Tysabri & follow up

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 2/14/2007 7:49 PM (GMT -6)   
Hi All,
Just a quick note (I'm fighting the Avonex crud tonight)  My friend here who was in a wheelchair just a year ago from ms is now on Tysabri (she was on Avonex and novantrone and got good results) and had her 3 mos. neuro check and mri...her neuro is amazed, he says her mri is clear, if he hadn't known her all this time he would say she doesn't have ms!   Her walking, etc..is so much better.  She has progrssive relapsing, very rare.  On Tysabri you have to have an mri and neuro appt. every 3 months.
 
My hubby wants me to go on the Tysabri but we'll see what my neuro says in march.  She doesn't want to change anything right now (she won't even change me to the powder avonex).
 
Also, I had my anal manometry today and it wasn't painful, I think it was normal and I will probably see the gi doc next wed. I will see a new urologist on Monday.
 
Take care...big hugs to all of you who aren't feeling well or are emotionally hurting. :-)


Michelle ><>
Co-Moderator MS forum
 
Happiness is not a destination but a day-to-day journey..

Post Edited (shellypoo) : 2/14/2007 8:14:32 PM (GMT-7)


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 2/14/2007 9:20 PM (GMT -6)   
Hi Michelle,
 
     I'm glad that test wasn't painful for you.  Are there anymore tests pending or is that the last of the lot?  Good luck with your doctor appointments, I do hope you get some answers!!  I am a bit confused as to why your neuro refuses to budge on the Avonex thing, why would the powder make a difference to her if it could possibly help you??? (sorry just care about you and feel a bit frustrated for you as well)  Take care my dear friend, and keep us updated.
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/14/2007 11:44 PM (GMT -6)   
Hey Michelle!!

Good to see u!! Wow!...sounds like ur friend has had great success with Tysabri!! What wonderful results!! I hope u do get to try that in March...seems it could be a great alternative for u! I'd certainly love to see u doing better...but bet u'd love to see it much more than me. ;) I'm like Kimber tho, why not make any changes with all the probs u've had??

I'm sooo thankful the test went well for u and wasn't painful!! I know u were dreading that and it's wonderful to actually NOT have bad or painful effects for a change! I really hope it was normal and all is well...and that u do get to see the gi doc next week! Please let us know how u'r appts go when u'r able and how u are. It's so great to see u here again!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


BGD2Me
Regular Member


Date Joined Apr 2006
Total Posts : 366
   Posted 2/14/2007 11:51 PM (GMT -6)   
Michelle,

That would be wonderful if you could try the Tysabri! Even more wonderful if you worked for you like it did your friend! I hope you get some relief very soon, you deserve it!

Glad the test went good. I hope you get the results soon.

Take it easy and take care of yourself!

Lysha
When everything's coming your way, you're in the wrong lane.

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, October 18, 2017 6:51 AM (GMT -6)
There are a total of 2,883,627 posts in 316,434 threads.
View Active Threads


Who's Online
This forum has 157538 registered members. Please welcome our newest member, salfelci.
337 Guest(s), 9 Registered Member(s) are currently online.  Details
Erichardson234, Michelejc, skeye, countess18, Lwnsmld13, Shelly1978, kylek, limey, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer