bladder meds question

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booboobum
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 1/24/2007 9:08 PM (GMT -6)   
ms limbo here but wanted to ask what some of you take for bladder control. I've been told that i have a neurogenic bladder and was given some medication, i cant' even remember what it was as it was several years ago. I feel the urge to go often and even though my bladder feels empty when I'm done - it doesn' really empty all the way. (proof from ultrasound) I stopped taking the medication it because it didn't really help and i didn't see the sense in it. Lately, i've been wanting to try something again as I just cant' take much more. With the IBS issue that I have and the bladder thing - it's just too much.
before i see my dr about it i just wanted to get some of your opinions and some knowledge on what works and what doesn't and if anyone experiences side efftects.

thanks for the info
Pam :-)
migraines since 1974; septic hip - 1999 with birth of daughter ; hip replacement 9/2003; MS limbo since 3/2004; dx IBS - 5/2005;dx acid reflux - 11/2006; dx compressed L4-5 and T 7-8 - 5/2006; dx RLS - 9/2006
Clonopin, hydrocodone, Butalbital, prevacid and anything else that helps!


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/25/2007 5:55 AM (GMT -6)   

I know about two medications you can try, for bladder control:

Detrol, and Ditropan.  Both come in generic forms (oxybutanin is the generic form of Ditropan, and what I've used for years).  Both also come in a "time-release" form, meaning you take just one, and the effects are supposed to last for 24 hours.

I've found that not all of these work well for a person, and I had to experiment a bit to find what worked for me, specifically -- oxybutanin, 5 mg, one in the morning when I wake up, one at night before I go to bed.  I tried Detrol, and Detrol XL (the timed release version) with little effect.

So I don't know what you were on -- but you might need to experiment a bit with another form of the same med, or a different med, or a somewhat higher or lower dose, or at different times of the day.

With the oxybutanin:  I experienced a very dry mouth, nose, and vagina when I first started on it. Carried around sugar-free candies with me for a couple of weeks (or gum), to keep my mouth moist.  Also found that I didn't need as much as first prescribed: the doctor had me taking it 3 times a day, and I wasn't urinating at all, causing other problems.  Once I cut back on the dosage (to the 2 x day), and was on it for about 2 weeks, the very dry mouth went away, and I had relatively good bladder control.  I've been on oxybutanin at this dosage for years, now...at least 10...without major incident.  Very occasionally I'll have a bladder "accident" -- usually at night, usually if I am very overtired and don't wake up when my bladder "tells" me to.

Don't expect absolute control on any of these meds.  You'll still have to pay a bit of attention to your bladder signals, and may wake at least once in the night, having to urinate, but generally they'll help get you back so at least you're not running to the bathroom every 20 minutes...

Other than the dry mouth upon first taking the pill, I've not noticed any other side effects.  One side effect that is prominently displayed is constipation -- makes sense, as the pill affects the liquids in your digestive system, and loss of fluids is part of constipation -- so if you already have bowel problems, you should check with your doctor about dosage, and what to expect.

 

You should be certain, though, that your problems are the neurogenic bladder, and not a bladder infection, which can become chronic.  Even with a neurogenic bladder and these meds, one can get a bladder infection!

 

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/25/2007 10:11 AM (GMT -6)   
Hey Pam

Hummm....this brings something to my attention that i hadn't considered before. Off and on i use Detrol. I was going to suggest that to u as well and i'm glad to see Uppity beat me to it as she explaines things sooo well. For me it works fine, but i don't like to stay on it (or other meds if possible) and seems as tho once things get back to normal i'm able to stop using it and move on. Maybe this would be a good med for u to ask u'r doc about. As Uppity said tho, be sure it's not an infection since they can cause the same type symptoms. I hope u can get some relief. When do u see u'r doc again?
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/25/2007 10:27 AM (GMT -6)   
Rhonda, you should check with your doctor and see if in fact you CAN just use Detrol "as needed". I am under the impression that you need to be on it continuously for the best effect? At any rate, indeed you need to experiment a bit, as Detrol did nothing for me, and I went back to the oxybutanin. At least it's cheaper! :)
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


