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Daleski1976
New Member


Date Joined Feb 2007
Total Posts : 1
   Posted 2/6/2007 4:38 AM (GMT -6)   
Hi all,

I am new to this so please go easy on me.
I was recently diagnosed with ADEM and was told that this could later be rediagnosed as MS, as ADEM is almost the same as the first attack of MS.
I have multiple lesions on my brain and spine and have banding in CSF. I went for a follow up MRI of my spine and the genius's at the hospital have lost it. So I feel like I am just waiting around for the next episode(which may never happen).
After my original attack and treatment(IV Prednisolone folloed by a tapering oral dose) I seemed to be making a good recovery but recently I have numbness in my legs and left hip which had gone away. I sometimes jog to the train station after I finish work, which is about 100metres and have noticed that when I stop I am very unsteady on my feet and get a very uncomfortable tingling senasation. Although I had these symptoms before I had hoped that when they went away that would be the end of them, but alas they are here again.

Just wondered what you guys and gals thought. Is this normal.

Thanks in Advance

Daleski

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/6/2007 6:43 AM (GMT -6)   
Hey Daleski
Let me first welcome u to the board and tell u how sorry i am for u'r recent dx and troubles. None of this is fun and all of it is scary. I wanted to ask u about those follow up MRI's? If they've lost them, can't they simply do another? If they lost the film then it should be upon them to replace those film so u get some answers...u'r doc should be advocating this on u'r behalf.  Unfortunately, with MS (ADEM) the residual or continuing symptoms is quite possible. Sometimes with steroids it can take a while to see any results and sometimes u don't see any or any lasting results. As i've learned, steroids act differently with each person and with each occurance of use. The next time u try them u may have overwhelming success...or it may be exactly as it's been with this time. As far as with MS and the weak legs after jogging, yes that's typical. U'r extending u'rself beyond what u'r nervous system may be able to keep up with. Even with out jogging, at times u may find u'r legs feeling exactly that way. MS is not predictable to any certaintity other than it's pretty unpredictable. Having said that, u may begin to feel better and not have another flare for a long, long time...and i hope that's what happens with u. Please let us all know how u'r doing and if they were able to replace u'r MRI's. Again, welcome to the board! I hope u'll find this site supportive and helpful. This is a great group of people who're all willing to do what they can to help u. Also, we have live chat on Monday's at 6:00 pm (cst) and we'd love to have u join in!
 
I'm not familiar with ADEM so i went looking. I found this site and thought i'd share with everyone here what this is. I first thought it was a single episode or flare of symptoms that may or may not return. I see it's not. For those who don't know what it is (prob only me!) , here's a link.
 

 
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/6/2007 7:39 AM (GMT -6)   
Rhonda pretty much answered everything... The hospital should have rescheduled an MRI for you, at no cost, if they lost those records! Do call your doctor and report this increase of symptoms. That might trigger a follow-up visit and further diagnostic testing. Good luck to you.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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