Is Anyone on Copaxone?

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littlechina
Regular Member


Date Joined Jan 2007
Total Posts : 97
   Posted 1/29/2007 1:31 AM (GMT -6)   
I am considering trying Copaxone. This is all new to me. It's one thing to read about this drug, but another to hear it from an actual person. If you are on it, has it helped you? Have you experienced any of the possible side effects? I appreciate anyone willing to share with me! Thank you!

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 1/29/2007 6:48 AM (GMT -6)   
Hi littlechina,
 
    My husband has been on Copaxone for six years and the side effects are pretty much nonexistant.  He does have some stinging with the injection itself and on a very few occasions some chest pain but that goes away in about 15 minutes after injection.  Since he has been taking it there has been no noticable progression and he has gotten two MRI's since starting it which both showed no new lesions.  It does not help with symptoms, none of the injection therapies for MS promise to do that, and none of them promise to stop progression completely but in his case it has slowed it down to a crawl so we are very happy with it's effectiveness.   Good luck with your decision and if you have further questions, don't hesitiate to ask :)
 
Kimber
 
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ConfusedGal
Regular Member


Date Joined Oct 2006
Total Posts : 77
   Posted 1/29/2007 9:32 AM (GMT -6)   
Hi there,
 
I have been on Copaxone for about 3 1/2 weeks. The only main reaction I have had are site reactions. I get a big bump at the injection site which takes a few days to die down... Beyond that, nothing much. And the bumps only come in certain injection sites for me. Like my arms cause I dont have a lot of fat there... They tend to come up where there is not a lot of tissue... But some people dont have them at all. Beyond that, its fine. Annoying to do every day but not bad and the shot itself is not really painful. Good luck!

MSBLESSED
Regular Member


Date Joined Feb 2007
Total Posts : 70
   Posted 2/4/2007 1:15 AM (GMT -6)   
I've been on Copaxone since January 2, 2007 and am doing ok wih it. Aside from the injection site reactions, which they warn you about before hand (red, swollen, itchy and lumpy areas) it's been great for me. My biggest challenge has been fatigue. I was perscribed Ritalin by my Neuro but it doesn't seem to do much for me. I can take a 3 hour nap at any given moment. I know the thought of getting a shot every single day for the rest of your life is not a nice thought, but it was my only option. I have a MAJOR fear of needles and it's the only one I could find with the Autoject2. I never have to see the needle going in. It's wonderful. I'm not sure what area you are in but I live in Sac and have Kaiser Insurance. They put me in touch with a group called Shared Solutions. They have been so great, words don't even begin to express my gratitude. So like I said earlier, the daily shot sucks, but not having to see the needle makes up for it. The other therapy my neuro suggested (Avenox) is weekly but it's a bigger needle and there is no autoject pen to do it. It also goes directly into the muscle, which requires a longer needle. NO THANK YOU! I hope this information has been helpful. Feel free to ask me anything. I'm here to support anyone I can.

littlechina
Regular Member


Date Joined Jan 2007
Total Posts : 97
   Posted 2/4/2007 11:03 AM (GMT -6)   
MSBlessed,

Thanks for sharing your experience. I have now done three days of shots with the Copaxone. I too have a huge fear of needles so this has been a hurdle for me :) They tried to get me to do it the first time, but I had a huge panic attack in the office. My husband has graciously agreed to do my shots until I am comfortable trying it myself (I have been doing his IV injections for his condition for the last 5 years...so I guess it evens out :)). So far it hasn't been too bad. I hear ya on the fatigue. Sheesh. I'm wiped. I haven't had any injection site reactions so far, but I get a bit nauseated after the shot. And I'm lightheaded sometimes. Still, overall, it seems pretty tolerable.

Does it burn and ache for you when it goes in? Last night was the first time it didn't ache as it went in, but it did afterwards as usual. It lingers for about 10-15 minutes before it starts going away.

No one offered us the option of the autoinjector, and I suppose I can ask for it, but I am a little hesitant. I have read that some people have trouble with them malfunctioning. Have you ever experienced that?

Where do you do your shots? I have stuck to my thighs so far, but am worried I will run out of space soon and need to rotate somewhere else for a while. I am really really hesitant of trying my tummy. Again, the needle thing (cringe) but also I don't know how that burny crampy feeling will feel in that area. Have you had any experience with that?

Again, thanks for sharing and for letting me ask questions! It heartens me to hear that there are people out there doing okay on this drug! Good luck with everything and God Bless ya! :)

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 2/4/2007 1:14 PM (GMT -6)   
Hi Littlechina,
 
    Congratulations!  I'm glad you started on it!  Yes, just call shared solutions and ask about the autoinjector and they will replace it for free if it breaks, we did have that happen to us once.  It might be easier for you to do it yourself with the autoinjector as it does hide the needle, big plus for those who are needle shy :-)   Yes it does burn going in but there are a couple things you can try to make that less.  Using a warm compress on the area before injection, letting the shot warm up to room temperature first, and icing the area after injection might help with that.  Good luck!
 
