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got better things to do
Regular Member


Date Joined Jan 2006
Total Posts : 176
   Posted 1/23/2007 9:44 PM (GMT -6)   
Hello
 I want to tell you all, I am always lurking over the board and keeping up with each and everyone of you.As for me things are going very well, I am currently awaiting the baclofen pump. I still inject avonex with little side effects, if any at all.Oh yea and the great news is, I had my social security hearing Monday morning. They hearing was very short, they took one look at my file and ask me the biggest heart breaking question I think they could have ask me...(How does ms affect you and your familys life) well  hmmmm I lost it crying , sobbing couldnt talk and finally I did answer. They approved my social security before I even left the court room... finally something positive for me ...yipeee
 
 
I just had a few questions I wanted to ask all you smart peeps...lol
 
 
 - I am just curious how many of you had positive lumbar puncture with there diagnosis of MS????
 
 -If you never had a positive lumbar puncture, on what basis did they daignose your ms???
 
 - Do any of you have the baclofen pump?I may have already ask that,but since I have an MS head I  do not remember.....lol
 
             You all are very wonderful people!!!!!!

Just when I was getting used to yesterday......Along came today.
 
             
~~LIFE~~


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 1/23/2007 10:00 PM (GMT -6)   
Hooray for your ssd going thru!  What a load off your mind...and pocket!
 
I did not have a positive lp but my neuro said with the lesions and the symptoms I definetly have ms.
Take care! :-)
Michelle ><>
Co-Moderator MS forum
 
Happiness is not a destination but a day-to-day journey..


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/23/2007 10:37 PM (GMT -6)   
Hey Life!!!

So good to see u here again!! It's great news to hear u'r social security went thru and that's off u'r plate to deal with. I'm so happy that things seem to be going somewhat better for u and hoping this is a good turn for u. Take good care of u'rself and thanks so much for letting us all know how u are. U may remember ( or not ;) that i'm not dx'd, so can't help any on u'r questions, but wanted to let u know how happy i am for u. Hope to see u here more often as u'r able.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/24/2007 6:30 AM (GMT -6)   
lifewithms said...
Hello
 I want to tell you all, I am always lurking over the board and keeping up with each and everyone of you.As for me things are going very well, I am currently awaiting the baclofen pump. I still inject avonex with little side effects, if any at all.Oh yea and the great news is, I had my social security hearing Monday morning. They hearing was very short, they took one look at my file and ask me the biggest heart breaking question I think they could have ask me...(How does ms affect you and your familys life) well  hmmmm I lost it crying , sobbing couldnt talk and finally I did answer. They approved my social security before I even left the court room... finally something positive for me ...yipeee
 
 
I just had a few questions I wanted to ask all you smart peeps...lol
 
 
 - I am just curious how many of you had positive lumbar puncture with there diagnosis of MS????
 
 -If you never had a positive lumbar puncture, on what basis did they daignose your ms???
 
 - Do any of you have the baclofen pump?I may have already ask that,but since I have an MS head I  do not remember.....lol
 
             You all are very wonderful people!!!!!!

I'm sorry any of us have to be here...but I'm glad to see you back. If that makes any sense..  :)
I had a positive lumbar puncture when I was diagnosed with MS...but that was years and years ago, long before MRI's existed.  I was diagnosed based on many clinical signs -- those tests the neuro runs in his office which sometimes seem kind of superficial (like standing on one foot with your eyes closed) but which can tell him lots about what is going on with your central nervous system.  And I had evoked potential testing -- where they test the electrical signals from your brain to your body, and note if there are differences there.  There were.
I don't have the baclofen pump, so can't help with that.  I hope one of the others comes along soon, who has had some experience with it.

...I am not a doctor, nor health professional, and don't pretend to be one, here.....


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/24/2007 6:31 AM (GMT -6)   
...oh, and I'm glad your hearing went well, too! At least that's one less hurdle in front of you, and a bit of $$ coming in...
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 1/24/2007 3:41 PM (GMT -6)   

Hi Life,

    Congratulations on your SS approval! YAY!  That'll be a big help to you and your family I'm sure! 

    I wish I could give you more info on the baclophen pump.  It is something that has been suggested to Mike and will probably happen sometime in the future.  I have heard great things about it's effectiveness though, and I hope it works really well for you.  Have you had your initial test for it yet?

   Mike was diagnosed based on clinical presentation, positive tests which included the Lumbar puncture, evoked potentials and MRI's. 

   So happy to hear you are doing well on the Avonex!  Take care and let us know how you do with the baclophen pump.  I hope someone will have more info for you on that issue.   


 
Co-moderator for Multiple Sclerosis
 
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Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 1/24/2007 9:02 PM (GMT -6)   
Wednesday p.m.
 
Good evening, Life:
 
A good friend of mine has a baclophen pump,  and it works wonderfully for her.
 
She goes to get it refilled quarterly.....it is refilled by needle...
 
And whenever she "complains" about any of the segments of the Baclophen pump, I remind her of what spaceage technology it is....and being on medicare, it did not cost her a thing...
 
John

got better things to do
Regular Member


Date Joined Jan 2006
Total Posts : 176
   Posted 1/24/2007 9:21 PM (GMT -6)   

Kimber,

I go to my neurologist appointment this monday,he just did an mri of T-spine and is going to evaluate my spasticity so he can by pass the baclofen trial. He did the mri of T spine to check for lesions and also to see how high they can up my spine with the cathater. The higher the cathater is implanted in the spine the better results I get from cath sight downward . I guess what I am trying to say when cath is implanted how ever high it is in your spinal column baclofen works its best going downward. Hard for me to explain, I hope I made it clear enough.

 

I want to Thank each and everyone of you for your replies. Godbless all you wonderful people. 

 

 

 

 

I want to thank each and every one of you for your replies.


Just when I was getting used to yesterday......Along came today.
 
             
~~LIFE~~


ConfusedGal
Regular Member


Date Joined Oct 2006
Total Posts : 77
   Posted 1/25/2007 2:40 PM (GMT -6)   
hello,
 
I had a positive LP when I was diagnosed. I was diagnosed based on symptoms, positive LP, and growth of lesions on my brain MRi and inflammation in my cervical spine also. Take care and hope you feel better...
 
 

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 1/25/2007 8:19 PM (GMT -6)   
Hi Life,
 
    Yes, I think I understand, the higher the better.  Let's hope they can place it in the best spot possible!  Best of luck and let us know how your appointment goes on Monday.
 
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details
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