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tropical dreams
Regular Member


Date Joined Sep 2006
Total Posts : 76
   Posted 2/7/2007 2:36 PM (GMT -6)   
Hello Everyone,
 
I had a follow up visit to my PCP which made me very angry mad    I am finding that he doesn't and won't listen to me.  Since my Neuro dx my MS my PCP has distanced himself and gives me that I FEEL SORRY for you look.  He won't listen to any of my symtoms or address any of my needs (handicapp sticker for my real bad I can hardly walk days).  
 
I have been feeling really good the last 6 days after 2 months of hell (finally a remission? confused   and decided to go ahead with my own business that I started putting together last may (that's when I inc and have done nothing since), well my PCP says not to do that only look at tomorrow and don't look ten years down the line-huh?  He literally made me cry and feel worthless and useless (he prescribes my anti dep).  I am to see my Neuro tomorrow (I hope, prob with referral from PCP) and will discuss this with him and probaly should look for a new PCP too.
 
Sorry for the negative but have no one to talk to.  Thanks for all your shoulders tongue .
***Carla***
 
EVERY DAY I WAKE IS A NEW POSITIVE BEGINNING
 
Dx 08/02/06 MS
Betaseron
Citalopram
Gabapentin


Shashi
Regular Member


Date Joined Jul 2006
Total Posts : 156
   Posted 2/7/2007 2:51 PM (GMT -6)   
Oh Sweetie! I think I would be finding a new PCP.

My doctor admits that he hasn't got a clue as to what is wrong with me. If I say anything about any of my weird symptoms, he just looks at me and shakes his head.  I stopped telling him any of my neurological problems and now only go to him for simple things like colds or infections.

Some doctors need to get sick themselves, so they can know what it feels like to be on the other side of the fence.


Hugs,
 
Lisa ~
 
Living in Limboland!
 
Negative MRIs + Negative LP + Positive symptoms = A lot of confusion + A ton of frustration!


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/7/2007 2:55 PM (GMT -6)   
Hey Carla!

U come talk to us anytime u like and need...our shoulders are BIG! Yes, u should consider a new PCP if he's not listening to u. Sometimes docs feel once u've got a dx that's maybe outside their comfort zone of treatment, that they can't offer anything more. If that's the case and they don't offer u anymore support, then u do need someone who'll fill that position. Many times u'r neuro will expect u to see him only as needed for follow up once the dx is made...hence, leaving u in the same position. All that said, don't feel u'r alone in this type situation. U'r pcp will most likely be the one who'll help u treat symptoms and so u'll need a good one...and yes that means u prob need to find another doc. :( Maybe u'r neuro can point u in the right direction for a good pcp with experience treating ms patients. Hang in there and don't feel so down...u'r not alone and we'll listen to u anytime u need. :)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 2/7/2007 3:48 PM (GMT -6)   
Oh Carla!

I'm so sorry your PCP is treating you like this! YES, find a new one. Find a young, hip, good looking one, if you know what I mean... huh?? Huh?? Oh, well, yeah, he better know something too, but being easy on the eyes doesn't hurt. I'm sorry. I hope I at least made you smile! :o) (I've been watching way too many Scrubs episodes lately!)

I can't tell from above, do you like your neuro or is this the first time your seeing this neuro? I'm sorry, I'm really foggy this week with reading. The words are taking a long time to comprehend. Maybe ask the neuro for a suggestion of a new PCP or if you like a nurse at the neuro's, ask who her PCP is? What about a friend at work, ask them who they go to? Is there a referral service at the local hospital there? Nothing stinks more than when you don't like your PCP. You're in Florida, aren't you? I have all kinds of connections down there, gimme an area and I'll find you someone! :o) Hang in there lady!


I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 2/7/2007 4:29 PM (GMT -6)   

You really do need to find a new primary care physician. Any of you do, who find your current doctor unwilling to talk with you, or uninterested in your health needs.  That's what they are THERE for, after all!

I actually interview primary care doctors when I need a new one (like, when I moved to my home now 10 years ago).  I'm bound by the list of doctors my health insurance will cover, of course -- but I did interview (at my own cost) 4 of them on the list before I found my current doctor. I had one in the first year who I thought was going to work out, but I "fired" him as soon as I could, and then started the process again, to find my current doctor. 

I call the office, tell the receptionist (or nurse or whoever it is that answers the phone) that I want a 20 minute - half hour appointment, at my expense, at which time I am going to share with the doctor my medical situation as I know it, ask him/her for her opinion, discuss my aversion to "alternative / complementary" medicine and be sure the doctor is OK with that, and other matters related to my care.  No exam necessary, just an interview.  I've never been refused. I go prepared with questions and concerns and see what the doctor's response is. I ask about how I'd reach her in an emergency; if there are others in the office who I should talk with (like a nurse-practioner, or the nurse that works exclusively with my doctor) if the doctor is not available; who she uses as back-ups when she is not available; how she feels about dealing with the fact that I use a wheelchair (needing assistance, for example, to get on the exam table, etc.)  And then I try to get a feel for her (or his) attitude towards me.  And if I don't like it...I tell them up front that I won't be back, thanks for their time, and I'm outta there.

I really like my current doctor -- who calls me directly with test results, calls me (or my husband, who is also her patient) if we've seen her with health problems, just to see how we're doing.  Last year I happened to have my annual physical on my birthday -- I got home to find a call from her, wishing me a happy birthday -- it came before my appointment, but we'd been out all day shopping and then to the doctor so missed it. I'm sure she wondered why I didn't say anything about it at the appointment! :)

So don't be afraid to look for a new doctor -- then simply call and ask the office to transfer your records.  You don't really owe the "old" doctor any sort of explanation,  and can just move to someone new, who is more acccepting and understanding. 

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


tropical dreams
Regular Member


Date Joined Sep 2006
Total Posts : 76
   Posted 2/8/2007 1:55 AM (GMT -6)   
Thanks everybody, you guys or I should say gals are great:) It's so hard to talk to anybody that doesn't experice what we do. My boyfriend (God bless him) tries soooooo hard to understand, he has done so much research on MS but I see the look in his eyes so I stop telling him alot of things. I guess I am still in the adjustment mode and being such a talker that I am it's hard not too.

Denda, I have been seeing my Neuro for almost a year now. My appt tom is to go over the nerve tests of my upper and lower extreminties which I am anxious to be enlightened hahaha. Yes, you made me laugh, I'm an er person myself:)

Will let all know what happens at the Neuro if I have the appt, they were trying to get a referral for me. I live rgt around the cornor so they told me to show up anyway and if we have to will reschedule (I hate that word) LOL. No appointment then I go shopping for a quick fix and spoil me hahahaha

Is there a shopaholic board here hehehehe
***Carla***
 
EVERY DAY I WAKE IS A NEW POSITIVE BEGINNING
 
Dx 08/02/06 MS
Betaseron
Citalopram
Gabapentin

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