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MSBLESSED
Regular Member


Date Joined Feb 2007
Total Posts : 70
   Posted 2/5/2007 10:53 PM (GMT -6)   
Good evening Littlechina,

It's easier for me to cut and paste your original post and type in caps my response. I don't want to miss answering any of your questions, but didn't want you to think I'm yelling by typing in caps! :-)

Thanks for sharing your experience. I'M GLAD I COULD HELP! ASK AWAY!

I have now done three days of shots with the Copaxone. GOOD FOR YOU!! I'M PROUD OF YOU!!

I too have a huge fear of needles so this has been a hurdle for me :) They tried to get me to do it the first time, but I had a huge panic attack in the office. SEEING THE NEEDLE AND DOING IT MYSELF WAS NOT AN OPTION SO I DIDN'T EVEN DO THE TRAINING UNTIL THE AUTOJECT ARRIVED!! IT TOOK about 3 DAYS FOR THEM TO SHIP IT AND ALL YOU NEED IS A RX FROM YOUR DOCTOR.

My husband has graciously agreed to do my shots until I am comfortable trying it myself (I have been doing his IV injections for his condition for the last 5 years...so I guess it evens out :)). So far it hasn't been too bad. I'M GLAD YOU HAVE A SUPPORTIVE HUSBAND. IT'S VERY IMPORTANT. MY HUBBY HAS BEEN A LITTLE SQUEEMISH A OUT THE WHOLE MS THING, SO I'VE TRIED TO DO THE INJECTIONS WHILE HE'S NOT AROUND. :-(

I hear ya on the fatigue. Sheesh. I'm wiped. I WORK 6 HOURS A DAY AS A SYSTEM TESTER AND AFTER WORK PICK UP MY DAUGHTER FROM SCHOOL, I COME HOME IMMEDIATELY AND TAKE A 3 HOUR NAP. I'M USUALLY READY FOR BED AROUND 11PM. I'M REALLY STRUGGLING WITH THE FATIGUE. I E-MAILED MY NEURO JUST TODAY AND ASKED about OTHER OPTIONS.

I haven't had any injection site reactions so far, but I get a bit nauseated after the shot. And I'm lightheaded sometimes. Still, overall, it seems pretty tolerable. I TYPICALLY DO MY SHOT RIGHT BEFORE I GO TO BED, SO HAVE VERY LITTLE SIDE EFFECTS. JUST MY "LOVE LUMPS" AS I LOVINGLY CALL THEM.

Does it burn and ache for you when it goes in? Last night was the first time it didn't ache as it went in, but it did afterwards as usual. It lingers for about 10-15 minutes before it starts going away. YES, IT BURNS BUT ONLY FOR A BIT. I ICE IT RIGHT AFTER I DO THE INJECTION AND I'M NOT SURE WHICH ONE HURTS MORE. ICE SUCKS BUT HELPS WITH MY "LOVE LUMPS!" :-)

No one offered us the option of the autoinjector, and I suppose I can ask for it, but I am a little hesitant. I have read that some people have trouble with them malfunctioning. Have you ever experienced that? RESEARCH SHARED SOLUTIONS. THEY ARE WONDERFUL AND THEY ARE A GREAT SOURCE OF SUPPORT. NEVER HAD ANY PROBLEMS WITH THE AUTOJECT2. QUICK AND EASY!! ESPECIALLY IF YOU HAVE A FEAR OF NEEDLES! TRY IT. IF IT DOESN'T WORK, THEN GO BACK TO THE MANUAL WAY. IT'S WORTH A TRY. LET ME KNOW HOW IT GOES.

Where do you do your shots? I have stuck to my thighs so far, but am worried I will run out of space soon and need to rotate somewhere else for a while. I am really really hesitant of trying my tummy. Again, the needle thing (cringe) but also I don't know how that burny crampy feeling will feel in that area. Have you had any experience with that? GO FOR THE TUMMY!! JUST DO IT. IT HURTS WAYYYYYYYY LESS! I WAS CREEPED OUT WITH THE THOUGHT OF IT AT FIRST, BUT ONCE I DID IT, I WAS HOOKED. IT'S BY FAR THE BEST SPOT ON MY BODY. I COULDN'T BELIEVE IT. YOU WOULD THINK IT IT WOULD REALLY HURT. NOT EVEN CLOSE! MY THIGHS ARE WAYYYYY WORSE. TRY IT. IF YOU CAN HANDLE THE THIGHS YOUR TUMMY WILL BE A PIECE OF CAKE! TRUST ME! PLEASE E-MAIL ME AND LET ME KNOW HOW IT GOES. YOU'LL BE THRILLED WITH THE RESULTS.

Again, thanks for sharing and for letting me ask questions! It heartens me to hear that there are people out there doing okay on this drug! Good luck with everything and God Bless ya! :) GOD CONTINUES TO GIVE ME STRENGTH TO DO THESE DAILY SHOTS, AND HE'LL DO THE SAME FOR YOU. I'M REALLY HERE FOR YOU. IF YOU NEED ME FEEL FREE TO E-MAIL ME AT MY PERSONAL ACCOUNT AT GABIN98@AOL.COM. MAY GOD CONTINUE TO BLESS YOU. WE'LL GET THROUGH THIS TOGETHER WITH 'HIS' HELP.
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