ABNORMAL MRI-NO SYMPTOMS

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ALLISON76
New Member


Date Joined Mar 2007
Total Posts : 4
   Posted 3/29/2007 3:13 PM (GMT -6)   
Hi everyone.  I am just wondering if there is anyone on here that "may or may not" have MS like myself.
I went to the doctor for a whoosing noise in my ear that has been bothering me.  I had an MRI, and that MRI showed lesions in the perventricular white matter.  The largest lesion is 11mm.  The radiologist report states that these lesions are "suggestive" of demyelination.  I then freaked out, went to the neurologist.  I passed all my reflex tests, and the heel to toe. The Dr said that she was perplexed because of I have no symptoms to speak of, yet I have this MRI that is very suggestive of MS.  I am currently waiting to have more diagnostic tests done such as a visual field test, spinal tap, MRI of the spine, and blood work.  I am wondering if I could have had some symptoms that I have looked over but nothing I have is really standing out.  I am a 30 year old woman, just gave birth to my second child.  I have no significant medical history except for having Bell's Palsy in 2004.  Can anyone shed any light here?
 
Thanks,
 
Allison
 
 
(mod note: Post edited to remove caps for easier reading)
 

Post Edited By Moderator (Kimber) : 3/29/2007 3:49:03 PM (GMT-6)


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 3/29/2007 4:02 PM (GMT -6)   

Perhaps results of the other tests will narrow the focus of attention for you and the doctor.  Presumably you've told him about the Bell's Palsy? I have heard of folks who have experienced that, and found that it was a sort of "precursor" to MS developing later -- not that Bell's Palsy really is a precursor...but what they had wasn't really Bell's Palsy at all, but problems with facial nerves that sometimes happen with MS.

Lots of us overlooked stuff early in our course of developing MS, thinking "everyone has that!", or being told "everyone feels that way!" by people around us.  So that certainly is a possibility. 

Also, lesions can appear long before any external signs are evident. In fact, people have died of other causes, and had an autopsy done -- and lesions have been found that were suggestive of MS, yet the person had no external signs! So that's a possibility.

And lesions can appear for other reasons than MS -- migraines, some infections of the central nervous system, vascular problems -- all can lead to lesions. So the doctor is being prudent to run all sorts of other tests to rule out -- or rule in -- all other possible causes of problems, before giving you some firm diagnosis.

I hope you get some direction from the test results.


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
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Date Joined Jun 2005
Total Posts : 1852
   Posted 3/29/2007 4:14 PM (GMT -6)   
Hi Allison,
 
   Its a pleasure to meet you.  That is odd you are feeling well but had a abnormal MRI.  It does sound like your doctor is trying to figure it out though.  The tests she is running might help rule things in or out.  She is running most of the ones that help dx MS, its not an easy diagnosis and there isn't one test that says yes you have it.  There are other causes for lesions too.  Aging, migraines, stroke, and lyme's disease are the ones I can think of on the top of my head right now, but there are others. 
 
   It's interesting you had Bell's Palsy though.  Of course it can happen with no known cause but sometimes it's associated with some other condition.  It might be worth looking into that possibility.
 
   There are some good resources here on Healing Well to look at.  If you want more information on symptoms, here's a few others that might help. Good luck and please let us know what you found out.
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

BGD2Me
Regular Member


Date Joined Apr 2006
Total Posts : 366
   Posted 3/29/2007 4:39 PM (GMT -6)   
Allison,

You mentioned that you just gave birth to you second child. I am putting a link at the bottom for you to look at. It discusses pregnancy and MS. It might be helpful for you. Some of the things that you think are "normal" for you, just might not be the "norm".

You doc seems very thorough and it seems she's looking at all possibilities. I wish you lots of luck and I hope you get the answers you want and need!

HW is a great place to come and ask questions. We have very knowledgeable people here! I hope you let us know how things turn out.

