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Barb E
New Member


Date Joined Mar 2007
Total Posts : 9
   Posted 3/14/2007 9:35 PM (GMT -6)   

I'm sure you get a million of these but to be honest I'm so tired of searching and reading that I'm hoping someone will look at the list and say "Yes, could be" or "No, you're barking up the wrong tree Barb"

 

Started out a few years ago with just an odd sensation in my head.  The only way I can really explain it is that if feels like my brain is rolling over.  The doctors did an EEG and found some "Odd electrical activity" but with further study (sleep deprivation EEG) decided it wasn't seizures.  I learned to live with it and for a long time it got much better.

about 3 months ago it got worse again and 2 months ago the following appeared:
Use the wrong word (Such as I was thinking and meant to say October but said donut)

Can't think of a word (Easy words like predictable and etiquette)

In Jan I forgot to set my alarm 3 times (I've never done that in 30 years of working)

"Zinging" sensation down my left arm

Legs (both) feel so heavy its serious work just to walk from my car to the office.  Bad first thing in the morning then seems to get better but by the end of the day it's really bad again.

Loss of part of the vision in my left eye (peripheral) but that lasted just a couple of days

I’m exhausted, all the time.  I do work full time and sometimes that means 50 hours a week rather than 40. 

 

I’m 47 years old and there is no history of MS in my immediate family.

Thank you for any insight of if I might be barking up the right or wrong tree!  I do have an appt with my PCP on Monday.

Barb

 

[IMG]http://img.photobucket.com/albums/v289/fillyone/peacesign.gif[/IMG]


Barb E
New Member


Date Joined Mar 2007
Total Posts : 9
   Posted 3/14/2007 9:40 PM (GMT -6)   
Just wanted to add when they did the EEG they also did an MRI and it showed no lesions. That was about 5 years ago or so.

VIEW IMAGE


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 3/14/2007 10:19 PM (GMT -6)   
Hey Barb

Welcome to the board! I"m sorry to see u'r having these probs, but so glad u found us. As u may have suspected, it'd be hard to say whether or not u'r looking in the right direction with what's going on with u, but some of u'r symptoms do sound like MS symptoms. They could also be many other things as well. Have u seen a neuro or are u planning to get a referral to one from u'r pcp? That's prob going to be u'r first step. If u can, start now keeping up with u'r symptoms. Make note of all the symptoms u've had as u did here and try to keep up with the course of those or any new symptoms that arrise. Take that to u'r appt with u'r pcp and if u see a neuro, to him. Try to get copies of u'r tests results. U'll want to hang onto those for possible future use as well. In the meantime u may want to take a look at the National MS Society's site... www.nmss.org ...and check out the symptoms page. Did u see an eye doc when u'r peripheral vision went for that week?? May be a good idea to set an appt to see u'r eye doc now. Any eye doc can look at u'r optic nerve and see if there's any problem. Hang in there...tho it's frustrating u'll get thru this and get answers in time. Others will be along soon and give u more complete information, but for now i hope this helps.

I wanted to add that we have live chats on Monday's at 6:00pm (cst) each week. I hope u'll get a chance to join us and hopefully get some real time answers to u'r questions. Again, welcome to the board.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 3/15/2007 5:55 AM (GMT -6)   

It doesn't sound like you've seen a doctor recently for these symptoms?  5 years is a long time between MRI's, to determine if there is something wrong. When yo go in to see your primary care doctor, take a list of the most troublesome symptoms, be sure he knows about your testing 5 years ago, and be prepared to tell him what new or worsening symptoms have occurred since then.  Be prepared to undergo lots of testing, if not starting with the pcp, then perhaps with a neuro, or maybe a rheumatologist, depending on what the doctor might suggest as your first stop.

As Rhonda suggested, there is a long list of things that can cause similar symptoms, so it's impossible for anyone here to say exactly what is going on with you, but you should see a doctor and begin the testing process.

MS is not a directly inherited disease, so the fact that there isn't any MS in your family doesn't mean much.  MS is an autoimmune disorder; are there others in your immediate family with things like diabetes, or lupus, or rheumatoid arthritis? Those are autoimmune disorders, too.  Sometimes a tendency to have one or more autoimmune disorders can "run" in families.

Otherwise, there are plenty of folks with MS who have had the bad luck to be the first or only one in their family with such a disorder.


