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Manel
New Member


Date Joined Jan 2007
Total Posts : 2
   Posted 1/31/2007 8:14 PM (GMT -6)   
Hi everyone ,
 
 
My name is Manel , i´m a 28 years old guy from Portugal.
I´ve been diagnosed with Relapsing-remitting MS  last summer althought my first incident was 5 years ago.
Í´ve had 2 big ones and two lighter ones a short while after those and always with the same symptoms of the previous one.
It´s my first post on an MS forum ever . It took me a while to make the decision to take this step but now i can see it´s the thing to do.
This desease has been very hard to acept for me (as for everyone i guess ) , i used to be a professional athlete (rugby) and a very active person , always doing a thousand things and always open to some more.
That as changed now. I now am at the verge of taking that famous decision : To medicate or not to medicate - thats the question.
This are the facts:
I always recovered totally from everything and have no permanent sequels (that i know of) , one time my balance and right limbs where affected , and the other tme it was my vision.
I feel good and healthy although i notice that i get tired more easilly and have adapted my lifestyle and work to this.
 
My neuro has advised me start on Betaferon.I´ve now done the exams to get government sponsrship for that and it should be ok.
 
The problems is that i think that whitout noticing i am blocking that in mi mind , as i feel great and know the side effects that this drug has.
 
I have joined a local support group and seen all kinds of cases and i can´t seem to form a definite opinion about this. Off course all of this has been haunting me on a daily basis .(i dont sleep thinking about it , i dont wake up to go to work , i go late or call in sick , then i have problems ).Its really affecting my mind right now.
 
I need some advise. Have any of you guys been in this situation ??
I would love to hear your feedback.
 
P.S - Sorry if my english looks strange , its not my native language , although its my work one.
 
 
All the best for everyone here , we all deserve that.
 
Manel

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/31/2007 10:53 PM (GMT -6)   
Hey Manel

Welcome to the board. I'm so sorry u'r having these troubles and for u'r dx. It truely must be heartbreaking to hear for u'rself. I"m not diagnosed and can't give u any personal experience as to the use and side effects of Betaseron or any of the other meds, but i can tell u the general concenses is that the sooner u start on the meds the better. The belief is that the meds try to slow progression and as well try to lessen the number of and severity of flares. So far u have recovered from the flares u'v had...that's great! Why continue to take chances on recovering the next time...and the next. I know this decision isn't to be taken lightly, but it's really down to this. U take it and have a fighting chance or u don't and u let what happens happen. Maybe if the side effects are too much for u, then u try another of the meds...until u find the best 'fit' for u and u'r lifestyle.

I truely hope u'll begin to feel better about all this soon. U really have to take good care of u'rself and get that sleep u'r missing. Stressing out u'r body is no good for ms. I'm very glad u found us and that u'r taking part in the support group. That's prob the best thing u could do for u'rself...short of getting on med. Hang in there. Ask lots of questions and we'll be here to help all we can.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/1/2007 6:51 AM (GMT -6)   

Hello, Manel,

I'm sure it has to be a difficult decision for you -- feeling relatively well, not having visible symptoms in between bouts and seeming to recover.  All I can offer is this bit of information: MS continues to affect your nervous system, without you knowing it.  Not every new lesion, not every incident, affects you externally where you'd have symptoms you would see or notice.  Betaferon (known as Betaseron here in the US) is one of the drugs which promises to help slow that progression.

With MS, it's hard to know what to predict -- you could have no problems for a very long time, or you could wake up tomorrow with a severe incident which would leave you disabled.  I think you should follow your doctor's advice and start on the Betaferon.

Good luck to you!


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Manel
New Member


Date Joined Jan 2007
Total Posts : 2
   Posted 2/1/2007 4:03 PM (GMT -6)   

Thanks a lot guys !!! i really needed some advice , probably what i really needed was for someone to tell me that i should take it , because i´ve always known its the right thing to do . But i needed to ear it from someone who´s been there .Thanks a lot again.

 

I´ll keep you posted on the situation . its to bad we have to meet because of this terrible desease but at the same time its good to know that even with an Ocean in between peaple are willing to help.

Sincerely yours

 

Manel


photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 2/3/2007 1:35 AM (GMT -6)   
Hi Manel,
 
I just wanted to share my Betaseron experience with you.  I am one of the lucky ones and really have no side effects except for bruises everytime.  I take my ibuprofen with my injection, and I've only had the flu-like side effects 3 times since starting on it last May, and it was not too bad.
 
In my case, the injections are no problem at all, and I hope it's the same for you. yeah
 
Shar
Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron

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