mesea
Regular Member


Date Joined Nov 2006
Total Posts : 162
   Posted 1/25/2007 10:56 AM (GMT -6)   
I use Vesicare . It works pretty well for me. I still have the urge pretty often, but at least am usually able to hold it until I get to the bathroom. I think I may ask my doctor to change my prescription to the oxybutanin. I wasn't aware that there was a generic form of any of these meds. If it works for me this would be a great help as I have one med that I'm paying full price for because I can't get it generic and must have it. In my state if your on MEDICAID you can only get 2 brand name prescriptions and 3 generic ones. Thanks uppity u'r always such a help.
booboobum, I was onDetrol for a couple of yrs. It worked great for me for a while and then stopped working as well. I tried some kind of patch that I can't remember the name of tat did absolutely nothing for me. Then , my dr prescribed Vesicare. So far it's been working pretty well. Hope this has helped.BYE!!!

Sheila

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/25/2007 12:06 PM (GMT -6)   
Hey Uppity

Thanks for the advice. I will be checking with my doc. This is one of those meds that i started on after my hysterectomy and felt the need was due to possibly my bladder dropping after that surg. U know, everything just finding a new home. Well when i used it for awhile things got better and then i was able to quit. I do still find myself with days at a time where i go all the time, but the times i use the Detrol are when i find myself not really feeling like i have enuf time to get to the bathroom all the way. As yucky as this will sound...when i have leaks. When i use this for about a week to week and a half i'm better and get off it. Things seem fine after that except for the off and on spurts of going a lot. U know, as u read here and think about things, u begin to see parts and pieces of things that u just sorta take as 'normal' for u'rself when in actuality u should prob be considering them more closely. I've assumed this was still due to bladder droopage/dropping and as long as i've been able to control it i suppose it's not been enuf of an issue to think about. I'll be bringing this up at my next appt and in the meantime will call my doc to get his input on usage. And yes, if there's a cheaper version/other drug i DEFINATELY want to try it! Thanks again! ;)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/25/2007 12:13 PM (GMT -6)   
Yes, both Detrol and Ditropan have "generic" versions of the regular doses of those.. but not the "timed release" version. It's strange -- lots of folks claim that the "brand" drugs work better for them...but I found just the opposite with the Ditropan. The Ditropan didn't help much at all, where the oxybutanin -- it's generic version -- works OK. So that's what I take.

I do always encourage folks to ask about generic versions of the drugs you're on, though .. if they work well for you, why pay the exorbitant "brand" price? These days, too, some insurance companies (like mine) won't pay for the brand unless my doctor *specifically* asks for it, and "justifies it's use". So my doc was glad I went back to the generic, too! :)
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/25/2007 12:24 PM (GMT -6)   
My docs are great about trying to give me samples to try before investing in the drug, so that's where i started the brand name product...the Detrol...and just kept using it since it worked. I never asked about generic...never thought to. With my ins being so quarky ...almost non existent...it'd be great to get a cheaper version. I've seen that some of the meds i've used...other product too for that matter...work as well in generic as in brand names and have no aversion to them at all. I agree...if it works and is cheaper...why not! In the past i've had the same issues...doc must show reason for asking for brand name..and now it's really an issue since i use that discount card and still pay hefty at times. Thanks for this...and i'm sure many here will benefit from u'r posts. All to often we don't think about the things like this...just take what we're told and move on. Well there are ways to do as u need to do and help u'r pocket book too. Thanks Uppity!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


booboobum
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 1/25/2007 1:01 PM (GMT -6)   

Thanks everyone - all this information certainly helps.  I do get frequent UTI's (about 2-3 times a year), but I was told that I get them because my bladder never really empties all the way which makes it easier for the bacteria to grow.   I will definitely take into consideration my bowel issue too, but since I'm IBS-D - maybe it will help. (lol) :-)

I have an arsenal of information now that I can review and talk over with my doctore - I find this is much better than just leaving everything up to the doc. I will be better able to discuss possible side effects etc.

I said it before and I'm sure I will say it a million times - you guys are the best!

Pam


migraines since 1974; septic hip - 1999 with birth of daughter ; hip replacement 9/2003; MS limbo since 3/2004; dx IBS - 5/2005;dx acid reflux - 11/2006; dx compressed L4-5 and T 7-8 - 5/2006; dx RLS - 9/2006
Clonopin, hydrocodone, Butalbital, prevacid and anything else that helps!

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