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 3/15/2007 7:22 PM (GMT -6)   
hi barb,
i've had the zing down my spine into my legs, also the left eye vision problems and the heaviness in my leg. my left leg felt like it weighed a thousand pounds when i had my last episode. that was my main complaint. i had to actually lift my leg into the car. i have no family history of ms, but like uppitycats said, i have autoimmune in my familiy. my aunt (my moms sister) has rheumatoid arthitis real bad. my moms aunt had RA really bad. my moms first cousin has lupas. so i think it probably manifested itself as ms in me. strange huh?my neuro thinks so also. diabetes is rampant on my moms moms side also.good luck barb. hope everything works out. be diligent in getting answers until yu find some relief. it took me 18 months to get an answer .
good luck
sweetlydia

Barb E
New Member


Date Joined Mar 2007
Total Posts : 9
   Posted 3/16/2007 5:13 PM (GMT -6)   
Thanks all for your responses, I do appreciate it.
:)

 


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 3/16/2007 7:34 PM (GMT -6)   
Hi Barb,
 
    Welcome to the forum.  I wish I could give a definitive answer, looking at your list it could be a lot of things.  So many illnesses have overlapping symptoms, sometimes its just hard to tell without going through the testing and elimation process.  Five years is a long time though, something that didn't show up on tests then might now.  I wish you luck and hope you find the cause of all that is going on with you.  Please let us know how you make out with your appointment on Monday.  Take care.
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

Barb E
New Member


Date Joined Mar 2007
Total Posts : 9
   Posted 3/19/2007 10:00 PM (GMT -6)   
I saw my PCP today, they drew blood to check my B12 and thyroid and since I've had 2 kidney surgeries he's running kidney function as well as the normal anemia etc.
 
If that all comes back fine we'll "do an MRI or see a Neurologist or both" and if that comes back negative then I'm "just stressed out".
 
But...the blood test is a start
 
Thank you again for your replies, :-) Barb

 


KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 3/19/2007 10:17 PM (GMT -6)   
Hi Barb,

good luck with the tests...I hope you get answers real soon!

KAS

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 3/20/2007 9:44 AM (GMT -6)   
Hey Barb

Hang in there friend...this takes a while and u may come across a lot of 'u'r stressed' before u get any definitive answers. Don't give up and keep pushing as long as u know there's something not right. The B12 and Thyroid are good places to start looking. I was told early on that they can both mimic ms and give u all sorts of probs. The mri is a good next step as well as seeing a neuro. If nothing else u'r getting things eliminated and can narrow down the possibilities. In the end if it's ms it'll show up. Keep trudging on! Please let us know how all the tests go and take care of u'rself.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Bally
Regular Member


Date Joined Oct 2005
Total Posts : 24
   Posted 3/20/2007 10:12 AM (GMT -6)   
Hi Barb,
I'm sorry to hear that you are going through a similar situation to my own! A few things came to mind that my Neurologist mentioned regarding those symptoms. Things that he first suspected in me, that were ruled out through testing. One is cervical stenosis, and your age is appropriate. Another is Chiari malformation. The symptoms you've mentioned do sound like MS too, so it's hard to say. I would definitely go back to a Neuro and mention these two possibilities. Both require CT scans of the cervical vertebrae with attention to c1, c2 and occipital region. Good luck!
Allison (28)

~DX'd Basilar/Complicated Migraines 10/05
Is it Lupus, MS, Lyme, or Fibro??? Still working on a diagnosis.

Treatment: Midrin, Amitriptyline (20mg), Motrin 800mg, Magnesium 400mg, Malic Acid 600mg, B6, B12


Barb E
New Member


Date Joined Mar 2007
Total Posts : 9
   Posted 3/22/2007 5:27 PM (GMT -6)   
According to my doctor's website my blood work all came back "within normal limits"
I'm off to call before they close to start the next step.
Part of me had talked myself into a B12 defiecncy and an easy fix yeah , one can always hope.
 
 

 


Barb E
New Member


Date Joined Mar 2007
Total Posts : 9
   Posted 3/25/2007 11:49 PM (GMT -6)   
Brain MRI tomorrow and appt with the Neurologist on 04/05/07.
Least it's moving fairly quickly

:-)  


 


KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 3/26/2007 12:35 AM (GMT -6)   
Hi Barb e,

good luck with the mri tommorrow.

Thinking of you.

KAS
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