Question.....just wondering

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got better things to do
Regular Member


Date Joined Jan 2006
Total Posts : 176
   Posted 2/1/2007 9:42 PM (GMT -6)   
 
Hello you all,
 I was just wondering, how is it that a neurologist determines what stage of M.S. a person is at??? confused Is it the number of lesions? The location of lesions?The number of exacerbations? I am really just clueless and feel like such and idiot when I leave my neuro appointments. I am driving down the road home and all these question pop into my head after what he has told me. So the not wanting to know me, just lets everything go.....(kind of an out of site out of mind) type of person. I hate knowing the facts, and I hate researching a facing the facts. Well I know it's a dumb question, but if you all would be so kind as to educate me I would greatly appreciate it. 
 
Thanks

Just when I was getting used to yesterday......Along came today.
 
             
~~LIFE~~


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 2/1/2007 10:28 PM (GMT -6)   
Wow, how'd you get the font so big???  In my own experience (it's all I have to offer,lol!), my neuro's go by the length of time you've had symptoms, how fast they are changing/sticking around, how symptoms have progressed (stayed) since diagnosis.  Also, are the symptoms getting worst and more disabling?
 
Because I have slow but steady worstening of symptoms and no flares to speak of then my docs believe I'm secondary progressive.
 
Sorry I can't educate you more, you know I have an ms head!! LOL! :-)
Michelle ><>
Co-Moderator MS forum
 
Happiness is not a destination but a day-to-day journey..


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/1/2007 10:28 PM (GMT -6)   
Hey Life!

Good to see u here again! I hope u'r doing better and getting along well. As far as i understand, it's decided more by what condition u'r in, the number of flares or whether or not they are true defined flares or more of a continual progression. I"m sure i'm not giving u the full details, but this is as much as i'm aware of. I'm sure others will be along soon to correct or expand on what i've said here. Take good care of u'rself and i'm so glad to see u again! :)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


got better things to do
Regular Member


Date Joined Jan 2006
Total Posts : 176
   Posted 2/2/2007 4:59 AM (GMT -6)   
Well Michelle,
Thats font thing is a very good question......here is my answer
I DUNNO but I am working on figuring it out....rofl
Just when I was getting used to yesterday......Along came today.
 
             
~~LIFE~~


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/2/2007 7:18 AM (GMT -6)   
Here, from the National Multiple Sclerosis website, is a description of the four "courses" of MS:
 
 
If this link doesn't work, go to the website and look for a definition of the disease, and this information will appear.
 
Basically -- it's not the number of lesions, or even the location of lesions, that is a determining factor. It's how the disease specifically affects you, the patient.  If you  have clearly defined episodes, or exacerbations, or flares (all the same thing) where symptoms intensify, maybe new symptoms occur...and then a remission (although there may always be some residual symptoms), then you're in the most common category of "relapsing-remitting". 
 
Generally over time, folks will start with relapsing-remitting, but then they'll realize that there isn't much remission from the last exacerbation. Then the doctors will decide it's "secondary-progressive".  The treatment these days is pretty much the same: one of the interferon drugs, to slow the progression.
 
You can have lots and lots of exacerbations, but so long as there is a clear remission between them, you'll be classified as "relapsing-remitting".
 
How do doctors determine this? By watching the patient over time, seeing how well they recover from flares, see if they still have flares. For example, I'm labeled "secondary-progressive".  I've not had any real exacerbation in years. Sometimes there is a small intensity of symptoms (like, increased spasticity, or loss of bladder control, or wonky vision, or...) and then it will fade in intensity...but it's always there. And I still have MS.  Not worsening significantly, but if measured over time, worse now than when I was labeled secondary-progressive, 12 or so years ago.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 2/2/2007 8:45 AM (GMT -6)   
Friday a.m.
 
Dear Life:
 
It is understandable...you have to deal with this blankin' disease.....many people are intimidated by going to the doctor....you are dealing with your disease....the doc may or may not have a good bedside manner....they are throwing all kinds of facts and options at you...
 
Here is a suggestion....before appt., write down all your questions.
 
Maybe that will help?
 
Great Luck.  John
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