gyno, radiology, ultrasound, radiology again, surgeon, gyno) I eventually told him what was going on. This has been going on for a tad longer and he's pushing me. But I digress.. since he was doing this and I was telling him nothing, he was becoming annoyed with me and starting to cop an attitude ( oh yeah, I'm the only woman in the IT dept of 11 people).

I went to my HR dept friend and talked to her in confidence that she would tell no one. She basically stated since she knows my boss as well that it probably would not be a good idea to even let him know anything until I absolute have to. I'm starting to drown in my work, when I used love the challenge and now I can barely get my daily stuff done let alone the multitude of projects.

I am married but the problem here is, I'm the money maker of the family. I make much more than my husband and if I were to lose my job we would be in a world of hurt. When I started noticing the brain wasn't as sharp as it used to be, I started hinting around to my hubby that maybe he should take that promo at work that has been offered so many times or look for a job that pays more $$ and he has no interest in that at all. So that stress is starting to take it's toll...

Thanks for the shoulder to cry on, I needed that.

I'm with you, if this is how my life is going to be from now on whether it's MS or not, I've got to figure something out because I'm a smart person darn it, but the words, actions, thought process are not there anymore. I have noticed some days are much better than others... moments of clarity my hubby has been calling them, which is very true. Anything that you have found that works for you, please let me know. Thanks again Carla!
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 1/21/2007 6:58 PM (GMT -6)   
BooBoo -

Have you ever tried the pressure point massage therapy? I'm going to a place here that is wonderful. It's a physical therapy office, however the doctor is a DO and the physical therapy is actual cranial work and pressure point massage. I'm going for the constant lower back pain and weakness that I have. Maybe there is a place near you that you could try.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


booboobum
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 1/21/2007 7:15 PM (GMT -6)   
Thanks Denda - I'll look around. I've thought about some type of massage therapy.
migraines since 1974; septic hip - 1999 with birth of daughter ; hip replacement 9/2003; MS limbo since 3/2004; dx IBS - 5/2005;dx acid reflux - 11/2006; dx compressed L4-5 and T 7-8 - 5/2006; dx RLS - 9/2006
Clonopin, hydrocodone, Butalbital, prevacid and anything else that helps!


booboobum
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 1/21/2007 7:17 PM (GMT -6)   
A massage sounds sooooooooo good right now. My daughter tries, but (ha ha ha ) 7 year old hands just don't cut it!

Pam
migraines since 1974; septic hip - 1999 with birth of daughter ; hip replacement 9/2003; MS limbo since 3/2004; dx IBS - 5/2005;dx acid reflux - 11/2006; dx compressed L4-5 and T 7-8 - 5/2006; dx RLS - 9/2006
Clonopin, hydrocodone, Butalbital, prevacid and anything else that helps!

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