Neuro Visit Update

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Denda
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Date Joined Jun 2006
Total Posts : 329
   Posted 2/1/2007 5:50 PM (GMT -6)   
Hi All -
 
Spent a little over an hour with my neuro today with my symptom list.  eyes We talked about most everything on it and my results of the lp.  Since everything came back normal with the LP, but I have the lesions in the wrong place and symptoms she wants to refer me to her mentor up in Detroit, a Dr. L, he's a well-known neurologist and MS specialist.  I guess it takes months to get into this guy and probably won't get into him until late spring.  She scheduled a follow up MRI for April, but doesn't think too much of the EVP tests so she's not going to schedule one for me unless I insist.  I'm not going to insist.  I'll wait and see what Dr L says.
 
She's confident that the location of the lesions are not the reason for the cognitive issues, she did ask me to call my gyno to see if he can run some tests to see if I'm going through my change early.  I had a hysto 2 years ago, but he left the ovaries so I wouldn't go into menopause, I guess they may not be working.  I guess congnitive issues come with menopause..  We'll see.  If that's not it, I guess my fate is in Dr L.'s hands... confused
 
So, at this time I'm in the wait and see mode. 


I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President

Post Edited (Denda) : 2/1/2007 4:54:29 PM (GMT-7)


shellypoo
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Date Joined Dec 2005
Total Posts : 896
   Posted 2/1/2007 6:27 PM (GMT -6)   
Denda,
It sounds like you had a good visit!!  It's strange your doc said you don't have lesions in a place to cause cognitive issues.  My neuros both tell me there are lesions not visible with mri and they don't know all about lesion placement and it's effects.  Maybe the gyno will have some info. for you, it does cause some fogginess with low estrogen.
Take care..I hope your appt.s come available very soon!
Michelle ><>
Co-Moderator MS forum
 
Happiness is not a destination but a day-to-day journey..


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 2/1/2007 6:57 PM (GMT -6)   
Hi Michelle -

I kind of thought that too (about the location of the lesions), but I wasn't going to argue with someone who went to school for this stuff for umpteen years, I'll ask Dr. L the same questions. I thought it was weird that she doesn't put much into the EVP's either. That's a major MS test. I think if she would not have suggested to go to this other Dr, I would have pushed for more information. Like I told her, I'm not looking for a dx of MS, I'm looking for what is wrong with me. If it comes down to they can't find anything, I'll accept that and move on until something new comes up.
For the cognitive stuff, if fogginess is the most confusion you get with the change, that's not what I have, I have complete kaos in my mind, but I think she knew I was not letting up on this issue and she had no answers for me.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


rhondab
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Date Joined Mar 2006
Total Posts : 2146
   Posted 2/1/2007 8:59 PM (GMT -6)   
Hey Denda!

Wow...GOOD visit!! It sounds like u'r doc spent a lot of time and was really listening to u. Great! I'm also curious about the lesion placement vs deficit...would be great to see what they tell u. Interesting that she wants u to see a gyn as well for u'r symptoms, i was just discussing this with someone else and wondering just how much they can affect u in the ways of these symptoms we are all experiencing.

I hope u can get into that new doc very soon. Seems u'r being very well taken car of and that's great! Let us know how it all goes.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 2/1/2007 9:40 PM (GMT -6)   
Was it that the lesions were in the "wrong place" for her to diagnose MS, perhaps? There are generally specific areas of the brain where, if lesions appear, it's indicative of MS...but if they appear in other areas, it could be other problems. It's quite true that they don't know all the exact correlations between lesion location and symptoms, but they do know some of them...so maybe that's what she's meaning?

Yes, cognitive issues can be part of menopause -- the hormone fluctuations can create all sorts of problems, that generally level off once you're through all that. Peri-menopause and menopause can cause all sorts of physical problems, some of which "look like" neurological problems; it's good to check that out, if you're a woman, and "of age".
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 2/2/2007 8:58 AM (GMT -6)   
Hi Uppity -
I said that wrong. The white spots are in a location indicative of a myelenting disease (per mri report). I guess I meant 'wrong place' for my well being. Sorry for the confusion. All virus tests on the LP and blood work came out fine, no elavated numbers anywhere and she seems to feel if the LP is normal there is no MS. But she also says there is something that she can't put her finger on and wanted the second opinion of the other Neuro and the Gyno. I'm only 38, but my mom went through her change at 45, so since I had the hysto, I guess I could be going through it earlier. We'll see what the gyno says. What's another dr's opinion? :o)
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/2/2007 10:22 AM (GMT -6)   
Yes, hormone fluctuations can start occurring as early as mid-30's....so it's possible. I hope you get to the bottom of your difficulties.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/2/2007 12:10 PM (GMT -6)   
Denda

I'm 38 as well and had my hysterectomy at age 36. All my hormone levels are fine, yet my gyn feels i'm prob going thru early menopause. Funny, doesn't show up per testing. Just fyi...u never know! ;(
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 2/2/2007 12:21 PM (GMT -6)   
Hey Rhonda -
 
So your lab tests don't show elevated hormones, but your gyno still feels that you're going through it?  Were you able to get any meds to help it and if so, did it help?  I'm really scared about meds.  I've never been a med taker and now I'm on this Topamax for the minor seizures and hear horror stories about hormone medication. On top of reading about all of what all these poor people are going through with their MS CRABS.. UGH..  sad
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/2/2007 12:59 PM (GMT -6)   
Hey Denda

