Welcome Misslocke!

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Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 2/16/2007 4:49 PM (GMT -6)   
Misslocke said...
 
:-)  Hello all,
This is also my first post on this site! 
 
I have also not been diagnosed with MS - So far I have had an MRI scan on my head and spine, which showed up two lesions on my brain and one on my spine. My Lumber Puncture showed up all clear and am now waiting for the results of a recent evoked potential test.
 
My first two doctors said that they thought it was highly likely it was MS but my Nurologist has said he did not think it was. He wants me to wait and see what happens a few years down the line because some people only have one relapse and it can never happen again????? Is this true?
 
It all started in June last year after finishing 4 exams I went to the hairdressers and started to have pins & needles in my left foot, on leaving the salon the pins & needles had extended up my left leg - I thought nothing of it and expected it to eventually go - It didn't - It eventually moved up the whole of my left hand side and I also experienced a tooth ache/shooting pain sort of sensation down my left arm and leg. I was also feeling awfully tired and weak. I had these symptoms for approx 2 weeks so I went to my local GP who told me to go home and come back if it got worse as he had no idea what it was - I went back after a few days to another GP who did loads of blood tests etc all showing up negative apart from my Thyroid gland (for which I now have to take Thyrokine) - Eventually my whole left hand side was numb and freezing cold and the pins & needles had also started in my right leg, I was struggling to walk and had to go on my hands and knees going up and down stairs - So I went to the casualty at my local hospital were more tests were done and eventually I was sent home with a promise of an MRI scan within 4 wks. This is what started all the testing...... 
 
The whole of the symptoms lasted between 6 & 7 wks. And eventually I just stayed at home and rested and they started to go away. I still get shotting pain sensations down my left arm and leg but its nothing compared to what it was!!! 
 
I feel like people think I am making it all up - Why would I?
 
I am only 25 years old and can't believe this is happening to me as I am so young!
 
I would love to hear from people in similar situations to me. And also from people who know of ways to relieve the symptoms through diet or herbal supplements etc.... The Nurologist has given me some sort of Anti-depressent/muscle relaxant sort of tablets for the shooting pains but I have not as yet taken them - because the side effects are very similar to my MS symptoms. eyes

Hi Misslocke,

    Welcome to the forum!  Sometimes new posts get passed over when introduced in another thread so I started a new thread for you so more people will see your post :-)

    I'm sorry you are having problems so young.  There are certain criteria for a diagnosis of MS, and your neuro doesn't feel that you meet those right now, and wants to wait and see what happens.  It is true that in some cases people only experience one relapse, but if you do experience another relapse and/or have another MRI in the future showing more lesions that might be enough for a diagnosis. 

    I've yet to see any diet or supplements that help with MS symptoms.  Some supplements actually boost the immune system which can be harmful for MS patients, so please be careful.  There are many medications though to help with symptoms, and you may or may not experience those side effects that you seem to be fearing will happen.  Everyone is different in response to meds, you might find one that works for symptoms that you can tolerate well.   Best of luck and please keep us updated as to how you are doing, I'm sure others will be along soon to welcome you.

Kimber


 
Co-moderator for Multiple Sclerosis
 
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KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 2/16/2007 9:54 PM (GMT -6)   
Hi Misslocke,

I am very new to the site too.......I only found it a few days ago, but am already finding so many people in the same situation...I.e. neg. MRI, neg LP, lots of symptoms, but no diagnosis!

I understand your frustration so much, all these scary things are happening, and no-one can tell us exactly what we are fighting!

I can also relate to you when you think that people don't believe you. I find that even my closest friends, and most caring relatives just don't get it!! I guess that's where this site is fabulous....even though we don't know each other we all have a lot in common.

Catch up again soon!

Kas

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 2/16/2007 10:30 PM (GMT -6)   
Hey Misslocke

Welcome to the board! Glad to see u found us and i hope u'll find this site...this group of wonderful people...are as supportive and helpful as we've all found it to be. The process of getting a dx of either ms, or anything else for that matter, can be very long and exhausting. In particuliar, MS is hard to dx because it's a process of elimination. The doc must first eliminate all other possibilities for u'r symptoms and u must also meet the criteria that Kimber spoke of to be dx'd...something that takes a long time in many cases. I"m one of those in limbo like Kas spoke of...all normal or neg test results and all these funky symptoms. No answers in sight. Hang in there and follow u'r doc's reccomendations...even if u don't feel that's where the prob lies. If u do u can then eliminate that as a possible cause or any med as a possible good fit...or find that it IS a good fit for u'r pain and get the relief u need. Please let us know how u'r doing and feel free to ask any questions u have...we'll all be glad to try to answer them as best we can. Take care and, again, welcome to the board!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 2/16/2007 10:34 PM (GMT -6)   
Welcome! I hope you find comfort and support here. :)
Michelle ><>
Co-Moderator MS forum
 
Happiness is not a destination but a day-to-day journey..

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