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Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 2/7/2007 7:24 AM (GMT -6)   
Hi Everyone -
 
For the last 6 mos, I have successfully cut out almost all of my caffeine since I discovered that it did at to the tremors I was having, I still have them off the caffeine, but not as much.  I do however have a 1/2 can of Diet Coke or cup of tea or green tea in the morning to start me going, but that is about it.  I've noticed in the last couple of months I'm getting sick to my stomach in the morning after I have my daily caffeine, so I'm going to cut it out entirely however I'm already extremely weak and fatigued as it goes. 
 
Yesterday I moved 2 printers at work (I work in IT) granted they weighed about 50# each, but I was wiped out for the rest of the day and night and didn't get off the couch once I got home and today I'm wiped out.  I'm afraid if I kill the little bit of caffeine I have in my life, I'll be totally useless. (Yes, this may just be the addict in me talking (jonesing more like it)) tongue
 
I already take a womens multi vitamen, but can anyone suggest something 'natural' for the fatigue right now since my doctor doesn't want to prescribe anything until the 2nd opinion happens?  I do walk on an incline treadmill 3 times a week for 30 minutes in the morning and that does help the mind eventhough the body is wiped afterwards.  Any suggestions would be greatly appreciated.  Thanks a ton.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/7/2007 9:54 AM (GMT -6)   
Hey Denda

I'm so sorry about this for u. Seems sometimes no matter what u do, there's still some issue left waiting for u. I'm not sure of anything natural, but many here take Provigil if u'r doc does get to the point he'll prescribe something. It's good u'r on a multivitamin and are cutting out the caffiene...u'r a much stronger woman than me! Maybe someone else can do the heavy lifting for u? Be careful of the natural remedies. Some can boost u'r immune system inadvertently. I hope u get some help with this soon and get past this all. Please let us all know how u'r doing!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 2/7/2007 10:31 AM (GMT -6)   
Hi Denda,
 
   Goodness I am sorry your fatigue is getting bad.  I'm not aware of anything natural either unfortunately and as Rhonda says you should be careful with those type of products anyway.  You are already trying the exercise routine, and good for you I must say!  Sometimes the fatigue hits and doesn't have a cause to it, but sometimes too things like stress and overdoing definately can add to it.  So, in the meantime until you can get medication,  if you notice anything that you are doing that makes things worse for you (like the heavy lifting) see if you can find a way to reduce those types of activities.  Try to take more breaks at work if you can and if you can do most of your more challenging activities early in the day that might help as well.  I hope it gets better soon for you.
 
 
 
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Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 2/7/2007 10:41 AM (GMT -6)   
Thanks Ladies. I kind of thought that's what I was going to hear about the 'natural' remedies. I'm trying to be very careful of boosting my immune system especially since I don't know what I might have. My hubby keeps telling me to go to bed earlier and try to get more sleep, but when I do that it doesn't help at all. I have been trying to cool it on the lifting and yesterday wasn't thinking and didn't accept help when I should have, I'm not used to asking for help.. ERGH! Pride thing? Who knows? Thanks again.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 2/7/2007 2:55 PM (GMT -6)   
Wednesday p.m.
 
Good afternoon, Dedra:
 
Being dx'ed with MS for 19 years, I'd have to say fatigue is the worst MS symptom...
 
And unless you are a MS patient, you cannot percieve the depth of our fatigue...
 
I think I'll go lay down now....John

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 2/7/2007 7:38 PM (GMT -6)   
Hi Denda,
 
    Oh my I can relate to the pride thing and not asking for help!  It's just so hard being independant and for me I just want so much to do what I used to I try and do it anyway and pay the price.  I have found though that most people are more than willing to help if asked, and some who know me and my situation get mad at me if I don't!  I guess what I'm saying is don't be afraid to ask for help, if they offer go ahead and accept.  It does get easier to do, but something I'm still working on myself.   Take care!
 
