Post Edited By Moderator (Kimber) : 3/29/2007 3:49:03 PM (GMT-6)
Perhaps results of the other tests will narrow the focus of attention for you and the doctor. Presumably you've told him about the Bell's Palsy? I have heard of folks who have experienced that, and found that it was a sort of "precursor" to MS developing later -- not that Bell's Palsy really is a precursor...but what they had wasn't really Bell's Palsy at all, but problems with facial nerves that sometimes happen with MS.
Lots of us overlooked stuff early in our course of developing MS, thinking "everyone has that!", or being told "everyone feels that way!" by people around us. So that certainly is a possibility.
Also, lesions can appear long before any external signs are evident. In fact, people have died of other causes, and had an autopsy done -- and lesions have been found that were suggestive of MS, yet the person had no external signs! So that's a possibility.
And lesions can appear for other reasons than MS -- migraines, some infections of the central nervous system, vascular problems -- all can lead to lesions. So the doctor is being prudent to run all sorts of other tests to rule out -- or rule in -- all other possible causes of problems, before giving you some firm diagnosis.
I hope you get some direction from the test results.
Post Edited By Moderator (rhondab) : 3/29/2007 9:11:36 PM (GMT-6)
I was diagnosed with MS last year. Prior to my attack last year, I did not have any symptoms that I could recall, yet I have 4 lesions (2 active, 2 not active). My neurologist said MS can be silent, lesions can appear without symptoms. I suppose it just depends on where the demylination is occuring, i.e. if they are on the brain stem....symptoms would be more problematic (at least that was the case for me). Hope this helps.
Post Edited By Moderator (Kimber) : 4/8/2007 4:25:53 PM (GMT-6)
l had my first ms attack 4 yrs ago. When l had my mri l had 4 lesions in my head and several lg lesions on my spine. Not all the lesions were active . l was told that l must had attacks sometime in my past and wasn't aware. There is nothing l can pinpoint. However looking back on the year before the attack l can remember several odd incidents that only lasted a short while. Certainly nothing to see a doctor about. l had blurry vision that came and went but it only lasted one day. l was incontinent once. Never had any problems before with bladder so l thought may be l had a slight infection. My balance was slightly off but l thought l was out of shape and joined the gym.
You are given a dye when having your mri that tells the drs whether or not your lesions are active.
lf your other tests still indicate ms this is a great site for information and support.
It may be that you don't have MS. There are many things that can cause "spots" or lesions. For some, it seems as it is an aging thing. Those spots can be without any sort of symptom. Many people with migraines have lesions. Your "episodes" almost seem like a migraine with aura. Those can be very strange. They are not necessarily painful; instead you have these other symptoms.
I would take it as good news that you have seen two docs and neither one seems to think you have MS. Have they said what you DO have? Some people are so sure that they have MS that they never get the doctor to say what it might be besides saying it is NOT MS. Did anyone offer an explanation? If they didn't, it may be because they can see you just want to know about MS. It becomes a "yes it is MS, or no it is not MS" deal.
You may just want to give it a break. Keep a very specific symptom journal. Something like.......Sunday April 5th, 8am...had double vision for about four hours. Later in the day had vertigo and tingling until after bed time. Monday, April 6th...." give that a try and see what happens. You may be able to give the doctor more detailed information that can help with the diagnostic process.
Good luck. I hope you are feeling better real soon.
Had a second MRI today that showed significant lesions on my brain and the doc said I have MS.
I originally had my initial MRI because of a partial loss of hearing on my right side, turns out to be acoustic nuroma tumor.
At that time I was told to go see the neurologist for all the white matter showing up on my brain scan,
Here's the weird part:
I'm 54, male, excellent health, don't smoke, don't drink, I run 70 miles a week, I can outwork most people 1/2 my age. I teach speed skating so I get 3000+ miles a year on my skates and another 1000 on my bike.
Not one single symptom!!
What's wrong with this picture? I'm already dealing with the possibility of a 12 hour operation to remove my brain tumor which I am largely paying no attention to until it happens, but what the heck am I supposed to do now?
My doctor actually thought he had the wrong MRI. He said the MRI and I don't matchup and he has no answers, just more testing to be done.
Life sure can get interesting!