Lysha


http://www.musckids.com/health_library/hrpregnant/neuroms.htm

(rhonda, can you make it active for me? Thanks)
(Done! ;)

Post Edited By Moderator (rhondab) : 3/29/2007 9:11:36 PM (GMT-6)


KAS1
Regular Member


Date Joined Feb 2007
Total Posts : 161
   Posted 3/29/2007 5:47 PM (GMT -6)   
Hi Allison,

very interesting scenario. I do hope that you get some answers soon, as I'm sure it must be weighing on your mind a lot.

Something they may be of interest????......ms symptoms commonly disappear during pregnancy and then return after the child's birth....not sure of the science behind this...but have read it a number of times.

Maybe you are unaware of symptoms because you have been pregnant???


I hope things work out well for you.

Come back and let us know how you get on!

KAS

bloooskies
New Member


Date Joined Jan 2007
Total Posts : 6
   Posted 4/8/2007 9:45 AM (GMT -6)   

Hi Allison,

I was diagnosed with MS last year.  Prior to my attack last year, I did not have any symptoms that I could recall, yet I have 4 lesions (2 active, 2 not active).  My neurologist said MS can be silent, lesions can appear without symptoms.  I suppose it just depends on where the demylination is occuring, i.e. if they are on the brain stem....symptoms would be more problematic (at least that was the case for me).  Hope this helps.

Blooo

 


ALLISON76
New Member


Date Joined Mar 2007
Total Posts : 4
   Posted 4/8/2007 4:02 PM (GMT -6)   
Hey There...I appreciate your response.  Do you mind telling me more about your inital attack?  Are there any symptoms that you could have been having all along that you now realize you overlooked?  I am still waiting to head back to neuro for tests, so I am still in limbo on a diagnosis of that explains my mri-can you also tell me how to tell the difference b/t active lesions and nonactive?

Thanks,
Allison
 
 
(mod note: Edited to remove caps, please refer to forum rule #14..thank you)

Post Edited By Moderator (Kimber) : 4/8/2007 4:25:53 PM (GMT-6)


jorie
New Member


Date Joined Dec 2006
Total Posts : 3
   Posted 4/9/2007 4:14 PM (GMT -6)   

Hi Allison,

 l had my first ms attack 4 yrs ago. When l had my mri l had 4 lesions in my head and several lg lesions on my spine. Not all the lesions were active . l was told that l must had attacks sometime in my past and wasn't aware. There is nothing l can pinpoint. However  looking back on the year before the attack l can remember several odd incidents that only lasted a short while. Certainly nothing to see a doctor about. l had blurry vision that came and went but it only lasted one day. l was incontinent  once. Never had any problems before with bladder so l thought may be l had a slight infection. My balance was slightly off but l thought l was out of shape and joined the gym. 

You are given a dye when having your mri that tells the drs whether or not your lesions are active.

lf your other tests still indicate ms this is a great site for information and support.

Jorie

bloooskies
New Member


Date Joined Jan 2007
Total Posts : 6
   Posted 4/9/2007 9:07 PM (GMT -6)   
Hi Allison,

The difference between active and not active is through contrast used with the MRI scans. The contrast lights up the activity around the white matter where demylination is actively occurring (I think they call it T1/T2-weighting, something like that). As for symptoms...I don't recall any in the past (other than joint pain in my hips). But, all of last summer I was having problems with my ears. I kept going to ENT's saying there is something wrong. They blamed it on TMJ, allergies, etc. etc. Finally I lost hearing, but the ENT still said there was nothing wrong with me. Then I went numb down my left arm, then down the side of my face. A week later the bottom of my foot went numb, then my whole foot, then in a few more days it was 3/4 of my leg. I finally went to the ER and they did CT scan which revealed an abnormality. I was checked into the hospital and had MRI scans, which showed the lesions. During the summer I also noticed I was extremely intollerant of the heat, yet in years past, I loved the heat. Today my hearing is back...I still have discomfort in my ears once in a while. I just have tingling now in my leg, foot and hand.

