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Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 1/30/2007 9:57 PM (GMT -6)   
Well, went for my follow-up today, waited 3 hours to see the doc.  She wants me to up the Metanx to two tablets a day now, instead of one.  Never mentioned anything about a lumbar puncture.  I told her about how my weird feelingds are worse with clothing on, and how I itch and feel like bugs are crawling on me.  She asked if I was ever tested for allergies.  She said to try to wear nothing but cotton clothing.  Maybe thats why my bed sheets don't bring those weird feelings on, I sleep with flannel sheets year round, I love them.  And she gave me a script for Atarax.  Seems like a lost cause.  If I don't see any improvement, I'm looking for a MS specialist.  I seriously think that she thinks I'm mental, no kidding.  Thanks for listening to me vent.  Jen

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 1/30/2007 10:03 PM (GMT -6)   
So sorry Jenny that you were made to feel that way by the doc.  Folks don't know how blessed they are if they haven't ever experienced that!
 
I hope you will find answers soon.  Be sure to keep a daily log of symptoms and if you still feel you aren't being taken seriously then look for an ms specialist.
 
Take care and in the meantime I hope the meds help your symptoms. :-)
Michelle ><>
Co-Moderator MS forum
 
Happiness is not a destination but a day-to-day journey..


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/30/2007 10:06 PM (GMT -6)   
Hey Jenny

Well i'm glad u saw the doc today and i'm glad she's trying this method. Who knows, it well could have something to do with allergies. At least in trying this u'll be able to say u've done it...if it helps that's great!...if not then u move on from that. I would never have believed my eye probs were migraines, but now i can only believe that because the migraine med is working. Hang in there. Try this and if u still feel u need to move on to an MS specialist, then do that. It's not a lost cause...it just takes time with things unknown. U'r doing great and u'r going to get to the bottom of this. ;)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/31/2007 11:55 AM (GMT -6)   

All of your MRI's have come back negative for MS. Your symptoms are not indicative of MS. A doctor has told you to undergo testing for migraines, which you haven't done, and now a doctor (the same one? a different one?) has suggested your problems might be allergies (or at least, skin sensitivies), but you're not following up on that. How many neuros, or MS specialists will you see before you're convinced that maybe you don't have MS?

A lumbar puncture is an invasive procedure, not likely to be conducted unless there is some evidence that there is some disorder (not necessarily MS, but something  ) that might show up in the spinal fluid. Not all diseases show up there. Apparently the doctor isn't convinced that there is enough evidence to warrant that, so that's why she's not considering it.

You're dismayed because the doctor might "think you're mental".  She does think you're suffering from anxiety (which is why she prescribed the Atarax)-- which is expected, because you're convinced you have a disease for which there is very little evidence, and when doctors suggest you be tested for things for which there is some evidence (migraines, allergies), you're choosing to not follow up, but instead pursue your theory that you have MS. 

I've nothing more to offer you. I'm sorry you're still feeling all these sensations.  I hope some day you'll get to the bottom of what is causing the difficulties.

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 1/31/2007 10:29 PM (GMT -6)   
Uppitycats, The neuro prescribed the Atarax because she said that her son has allergies to synthetic fibers, and was given Atarax because of the "weird feelings" that he was complaining of, itching, etc....  As far as the migraines, I have no prescription coverage, the Topamax is $79 for 30 pills, I have to take 2 a day, which would make it $158 a month for meds.  I'm sorry, but I truly am not making any of this up, I suffer with these weird, strange, sometimes painful feelings everyday of my life.  My husband and I have just built a new home, my mortgage alone is about 5 times higher than the cost of the Topamax would be for a month.  I don't have the money at this point to start the meds.  I have been taking Metanx, and now the Atarax that is going to cost around $90 a month.  To some this might be loose change, but for me, its rough!!!  I have a new, big beautiful home, and I can't even enjoy it because of what ever the heck is wrong with me.  So, this is why I haven't pursued the migraine thing, I take Relpax now which is an abortive med, the Topamax is a preventative med.  These were given to me as samples.  I have made an appointment today to see an allergist.  Thanks for the comment!!!! 

Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 1/31/2007 10:31 PM (GMT -6)   
Oh, another thing, this is the first neuro that I have seen since this all started 6 years ago.  My PCP is the one that ordered the brain and c-spine MRI.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/1/2007 12:29 AM (GMT -6)   
Hey Jenny

That med can be expensive. There are a few sites u can go to for help with pricing...discounts from the manufacturer. I was given some sites by other members here some time back for my own use and did apply for a discount for my migraine med. So far i haven't heard back, but suspect it just takes time. One of the sites i was given was www.needymeds.com. Here are a few others.

www.myrxadvocate.com
www.freemedicinefoundation.com

It may take some time to get this set up and see the discounts on u'r meds, but until then maybe u'r doc would be willing to provide the samples a little longer. My mother in law is unable to work and uses medicare (medicaide?) and has a supplemental ins plan as well...still her meds are quite expensive and hard for her to purchase. She now gets samples from her doc on an almost regular basis. I guess it really depends on the doc and the office policy. Worth a try tho!!