 


 
Co-moderator for Multiple Sclerosis
 
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MSBLESSED
Regular Member


Date Joined Feb 2007
Total Posts : 70
   Posted 2/8/2007 9:48 PM (GMT -6)   
Good evening. Fatigue has been my biggest challenge since I was diagnosed in November of 2006, so this is very new to me. I'm one of those kind of people who are always doing a million different things at one time and loving it. Multi-tasking was my middle name. I also work in an IT environment and can relate to the "little things" that needs to get done around the office that you don't even think about. I work 6 hour days since I returned to work a couple of weeks ago (my father passed away on 1/13/2007) and my role has changed. I was under a great deal of stress in my previous role in the IT department, but since returning (only for 6 hours)  and changing bosses, my stress level has decreased a great deal. I am married (2.5 years) and am the mother of a 15 year old daughter, and am very active in my church. I've NEVER had to ask for help for anything, and thought of myself of weak if I had to. Since my diagnosis a couple of months ago, I'm learning that regardless of the meds you take to control the MS (which I am currently taking the daily injections of Copaxone) you are still going to be tired. My Nuero gave me Ritalin which has done absolutely nothing, so I e-mailed him last week to ask for other options. He suggestion was to cut back my hours even more. I can't take that hit financially, so I need to come up with other options. I also wanted to do the "natural" thing but my heart rate has been unusally high for the past few months.  They don't have an answer for that either. The Echo's and EKG's have all came back fine. My Nuero doesn't want me to do any type of physical activity that might increase my heartrate more than it already it. It usually averages (resting) around 110. (shaking my head) So....having said all that..take that giant pride pill and ask for help. If there is one thing I've realized since being diagnosed is that I don't have to do EVERYTHING in one day. I try to break it up over a few days. My hubby doesn't really get the whole MS thing (at all) but is trying to be supportive in his own way. That's a seperate topic for another day. nono   Not going there today. If you do happen to find something natural that works for you, please be sure to share that information online. I'm sure there are tons of us out there who can use it. Keep us informed and I'll pray for you. Until the next time...rest and ask for help when you need it!!

Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 2/9/2007 7:45 AM (GMT -6)   
Thanks MSBLESSED. This is probably the 2nd hardest thing for me at work so far, the multitasking is the first.. Like you, I was awesome at the multitasking and that is probably why I'm where I'm at now, but I'm lucky to be able to focus on one or two things and successfully accomplish those things in a day, when previously it wasn't a successful day if I didn't accomplish at least 10 things and I would go home, do homework (full time student too) and work until 11:00 - 12:00 at night until I got everything off my work list done. Not anymore, I just can't do it. My family didn't like it, but my boss did. Now my family is liking me a little more, by boss isn't. I finally took myself off the 24 hour on call rotation (which I never really needed to be on in the first place, but I'm the type of manager that doesn't ask anything of my people that I won't do myself), that was a big step for me and took some stress off as well. It is very nice to know of how everyone is coping with this. I did let my boss know what was going on somewhat which again took some more stress off me and he knows that I'm looking to get out of the stressful position I'm in to a less stressful one (not in his dept, he doesn't know that) ;O) I, too, can't take the financial hit of cutting my hours, 1 kid in college, another starting this August. Up until about 6 mos ago, I was thinking about looking for a 2nd job to help the kids with school! Yeah, I laugh about that now.. don't know what in the world I was thinking..

I'll keep looking for that remedy that we all need. Thanks again.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 2/14/2007 8:14 PM (GMT -6)   
Hi there, thought my fatigue was bad....but looks like I've got a lot more of it to look forward to!

Question for "MSBLESSED". I have not been diagnosed, but have many symptoms. about Ten years ago I had heart issues too.....my heart would begin racing for no apparent reason and ended up hospital bound a few times with it. I had not thought about this since....but am now wondering if it could have been related to my current MS symptoms????? Any ideas?

MSBLESSED
Regular Member


Date Joined Feb 2007
Total Posts : 70
   Posted 2/14/2007 9:13 PM (GMT -6)   
Research, research, research. I found that a lot of the meds have side effects they refer to as racing heart beat or Tachacardia. (I know I didn't spell that right but you can get the idea) They told me after 2 ekg's and a echo that everything looked fine. My heart rate on average right now runs about 98 and when I'm busy cleaning and doing stuff it's about 150. EWW! Talk about tired. The docs say that they aren't related, but I KNOW better. Everything takes so much energy from me. Keeping looking!! I'd be interested in hearing what you find out.
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