Hope this helps,
Blooos

pink0918
New Member


Date Joined Feb 2008
Total Posts : 1
   Posted 2/21/2008 1:54 PM (GMT -6)   
I am very interested in your story because mine is virtually identical.  I am 37, had a sudden weird sound in my left ear, went to a ENT who diagnosed mild hearing loss and scheduled an MRI, and the MRI came back with perventricular white matter abnormalities.   I am currently being told I may or may not have MS and am going through a ton of tests.  I also have no other symptoms nor did I previously.  My situation gets even a little more curious because 10 days prior to my hearing problem I was severly rear-ended in car accident.  At the time of the accident I was fine, however, a week after I started getting a stiff neck and then the hearing loss started.  How are you doing now?  Did you by chance have any trauma prior to your hearing problems? 

Maureen21
Veteran Member


Date Joined Apr 2007
Total Posts : 1599
   Posted 2/26/2008 9:02 PM (GMT -6)   
Hi,

I never really come on here- I post on the lyme forum because I have lyme disease. However, I just read your post and wanted to tell you that you should check out lyme disease. The reason I say this is because you said you had bells palsy, which is a common lyme symptom. Lyme disease can cause lesions on the brain too, so just wanted to bring it up to you while you are searching for your diagnosis. There are a lot of people diagnosed with MS who later find out that they have lyme disease.

Maureen21
Veteran Member


Date Joined Apr 2007
Total Posts : 1599
   Posted 2/26/2008 9:06 PM (GMT -6)   
Oh, i forgot to mention that you need to see a good doctor (a lyme literate MD) and get proper testing (from a lab like Igenex) in order to see if you really have lyme disease- you can post in the lyme forum to find a doctor if you want and they will help you there.

tropics01
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 4/5/2009 8:54 PM (GMT -6)   
Hi! I noticed that you all were talking about abnormal MRI's, and MS symptoms. I have been very confused since January, when I had 2 unexplainable episodes where I started slurring my speech, lost balance, saw double....at first, I thought I was having a transient stroke. (mini-stroke) I made an appointment with a neurologist in Mayo Clinic, where they did MRI with contrast, EEG (for seizures), and spinal tap, and a full cardiac workup. They ruled out stroke and epilepsy, but they found spots on my brain and told me I had an abnormal MRI. I saw an MS specialist (supposed to be one of the best in the country) and he said he did NOT think I had MS. I needed to make another appointment at Mayo, so I just decided to take my test results and come home. I have my appointment with the neurologist tomorrow. I wish I knew whether I should be worried or not. I just want some answers. Does anyone have some wisdom for me? confused

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3520
   Posted 4/6/2009 3:29 PM (GMT -6)   
Wisdom?  You want wisdom?  Wow that is a huge order!  I am sorry you are having these scary episodes and no definite answers.  I can't think of a thing you are missing.  You have had the MRI, you are seeing seemingly excellent doctors.  You may want to ask for some of the other MS type tests.  Those are lumbar puncture (looking for oligoclonal bands), evoked potentials, and perhaps an MRI of your cervical and thoracic spine.  Good luck.

Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


tropics01
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 4/8/2009 7:37 PM (GMT -6)   
bloooskies said...
Hi Allison,

I was diagnosed with MS last year. Prior to my attack last year, I did not have any symptoms that I could recall, yet I have 4 lesions (2 active, 2 not active). My neurologist said MS can be silent, lesions can appear without symptoms. I suppose it just depends on where the demylination is occuring, i.e. if they are on the brain stem....symptoms would be more problematic (at least that was the case for me). Hope this helps.

Blooo

tropics01
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 4/8/2009 7:42 PM (GMT -6)   
Thanks Gretchen, and ALL!

I saw a neurologist in Louisville yesterday, and it was a real disappointment!! Without looking at any of my chart, he just said, "I see you have been to the demi-gods at Mayo, so what are you expecting from me?" He didn't want to even try to look at my records. I don't know whether to just wait for the next episode to happen, or go to another neurologist. Maybe they really can't do anything more until I start having more episodes. ???

