steroid called Solu-Medrol

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angielov
Regular Member


Date Joined Feb 2007
Total Posts : 58
   Posted 3/2/2007 2:22 AM (GMT -6)   
Hi all. The nurse is coming tomorrow to put the iv in and leave it in for four days. I will be getting a bag of Solumedrol for four days (I also had a drip of it in the E.R. yesterday.)
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Rhonda said: I'm so sorry so much is happening so quickly for u, but in a way it's good that u'r not going to be stuck in limbo so long maybe. I can tell u it's no fun not knowing what's going on...but it's no fun knowing either.
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I totally appreciate that Rhonda and I am extremely grateful for how this is going. I'd be out of my mind if the doctor's were giving me the run-around. I can see how people go crazy during this process if the doc.'s aren't listenting to the problems. I'm sure the fact that my MRI showed multiple lesions probably helped speed things, however my spinal tap results won't be ready for days, so who knows, maybe this is some sort of freak virus?? Kinda doubt it, but you never know.

How long do flare-ups usually last for? This one that I am having has been going on for like over two weeks now and some symptoms feel like they are getting worse. Is that normal? Can being stressed and tired really bring on an exacerbation? Sorry for being all over the place.

Angie

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 3/2/2007 5:57 AM (GMT -6)   
So, it is an IV, not shots, that you're getting?  That's a pretty common occurance - -the IV -- and it really helps some folks recover quickly from a flare. I hope that's true for you.
 
Flares, or exacerbations, have "minds" of their own. They can last anywhere from 24 hours or so, to weeks, even months.
 
One thing you do have to learn, though -- sometimes not all the symptoms go away entirely between flares.  You might ALWAYS experience some things. Like fatigue - -that's pretty common in all of us. It doesn't mean we're always having a flare -- but it is just there. Often the sensory stuff -- numbness, tingling -- never go away entirely.  Residual symptoms, symptoms that just hang around between flares -- are pretty usual.   Once you get past this flare and things settle down a bit, it'll be time to talk with your doctor about meds you can try that might help with some of the residual symptoms. There are meds for fatigue, for example, which help a lot of folks get through the day.
 
And then there's my fatigue drug of choice...coffee. Leaded coffee.  :)
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


angielov
Regular Member


Date Joined Feb 2007
Total Posts : 58
   Posted 3/2/2007 1:48 PM (GMT -6)   
yes, it is i.v. drugs. Sorry about the confusion with the word "shot" , I haven't known myself exactly what's what with all of this. I realize that I have had about 4 or 5 flares and the residual feelings that I've had in between have been numbness mostly. Three toes in my left foot have been almost completely numb for about a year. My right arm and left leg have been markedly weaker since a flare I had back in august. The FATIGUE is the big killer really and I have actually been on adderrall for fatigue for almost 9 years. I've been taking 20-40mg everyday because of what I thought was a sleeping disorder, but now I'm starting to wonder if my inability to ever feel rested might be from the MS. If that is indeed what I have. I tried a couple other drugs throughout the years, Provigil being one of them and none of them have worked like the adderrall. Do any of you have to take "uppers"? I hate that, but it is a reality for me. I've never abused it and on days where I feel I have more energy I only take one instead of two. But I really can't function real well without it. I fall can fall asleep anywhere at anytime, even driving, but it was never diagnosed exactly as narcolepsy, just in the same sort of family as narcolepsy. I never did do a sleep study/test though and wondering if I should... The nurse will be here soon, I'm not a big fan of needles but guess I may have to get used to them??

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 3/2/2007 4:31 PM (GMT -6)   
angielov said...
yes, it is i.v. drugs. Sorry about the confusion with the word "shot" , I haven't known myself exactly what's what with all of this. I realize that I have had about 4 or 5 flares and the residual feelings that I've had in between have been numbness mostly. Three toes in my left foot have been almost completely numb for about a year. My right arm and left leg have been markedly weaker since a flare I had back in august. The FATIGUE is the big killer really and I have actually been on adderrall for fatigue for almost 9 years. I've been taking 20-40mg everyday because of what I thought was a sleeping disorder, but now I'm starting to wonder if my inability to ever feel rested might be from the MS. If that is indeed what I have. I tried a couple other drugs throughout the years, Provigil being one of them and none of them have worked like the adderrall. Do any of you have to take "uppers"? I hate that, but it is a reality for me. I've never abused it and on days where I feel I have more energy I only take one instead of two. But I really can't function real well without it. I fall can fall asleep anywhere at anytime, even driving, but it was never diagnosed exactly as narcolepsy, just in the same sort of family as narcolepsy. I never did do a sleep study/test though and wondering if I should... The nurse will be here soon, I'm not a big fan of needles but guess I may have to get used to them??
A sleep study might not be a bad idea.  There are a lot of common sleep disorders, and if you should have one, a sleep disorder combined with MS can be a real challenge.
 
MS-related fatigue is very common, and one of the main reasons why lots of folks end up not being able to work -- they just don't have enough energy.  And it can come on very suddenly - -you'll be doing stuff, feel fine, and then suddenly feel like you can't continue a single minute more. 
 
I've not found any of the drugs particularly useful. I have learned though from others that sometimes the drugs will lose effectiveness, and you either need to try another, or "take a vacation" from the drug for a couple of weeks and then get back on it, and it will be effective again for awhile.
 
I think it's dangerous, though, for you to be driving -- particularly with kids in the car -- and fall asleep!  You really need to tell your doctor about that (if you haven't, already). That might be enough to trigger a referral for a sleep study, to see if indeed you have a sleep disorder!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


angielov
Regular Member


Date Joined Feb 2007
Total Posts : 58
   Posted 3/2/2007 4:46 PM (GMT -6)   
Thank you so much for all of your input and support. Pertaining to my "sleep disorder" , the good news is that as long as I am taking my adderrall, I don't fall asleep at the wheel or anything like that.

It doesn't take away my fatigue completely - not even close - but it allows me to function. During this flare however I am not functioning well at all or driving.

I am definitley going to talk to my neuro at my appt. next week about the sleep dynamic. Like I said before, this is all going so fast I'm still putting the pieces together and haven't even talk to him about that part yet.

Question: how do you make the box around the text of the person who you are responding to? I like how you do that in your posts, it makes it easier to understand what people are talking about.

Thanks again,
angie
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