Well that's a loaded question for me...prob one i should consider more for myself. Yes, my gyn feels i'm in early menopause, but no i'm not on any meds. In past times, my only doc i went to was my gyn, so when all this began (general not feling good...fatigued all the time) i went to him. That's when he told me that. All was fine, i left expecting to go thru the normal 'hot flashes' and such. I can't say for sure that i have had any hot flashes, but certainly i'm much warmer than i've been all my life. In short i get hot much easier and at times i shouldn't be now when in the past i was a very cold person all the time. (my family always said i just didn't have any blood in me...that kind of cold all the time) My doc didnt give me any meds and i didn't ask for any. Shortly after that is when i began seeing the internal med doc for the blood probs i had and then on to the neuro for these funky ms type things. I never revisited the menopause thing until recently when someone posted to me that these symptoms could be related. As i told someone else, i see where some can be, but so far i've been unable to say all my symptoms are wholly contributable to menopause. In short, i should prob see my gyn as well and see if he can settle any of this for me. I'm not a med taker either. I DO believe if there's an ill there's a pill, but not that one should just take something without being fully aware of what it is and why they're taking it...and stop taking it as soon as they're able. I too have heard bad things about hormone pills/shots and have no desire to take them. Of course with my levels being normal i'm not supposed to need them. ;) Another thought...maybe at the time i saw my gyn he could provide no other reason for my complaints...maybe that's why my levels are fine yet he feels it's menopause. I guess it's a guessing game for the most part. Geez!!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 2/2/2007 1:10 PM (GMT -6)   
Thanks Rhonda! I'm sorry to make you explain everything again, you could have just said 'go look at this post'. I wouldn't have minded. :o) We'll see what happens.

I'm not having any hot flashes either, that I can think of. I get really hot every once in a great while at night in bed, but nothing like what I've seen my aunts and mom go through where they just start dripping in sweat and turn all red and feel sick. And I don't feel that I'm on an emotional rollercoaster even with all of this other unkown crap going on, so I was kind of surprised by this suggestion, but we'll see how the test comes back.

My gyno is mailing the lab order to me and I'll go have it next week and see what happens. I'll be surprised if anything, but hey, who knows, I was surprised when they found spots on the MRI... Thinking you're healthy and truly being healthy are two totally different things and there are surprises around every corner which I'm starting to learn!

Have a great weekend.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/2/2007 1:22 PM (GMT -6)   
Hey Denda!

No prob! I just meant loaded question because i really needed to think about that for myself as well. I never mind explaining anything i can to u or anyone else and i wouldn't dream of u going looking for another thread when i'm able to tell u here anyway! (keeps my weak brain working! :) Ask away...and maybe i'll know! ;)

I know exactly what u mean...nothing...no typical menopause symptoms as i've seen in my family and others. Like u, i've been hot in bed before, but nothing different than the hot during the day i told u about before. Same on the emotions as well...i'm not depressed, upset, confrontational, anything! It's just same ole' me.

That's interesting that u'r doc is mailing u'r orders to u...i always have to go get them! At any rate, please let me know how the results come out. Yes, anything can happen as we've seen. :( Fortunately we live in the best possible time for these funky probs...and hopefully we'll be better off for it. Let me know how u'r doing and how that test goes. I'll be thinking of u and keeping u in my prayers.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 2/2/2007 5:19 PM (GMT -6)   
Friday p.m.
 
Good evening, Denda:
 
I live in Detroit area.  Been dx'ed with MS since 1987.
 
Dr. L  (Lisak?) is my neuro.  As they say in sports vernacular, he is 'da man.  And I have had neuros from around the country tell me that he is 'da man.
 
It will be worth your wait.
 
John

Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 2/2/2007 5:21 PM (GMT -6)   
...and last neuro spent an hour with you?
 
Wow....I thought those days were gone....John

Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 2/2/2007 6:20 PM (GMT -6)   
That's him! How cool! I was so worried about going to another dr. Thank you so much John for easing my nervousness. I didn't know if is was OK to say Dr names on here. My neuro thinks the world of this guy, I guess he taught her.

Yes, she spent over an hour with me. I really do like her, but I know she knew I was a little frustrated as well as she was with reading the LP stuff, but knowing the symptoms I'm having.

Thank you again for the words of comfort!
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 2/21/2007 12:47 PM (GMT -6)   
Hi All -

Just an update...

Just got a call from my gyno stating all the hormone blood work came back normal, so let's check that off the rule out list. I then called my Neuro's office wondering why I have not heard from Dr. L's office and it seems my Neuro has not gotten around to sending Dr. L her patient xfer & request for 2nd opinion letter yet. UGH! So I was told to call back in one week and the nurse will make sure everything is moving again by then.
 
I took myself off of the Topamax for a while since that seemed to intensify any sensory issue or 'symptom' that I had, it really hasn't helped much with the random tremors any ways and that's why I was put on it (possible minor seizures vs tremors).  Still looking for a natural pick me up, looking at the Vitamin B stuff, but that looks like it boosts the immune system as well.  I'll let you all know if I find anything more.
 
Thanks for listening


I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President

Post Edited (Denda) : 2/21/2007 11:52:42 AM (GMT-7)

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