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3520
   Posted 4/8/2009 11:08 PM (GMT -6)   

It may be that you don't have MS.  There are many things that can cause "spots" or lesions.  For some, it seems as it is an aging thing.  Those spots can be without any sort of symptom.  Many people with migraines have lesions.  Your "episodes" almost seem like a migraine with aura.  Those can be very strange.  They are not necessarily painful; instead you have these other symptoms. 

I would take it as good news that you have seen two docs and neither one seems to think you have MS.  Have they said what you DO have?  Some people are so sure that they have MS that they never get the doctor to say what it might be besides saying it is NOT MS.  Did anyone offer an explanation?  If they didn't, it may be because they can see you just want to know about MS.  It becomes a "yes it is MS, or no it is not MS" deal. 

You may just want to give it a break.  Keep a very specific symptom journal.  Something like.......Sunday April 5th, 8am...had double vision for about four hours.  Later in the day had vertigo and tingling until after bed time.  Monday, April 6th...."  give that a try and see what happens.  You may be able to give the doctor more detailed information that can help with the diagnostic process. 

Good luck.  I hope you are feeling better real soon.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Sue D Num
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/4/2009 4:15 PM (GMT -6)   
Hey anyone got an update on this? This sounds just like my 19-year-old sister: wooshing in ear, abnormal MRI, and neurologically sound. I am beyond worried. Help!

armouti
New Member


Date Joined Jul 2012
Total Posts : 1
   Posted 7/10/2012 1:25 PM (GMT -6)   
Hi everyone :) I notice the posts here are very old but I'm gonna give it a try anyway.
I am a 25 year old female and I have the same problem. I had an MRI because I was having headaches, turned out I had sinusitis, but the doctor found multiple lesions on my brain. After doing all sorts of tests (which all came out negative) the neurologist diagnosed me with ms. I took a second opinion and also the second neurologist diagnosed me with ms based on the mri because I have no symptoms. My parents were not fully comfortable with what the doctors said so they took me to the Mellen Center for MS in the Cleveland Clinic and the Neurologist there was surprised that my mri shows typical ms lesions but I have no symptoms. He then told me that I have a high risk of developing ms but I don't need to be medicated right now as I do not meet the qualifications of ms. He told me that I should have an mri every 6 months to see if there are changes. If I develop new lesions, then I should start taking ms medications (probably rebif). I just had my mri and it shows a new region of active lesions and i'm waiting for my appointment with the neurologist. I have a feeling that I'm gonna start taking medication and I'm freaking out a bit. Is it normal to have lesions and a diagnosis of ms without having any attacks or symptoms?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3520
   Posted 7/10/2012 3:56 PM (GMT -6)   
Wow! It is rare, but it can happen. I hope you stay symptom free forever! Remember, it's your body. You don't have to take a medication if you don't want to. The MS meds attempt to slow down the progression of MS. They don't always work. MS typically moves slowly.

Meanwhile, eat healthy, get lots of exercise, don't smoke and try not to stress! Best of luck to you!! Feel free to ask lots of questions.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Iceskater
New Member


Date Joined May 2013
Total Posts : 1
   Posted 5/23/2013 2:11 PM (GMT -6)   

Had a second MRI today that showed significant lesions on my brain and the doc said I have MS.

 

I originally had my initial MRI because of a partial loss of hearing on my right side, turns out to be acoustic nuroma tumor.

 

At that time I was told to go see the neurologist for all the white matter showing up on my brain scan,

 

Here's the weird part:

 

I'm 54, male, excellent health, don't smoke, don't drink, I run 70 miles a week, I can outwork most people 1/2 my age.  I teach speed skating so I get 3000+ miles a year on my skates and another 1000 on my bike.

 

Not one single symptom!!

 

What's wrong with this picture?  I'm already dealing with the possibility of a 12 hour operation to remove my brain tumor which I am largely paying no attention to until it happens, but what the heck am I supposed to do now?

 

My doctor actually thought he had the wrong MRI.  He said the MRI and I don't matchup and he has no answers, just more testing to be done.

 

Life sure can get interesting!

 

Signed... Perplexed

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