Congrats on the new home! Quite a feat with all the work involved in building. Try to enjoy it and maybe soon everything will work out.


rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

Post Edited (rhondab) : 1/31/2007 11:34:32 PM (GMT-7)


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/1/2007 6:44 AM (GMT -6)   
Jenny R. said...
Uppitycats, The neuro prescribed the Atarax because she said that her son has allergies to synthetic fibers, and was given Atarax because of the "weird feelings" that he was complaining of, itching, etc....  As far as the migraines, I have no prescription coverage, the Topamax is $79 for 30 pills, I have to take 2 a day, which would make it $158 a month for meds.  I'm sorry, but I truly am not making any of this up, I suffer with these weird, strange, sometimes painful feelings everyday of my life.  My husband and I have just built a new home, my mortgage alone is about 5 times higher than the cost of the Topamax would be for a month.  I don't have the money at this point to start the meds.  I have been taking Metanx, and now the Atarax that is going to cost around $90 a month.  To some this might be loose change, but for me, its rough!!!  I have a new, big beautiful home, and I can't even enjoy it because of what ever the heck is wrong with me.  So, this is why I haven't pursued the migraine thing, I take Relpax now which is an abortive med, the Topamax is a preventative med.  These were given to me as samples.  I have made an appointment today to see an allergist.  Thanks for the comment!!!! 

I have NEVER suggested that you don't have something wrong. Clearly there is something going on internally with your body.  I NEVER suggested you are making up your symptoms.  I AM suggesting that you're spending lots of time and anxiety convinced that you have MS when you've been given more than a couple good suggestions of what might be ailing you.  Going to neuros is expensive, particularly when what might indeed be ailing you isn't a neurological condition, and you're spending time and money investigating something that they can't treat, anyway.  I'm glad you're seeing an allergist. Maybe that will set you off on the right track to get some treatment for your condition.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 2/1/2007 7:00 AM (GMT -6)   
Hey Jenny -

(Sorry, when I say that I think of Forrest Gump) Did I make you smile? :o)

Could the buggy crawly feelings be caused by the Topamax? I know it has some funky side affects. I'm on it and my normal numbness that I had prior to being put on the Topamax is intensified and the arms and legs tingling at night symptoms prior to Topamax is now pretty constant in the hands and feet on the Topamax. I'm only on 50 mg also (taken all at night). But just wondering if your Doc may have thought about that? So I guess what I'm trying to say that may not be coming out right is symptoms prior to Topamax, annoying, but livable, symptoms after Topamax frightening.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 2/1/2007 2:27 PM (GMT -6)   
Hello Denda, I have had these feelings for 6 years, prior to taking any kinds of meds for anything.  The only thing that I took then was Advil.  I do know that the Prozac made everything worse.  As far as the Topamax, I never taken it, just Relpax, and all this does is make me tired.  Thanks for the suggestion though.  Jen :-)

BGD2Me
Regular Member


Date Joined Apr 2006
Total Posts : 366
   Posted 2/1/2007 10:49 PM (GMT -6)   
Jenny,

I am a little confused as to what your doc is scripting Metanx for. Have your labs shown vitamin deficiencies? Is she looking at a possible B-12 deficiency as an explanation of your symptoms?

Just trying to get it straight in my head.

Justin

PS. Atarax is used not only for anxiety, but also for certain allergies (contact dermatoses being one of these.)
When everything's coming your way, you're in the wrong lane.

Post Edited (BGD2Me) : 2/1/2007 9:54:21 PM (GMT-7)


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 2/2/2007 9:44 AM (GMT -6)   
BGD2ME, Yes, you are right, Atatrax is also prescribed for allergies, contact dermatoses, not just anxiety.  She prescribed this because of my symptoms of itching, bug crawling sensations, etc...  I have never been checked for vitamin deficencies.  She prescribed the Metanx because she had a few other patients with the same symptoms, and it helped them.  I'm up to two tablets now, and it seems to be helping more.  The reason that I was upset that she didn't mention any other testing be done was because I know that there is something going on, my gram was supposedly had MS, diagnosed at age 60, although had symptoms for 10 years beforehand.  As far as evoked potential testing, she told me on my first visit that they were useless.  Sooo, this is the reason why I am going to seek out a MS specialist, after I see an allergist.  Thank you, Jen!!
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